Anyone experience pain with Y90 treatment?

Posted by camper56 @camper56, Apr 15, 2024

My husband had the Y 90 treatment 2 1/2 weeks ago. He had nausea the first week then it went away. Then started the really sharp pain in his liver area. It usually starts in the afternoon and does not go away without taking an oxycontin. He is having a followup CT scan today. Anyone else experienced the pain for more than a few days?

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Profile picture for mandi123 @mandi123

I am having Y90 this coming week. Angiogram on Monday and first y90 on Thursday. My understanding is after a couple weeks will have y90 to the other half of liver. I have melanoma lesions that spread from ocular melanoma. Would love to see any comments relating to this.

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My husband had Y90 placed in his liver on 9/11/2024 . He is very sensitive to medications and we actually discovered he is allergic to must chemo meds, so when they said “ most people feel like they have the flu for a couple of days and feel a bit off for about 2 weeks “ I in my head planned for 3-4 weeks of him not feeling well as he’s also a very slow metabolizer of medication . I was so very pleased it was about 4 days of laying low and then he felt good and it just got better from there. It also works! Hope this is helpful and best of luck Cat

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Profile picture for mandi123 @mandi123

I am having Y90 this coming week. Angiogram on Monday and first y90 on Thursday. My understanding is after a couple weeks will have y90 to the other half of liver. I have melanoma lesions that spread from ocular melanoma. Would love to see any comments relating to this.

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@mandi123, checking in. How did the angiogram and first y90 treatment go? How are you doing?

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Profile picture for Colleen Young, Connect Director @colleenyoung

@mandi123, checking in. How did the angiogram and first y90 treatment go? How are you doing?

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They went well, minor discomfort. Having last y90 on Tuesday June 2. Then hopefully moving on to Kimmtrex.

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Profile picture for 4fs @4fs

My husband had Y90 placed in his liver on 9/11/2024 . He is very sensitive to medications and we actually discovered he is allergic to must chemo meds, so when they said “ most people feel like they have the flu for a couple of days and feel a bit off for about 2 weeks “ I in my head planned for 3-4 weeks of him not feeling well as he’s also a very slow metabolizer of medication . I was so very pleased it was about 4 days of laying low and then he felt good and it just got better from there. It also works! Hope this is helpful and best of luck Cat

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@4fs, has your husband completed treatment at the moment? How is he doing? How are you doing?

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Profile picture for Colleen Young, Connect Director @colleenyoung

@4fs, has your husband completed treatment at the moment? How is he doing? How are you doing?

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He is doing ok , the Y90 did shrink the tumor and now he’s taking something fairly new ( fruquintinib) as he is actually allergic to chemo ( long nightmare of a story) and it has actually gotten smaller. He takes the pill 1xper day for 21 days then 7 off . He’s definitely more easily tired while taking them .
Thank you for asking
I have some very good friends that check in often on me as we has an adult son with a TBI to care for now also .
Hope it works

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I'm a 76 year old woman with numerous lesions both lobes. 2 1/2 weeks ago, I had Y90. Still experiencing intermittent upset digestive problems, much abdominal pressure and occasional sharp pain. I've been told all is to be expected. Fatigue is prominent. However, the nausea still persists. BUT given the size of of one of the lesions and the fact they were able to disconnect it from my stomach, I'm so grateful for this option! Praying for you and all dealing with this disease.

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Profile picture for lindaldotson @lindaldotson

I'm a 76 year old woman with numerous lesions both lobes. 2 1/2 weeks ago, I had Y90. Still experiencing intermittent upset digestive problems, much abdominal pressure and occasional sharp pain. I've been told all is to be expected. Fatigue is prominent. However, the nausea still persists. BUT given the size of of one of the lesions and the fact they were able to disconnect it from my stomach, I'm so grateful for this option! Praying for you and all dealing with this disease.

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lindaldoston,
So sorry to hear you are experiencing so much pain after your procedure. I don't have a lot of knowledge in this area. But as someone who was experienced a cancer diagnosis in my family, I know how difficult it can be. Supporting each other and praying for a good outcome is something we can all do. Sending healing thoughts your way. Wishing you peace and good health.

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I had Y-90 radioembolization to the liver for breast cancer a month ago tomorrow. I have experienced extreme pain, have had every scan known, and spent a week in the hospital with no answers. Finally yesterday I went to a new GI doctor. She suggested an endoscopy finally after the hospital said it was not necessary, but of course we have to wait 2 weeks. She thinks perhaps ulcers from the procedure.
I have gone in one month from living a fully active life to living with debilitating pain and taking painkillers every day to manage that sometimes work. I don't know if I can manage teaching this semester (I teach college, and we start next week).
I have lost almost 20 pounds because I have no appetite. It's like one day I had a life even with stage 4 breast cancer, and now I don't.
My new GI doc worked in Boston with liver transplant patients and says she has seen similar reactions. My liver mets are significantly elevated.
I apologize for the lengthy post.

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Profile picture for marthawyatt @marthawyatt

I had Y-90 radioembolization to the liver for breast cancer a month ago tomorrow. I have experienced extreme pain, have had every scan known, and spent a week in the hospital with no answers. Finally yesterday I went to a new GI doctor. She suggested an endoscopy finally after the hospital said it was not necessary, but of course we have to wait 2 weeks. She thinks perhaps ulcers from the procedure.
I have gone in one month from living a fully active life to living with debilitating pain and taking painkillers every day to manage that sometimes work. I don't know if I can manage teaching this semester (I teach college, and we start next week).
I have lost almost 20 pounds because I have no appetite. It's like one day I had a life even with stage 4 breast cancer, and now I don't.
My new GI doc worked in Boston with liver transplant patients and says she has seen similar reactions. My liver mets are significantly elevated.
I apologize for the lengthy post.

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@marthawyatt this is terrible, I am so sorry you are going through this. The possible side effects are of course the thing we all fear when we make decisions about treatments, every person with cancer tries to weigh the risks and make the best choices, and it stinks when you end up in the percentage that has troubles. I don’t have liver Mets, just to be clear, but I do have advanced breast cancer. I am feeling sad for all you are going through. I am hopeful for your new GI doctor finding some relief for you.
If they are suspecting ulcers did they order you some carafate for symptom control? Is it normal for your liver tests to go up after radioembolization?

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Profile picture for Chris, Volunteer Mentor @auntieoakley

@marthawyatt this is terrible, I am so sorry you are going through this. The possible side effects are of course the thing we all fear when we make decisions about treatments, every person with cancer tries to weigh the risks and make the best choices, and it stinks when you end up in the percentage that has troubles. I don’t have liver Mets, just to be clear, but I do have advanced breast cancer. I am feeling sad for all you are going through. I am hopeful for your new GI doctor finding some relief for you.
If they are suspecting ulcers did they order you some carafate for symptom control? Is it normal for your liver tests to go up after radioembolization?

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@auntieoakley
Thank you for your kind response. I am taking carafate and yes it’s normal for liver enzymes to go up after radioembolization. But today I am a month out and they remain elevated.

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