Any Ablation Success Stories?

Posted by jimhealthy @jimhealthy, Aug 19 4:28pm

Hi ... I'm new to this forum and see a lot of postings about ablation failures. Does anyone have a success story about their ablation? I've had two cardioversions due to AFIB and am being encouraged to get an ablation by my heart doc. I am currently on amiodarone until my ablation, at which time I'll be switched to dofetilide for the rest of my life. I hate these drugs because they won't allow me to play tennis (dues to breathlessness and fatigue). Tennis is my passion and joy, and it is a great loss to be without it.

I'm wondering if anyone on this platform has had a successful ablation that has allowed you to exercise intensively without being on an antiarrhythmic drug? I would love to hear about your experience.

Interested in more discussions like this? Go to the Heart Rhythm Conditions Support Group.

Hi from Toronto, Canada 🇨🇦
My first and only ablation was on May 28 and deemed a success
😁 However, it is my understanding from the electrophysiologist that
afib is a chronic condition unfortunately.
Last month, I wore a heart holster for 72 hours and everything seemed to be good. I have reduced Flecainide from 2 pills a day (50 mg x 2) to one pills per day for a month. At that time, I’m to stop the med and I’ll wear then I’ll wear a heart monitor for another 72 hours to see if I have any symptoms. It’s a process. But, no regrets about taking the plunge and having an ablation.

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Im 75 no other health problems and I stay busy all day every day. No TV No Computer no sitting. I have lots to do outside What is a TEE and a DOAC. Im not to savvy about that stuff

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Profile picture for gloaming @gloaming

If you meant to ask me this question, it was an EP in Victoria, British Columbia, Canada. His name is Paul Novak. Part of the Pulse Cardiology team/network of working electrophysiologists and cardiologists.

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Thanks!

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Profile picture for gloaming @gloaming

Statistically, with variance due to skill of the electrophysiologist in question AND in the complexity/stage of progression of the patient, the average success rate for first (called 'index') ablations if about 75-80%. Second attempts do a bit better, about 80-85%. The very best EPs have better results because they can subdue the complexity of the more advanced and complex cases (as our hearts age, and as our atrial fibrillation/flutter goes on, it becomes more difficult to treat because more areas in them generate the rogue cells that compete with the sino-atrial node (SA node).
It took two tries, seven months apart, to find the tiny gap in the lesion 'dam' that the EP made the first time. As he was zapping my third pulmonary vein, my heart lurched into reliable normal sinus, and they knew they had found that tiny gap they'd missed. But remember, 75-80% of all index ablations are successful. I am now 29 months free of AF.
I am unsure of why you must be on Dofetilide if your ablation succeeds. Perhaps you have known complexity, advanced stage of arrhythmia....it is beyond me. In the heavy majority of cases, the patient might be on propafenone or Flecainide for a few weeks to help the heart calm and heal, and then they go off it for two or more weeks before the confirmatory Holter monitor assessment, which takes place near 10-12 weeks post op. Some need the extra 'insurance', some just need metoprolol for a few weeks and nothing more. It depends on the EP and the patient.
I don't know if you know it already, but Tikosyn requires (normally) at least two-three days of administration in hospital on startup because it can have serious side effects. Whatever you are told to expect and to do, though, THAT is your prescription, and please follow it to the letter.
I am no longer a competitive or recreational runner. I was doing some of that before my first ablation, but not since. I do walk aggressively, sometimes jogging, and I often climb two flights of steep steps on an oceanside bluff, each flight approx 160 steps. I am 73, and by the time I'm halfway up the first flight I am at 140 BPM. So, theoretically maxed out. And this goes on for the next six minutes or more with no hiccups. Hopefully, some weeks/months after your (successful) ablation you can look forward to a similar effort, relatively. Note that it really depends on your risk factors and on why you developed the arrhythmia in the first place. If, as some find, it was due to intense exercise, maybe also too long, then.....................

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I am
On Tikosyn and had an ablation. No more signs of Afib but according to my EP the Tikosyn is supportive of a successful ablation. Please do what your EP says to do. Hearing others sagas is helpful but no one here is a medical expert.

