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Amikacin

Posted by pollyflinders @pollyflinders, Jul 14, 2025

I’ve been nebulising Amikacin for about 4 weeks after having 4 weeks of iv Amikacin ( along with other drugs- I’ve got Abscessus). I lost my voice initially for a full week and now that it’s back I’ve developed a really sore throat all on one side. Has this happened to anyone else?
I’ve had a throat swab taken and there’s no infection.

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kathleenlp | @kathleenlp | Sep 3, 2025
In reply to @janetannfaust "Thank you! No side effects yet. I’ve been on a lot of antibiotics the last several..." + (show)
Profile picture for janetannfaust @janetannfaust

Thank you! No side effects yet. I’ve been on a lot of antibiotics the last several years, had 2 sinus surgeries and lung infections. Local pulmonologist never ordered a bronchoscopy. I finally ask for a second opinion and Ohio State pulmonologist did a bronchoscopy and culture results were M Abscessus. There are only several antibiotics that are resistant so ID Dr is looking for my options so couldn’t try the BIG 3. Also, the 4 hours of Amikacin is followed by Imipenem that takes 1 1/2 to 2 hours. Thankful Amikacin is only 3 days a week.
Are any of yours by IV? How long have you been in treatment?
Thank you for your reply.

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No my ID will not do the IV because of side effects so I do it through nebulizer...also I could not get approved thru medicare so he found a compounding pharmacy that has been doing the Arikayce and delivering it to me...so there is that possibility if you can't get it approved...they tried for months. I have to pay out of pocket but it isn't too bad $300 a month and I have an HSA account I can use. I started all meds 6/1 this year What's so concerning is all the people on here that are on their 2nd or 3rd round..abscessus is almost impossible to get rid of from everything I have read....you can improve it and slow it down I think. Hope and pray you do well!!

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