Anyone been prescribed Ohtuvayre (new med)? Your experience?

Posted by kdalda75 @kndaustin71, Oct 18, 2024

Has anyone been prescribed the new COPD medication by their treatment team....Ohtuvayre? Just wondering if it now active, how it is effecting patients and how well it does/doesn't work

Interested in more discussions like this? Go to the COPD: Chronic obstructive pulmonary disease Support Group.

copdinny | @copdinny | Aug 11 3:28pm

In reply to @lovemyboys "Mine is yellow and I shake until it turns white- this is opposite what you said" + (show)

Manufacturer has been told by multiple users that it sticks to the top of the vial -- something that no amount of "vigorous shaking" seems to help.

0620 | @0620 | Aug 11 6:25pm

In reply to @copdinny "Manufacturer has been told by multiple users that it sticks to the top of the vial..." + (show)

Right now I take trilogy and daliresp. I've been on both of those for at least 5 years does this new one that you're talking about help better than the two that I'm on

copdinny | @copdinny | Aug 11 7:49pm

In reply to @0620 "Right now I take trilogy and daliresp. I've been on both of those for at least..." + (show)

Ohtuvayre was approved by the FDA only recently, and is super expensive unless you can get on the manufacturer's financial help list -- and even then you have to have spent at least $2,000 out-of-pocket on drugs and medical before you get it for free for tthe rest of the year.

It helps a little. But after about 3 or 4 months on it, I've gotta admit that I'm disappointed it's not the magic bullet I was hoping for.

My problem with Trelegy -- which I just got back on after problems with Breztri -- is that I can no longer seem to inhale as deeply as I once did. Experimenting now on the best order for taking Trelegy and Ohtu. Alas, never heard of that other drug you mentioned till now, so I can't help you on that.

copdinny | @copdinny | Aug 11 9:46pm

In reply to @kndaustin71 "Ohtuvayre has been a huge disappointment for many! Has your Pulmo mentioned Breztri to you? I..." + (show)

I just had to stop using Breztri 'cause it gave me "flush face."

Doc recommended it because Trelegy -- which I'd been using for awhile -- had become less effective. Mainly, I think, because I couldn't inhale as deeply as I once did.

Actually, it was my second attempt with Breztri. Frist time, back in March 2025, I stopped after 3 days because it made me kind of nauseous.

katpetlover | @katpetlover | Aug 12 12:49pm

In reply to @copdinny "Ohtuvayre was approved by the FDA only recently, and is super expensive unless you can get..." + (show)

I have been using Ohtuvayre for 4 months now and was also hoping for more. My pulmonologist prescribed it as an additional neb treatment along with Formoterol and Budesonide.

copdinny | @copdinny | Aug 12 3:04pm

In reply to @katpetlover "I have been using Ohtuvayre for 4 months now and was also hoping for more. My..." + (show)

So the quest for the magic bullet continues. (Sigh.)

copdinny | @copdinny | Aug 31 10:53pm

In reply to @hellopam "Okay. I'll keep at it then. Does yours have white clumps in it after you shake..." + (show)

Yes, and I reported it to CenterWell, who said I wasn't the first to complain about it. CW was supposed to report it to the manufacturer.

QUESTION: Anybody else wonder about the point of waiting 12 hours between doses if you wake up at noon?

mrmover | @mrmover | Sep 9 3:52pm

In reply to @rick33763 "I have been on it Ohtuvayre for about 2 months it does open my airways to..." + (show)

I just started a few weeks ago and noticed the increased production of phlegm.

linda86 | @linda86 | Sep 10 6:08pm

I started ohtuvayre today. I got a call that I will get to try it and since I have very good insurance I will have no charge. I was very surprised and very grateful. 🙏🏼
I am to still use Trelegy. I hope am not disappointed. I am a very social person so a lot is riding on this.

hicopd | @hicopd | Sep 11 6:18pm

Great you can have it at no charge. I agree that it’s considered an add-on to triple-therapy, which you have with Trelegy. Fingers crossed you benefit as others have!