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Profile picture for annieparker51 @annieparker51

Hi from Toronto, Canada 🇨🇦
My first and only ablation was on May 28 and deemed a success
😁 However, it is my understanding from the electrophysiologist that
afib is a chronic condition unfortunately.
Last month, I wore a heart holster for 72 hours and everything seemed to be good. I have reduced Flecainide from 2 pills a day (50 mg x 2) to one pills per day for a month. At that time, I’m to stop the med and I’ll wear then I’ll wear a heart monitor for another 72 hours to see if I have any symptoms. It’s a process. But, no regrets about taking the plunge and having an ablation.

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Yes, your understanding is correct. Once the heart is electrically disordered, that's it for the rest of the person's life. AF can be strictly limited, even permanently blocked successfully from happening via catheter ablation, but it's still in that disordered state, and contrary to some arguments I keep getting, it IS a progressive disorder (the last 'fact' stated by this expert in complex arrhythmia cases, Dr. Scott Lee, says so... https://www.youtube.com/watch ).
I am happy to hear from a fellow Canadian who seems to have found a good EP who did good work for his heart. Here's to another dozen or more years free of AF!

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Profile picture for annieparker51 @annieparker51

Hi from Toronto, Canada 🇨🇦
My first and only ablation was on May 28 and deemed a success
😁 However, it is my understanding from the electrophysiologist that
afib is a chronic condition unfortunately.
Last month, I wore a heart holster for 72 hours and everything seemed to be good. I have reduced Flecainide from 2 pills a day (50 mg x 2) to one pills per day for a month. At that time, I’m to stop the med and I’ll wear then I’ll wear a heart monitor for another 72 hours to see if I have any symptoms. It’s a process. But, no regrets about taking the plunge and having an ablation.

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Hello, from Hamilton.

Glad to hear of your successful outcome. Did you go directly to ablation, or were you cardioverted earlier?

My 1st CV (done without amiodarone, after almost 6 mths of persistent AF on metoprolol) lasted from 24-12 to 25-07. I'll be starting amiodarone soon, for a 2nd CV in Oct.

Not sure how/when ablation may factor in, but I'm a bit apprehensive (probably unnecessarily) of the prospect.

Cheers,
RG

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Profile picture for scottbliz @scottbliz

Im 75 no other health problems and I stay busy all day every day. No TV No Computer no sitting. I have lots to do outside What is a TEE and a DOAC. Im not to savvy about that stuff

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TEE is a trans-esophageal echocardiogram. It's like an rectal endoscope, except put down the tongue end. It's an ultrasound that allows the surgeon to see what's happening close to the wand.
DOAC is 'direct-acting oral anti-coagulant', such as rivaroxaban or apixaban (Xarelto, Eliquis...) They work differently from coumadin or ASA (aspirin), and are preferred due to their action on the clotting mechanism. Patients with occasional or active AF are at approximately six times the average person's risk for their age of a stroke. The DOAC reduces that risk to low numbers like between 1-3%.
https://www.bmj.com/content/362/bmj.k2505
https://pmc.ncbi.nlm.nih.gov/articles/PMC3556861/

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Thankyou very good info for me. Very well explained

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Profile picture for aard @aard

I had an ablation and was completely off any drugs for almost 2 years. Then a mitral valve leak (regurgitation) caused my afib to recur. I had a mitral valve repair and have been afib free except for a couple short episodes for over a year. I'm still taking flecainide and eliquis, but don't have any side effects. After my ablation, I went to Nepal for 2 months of trekking, climbing to a bit over 18,000 feet; I'm heading off for a 3 week backpacking trip next week. So yes, you can have a very active life after afib. Whether you stay off drugs or not depends on your specific circumstances and your cardiologist.

One of my brothers had an ablation and is off all drugs - very active lifestyle. Another brother had an ablation (he had 3 ablations) and after the last the cardiologist (EP) took him off all drugs; his regular cardiologist put him back on eliquis; he is completely afib free.
Will all this last for all of us? We'll see, but all three of us are completely happy that we had it done.

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Sorry, I'm on diltiazem and eliquis, not flecainide.

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Husband had ablation in 2020 and no afib since. He takes Eliquis as a precaution. We believe the skill of the EP is paramount and why some patients do better than others

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