New Transplant Blog Posts

@retiredteacher Hi, Carol. I currently have 1 year in on the wait list. I will go back to Rochester in June for my annual review. I am in the process of trying to get on the transplant list at Nebraska Medicine in Omaha. I am scheduled for testing there on January 8-9. My sister @lottajoy has her last chemo on Monday. In this round, the first infusion takes about 10 hours and then she has 4 infusions of chemo - one every 12 hours - so she has to stay in the hospital for 3 days. It wipes her out for 3 weeks. If everything goes well, she will have a stem cell transplant in January. That will require a 3-4 week stay in the hospital. I stopped walking also. I really need to get back into it again.

@marvinjsturing Glad to hear from you, Marvin. I am sorry your sister is having such a rough time, but at least she is getting excellent treatment. I hope you get on the Nebraska list and any others you think will consider your case. I think I'd contact as many as possible. You never know when there will be a match. I am really disappointed in myself that I let the walking go, but when it's hard to walk at all, exercising isn't even a consideration. I've been told the nerves will not regenerate so I suppose my feet will just get worse. We all have our crosses to bear, but we can keep the faith and pray that good things will happen. I'll check on you occasionally.
Carol

@contentandwell Did your surgeon give you an answer about the Shingles vaccine?

@hopeful33250 I didn't get to see him that day, he had to be in surgery which is unusual on a day when they are supposed to have transplant clinic appointments. I did see the NP. The current NP is great, she seems very knowledgeable and very thorough. I did ask her about the shingles vaccine and she had an excellent response but I can't remember what it was! I am terrible at retaining medical info. When she told me it made a lot of sense though.
JK

@Contentandwell

I am going to Mayo next wed. I will be sure to ask about the shingles vaccine. We all should share how we remember what the docs say...I always have a list going in and try to remember all the answers. Im going to ask if I can record. I also have someone with me but they often dont put the same importance on the answers that I do.

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Hi @rosemary I did ask last year and this year again when I saw my team in Rochester in January because I had heard that the shingles shot was no longer an active virus and again they told me at mayo in Rochester at mayo that I am still not able to have the shot as it's not safe for me I don't know if it's really a dead virus or not but I always go with what my team says and it could be because of me being a heart transplant to but I was allowed the prevnar pneumonia shot 2 years ago and I get the flu shot every year BUT I always ask to make sure that it is not the live virus flu shot because they have the live and the dead flu shots every year I hope that this answers a few question but I would always talk to your team about it first just to be safe

@rosemarya @glinda i had a heart transplant also at Mayo Phoenix and my team were all for me getting the Shingles shot . Interesting the different opinions even with different drs at Mayo.

Yes it is and it could be no for me as I had the shingles in June of 2011 also and also could be because I have allergies to everything except green bean and chicken but thankfully I have built up immunities to the food I'm allergic but not anything else which makes my life very irritable sometimes especially when I go out hence wearing a mask Everytime I go out somewhere I get looks from some adults like I'm contagious and have a lot of adults ask me why I wear the mask and I tell them why but I really love the children as they already ask me if I'm a doctor before I explain why I'm wearing the mask

@jeanne5009 Great idea to record. I sometimes ask a doctor to write something down for me. I have a hearing disability so sometimes what they say does not come through clearly.
JK