Has anyone found a treatment that helps with peripheral neuropathy?

Posted by bigjohnscho @bigjohnscho, Jul 1 10:27am

I suspect that everyone on this forum has been searching for a medication that helps their neuropathy and even though you no that all the internet claims are false we continue to waste hundreds of pounds. Desperation is a powerful force. Has any one been fortunate enough to find a genuine treatment. I just can’t believe that there are so many awful people who prey on our vulnerability and knowingly orchestrate such elaborate scams.

Interested in more discussions like this? Go to the Neuropathy Support Group.

Scotch on the Rocks is the best pain killer but Gin and Whiskey also help. Just sit in your favorite chair with your Playboy Magazine and sip your Scotch will make your pain go away. Just remember to rest for a while after sipping your Scotch. If you get up right away you might fall on your face.

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I have been going from being chilled to sweating. Wondering if this is part of neuropathy or maybe anxiety. Would really like to know.

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In reply to @lawrence0614 "Absolutely!!!" + (show)
Profile picture for lawrence0614 @lawrence0614

Absolutely!!!

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For me that would be the treatment of last resort.

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Profile picture for barewhit @barewhit

I have recently tried Tumeric, and I am super surprised that I actually could tell a difference. It hasnt been a huge difference...but when you have diabetic peripheral neuropathy throughout your entire body, even the tiniest difference can make the biggest difference. I also basically diagnosed myself with Vitamin B, D, magnesium,and potassium deficiency because I was having these all over convulsions/jerks (they almost felt like seizures) every time I would try and relax or try and fall asleep and my daughter told me I would literally jump and twitch all night long. I went to my neurologist 3 times, the orthopedic 2 times and I can't even remember how many primary doctors I went to begging for help. That went on for almost 5 years and one day i was reading something about body jerks and the article mentioned areas of the body where spasms and twitches were more commonly happening and I thought it was worth a shot since it sounded exactly like what was going on with me and the spasms stopped the very next day and I haven't had 1 since!! I even asked the neurologist if my issues could be because of a vitamin deficiency and she said that most likely not because it is so rare. Come to find out, it's not all that rare. I'm still having the horrible neuropathy pain and sensitivity though. I feel like I'm getting bit or pinched a lot. I can scratch my arm and feel a pinch in my calf. Or I can just touch my foot and feel pins and needles pain on my head. The very worse thing I hate though is I am ALWAYS sweating! I'm always either too hot or too cold but even if I'm shivering cold, I'm STILL sweating. Does anyone else sweat like that with peripheral neuropathy?

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Welcome @barewhit, Quite a few members have mentioned sweating with their neuropathy symptoms. Here's a discussion on the topic - Unusual excessive sweating: https://connect.mayoclinic.org/discussion/unusual-excessive-sweating/.

There are also quite a few discussions and member comments on vitamin deficiency and neuropathy if you want to scan through the list - https://connect.mayoclinic.org/search/?search=vitamin+deficiency+and+neuropathy.

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I have been watching a few videos advertising the supplement Arialief. I know most supplements are scams so it would be very helpful to hear from anyone has tried it.

John

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Profile picture for nammers @nammers

I have not yet found a treatment that works. I did, however, (following the advice of someone else on this forum) see a podiatrist. He suggested taking 600 mg of alpha lipoid acid and 1000 mg extended release B Complex for three months. He said to take daily without fail and he will do some testing of nerve conduction when I see him in three months. I began four days ago. Has anyone tried these supplements?

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Well I got my letter from the Mayo Neurologist dept. They did a “deep dive” into my medical records. I had hoped that Mayo , since they have an extensive research, I had hoped that they could provide some new research treatments. The response was due to patient capacity and that they couldn’t offer any other treatments than what I am already doing. ☹️
So I am on my own. !
What is my personal treatment : I have left leg and left foot neuropathy. ( However there are many types of Neuropothathy). I have tingling sensation , easily irratedq by pants , socks, shoes, numbness down outer thigh, outside of leg calf, around the kneecap, around the ankle bone, and diminishing sandy feeling bottom of foot under toes and along right side of left foot. My personal daily health plan. AM. Alternating days of Physical therap exercises, yoga exercises, TENS unit application ( pads in proper place), Antiflamitory fruit, Greek yogurt, cinnamon, ginger, protein powder, apple cider vinegar, etc. shake, pils: D3, multivitamin, Tumeric, Krill oil,, multi vitam B vitamin. All of good quality. ( no synthetic ). ( there is a difference !). Deep tissue massage. ( look for a massage therapist trained in deep tissue massage). It’s not Swedish massage!). It can be painful sometimes). Accupuncture for pain in back ( after extensive failed back surgery). On going Pysical therapy, magnesium lotion on leg and whole foot.
It’s time consuming. I have to balance my daily life activities and what I do for my neuropathy.
I’m currently researching studies about the Sural nerve and Tibial nerve entrapment. Thanks for listening. Watch out for scams and poor quality ingredients.

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Profile picture for putsy @putsy

Well I got my letter from the Mayo Neurologist dept. They did a “deep dive” into my medical records. I had hoped that Mayo , since they have an extensive research, I had hoped that they could provide some new research treatments. The response was due to patient capacity and that they couldn’t offer any other treatments than what I am already doing. ☹️
So I am on my own. !
What is my personal treatment : I have left leg and left foot neuropathy. ( However there are many types of Neuropothathy). I have tingling sensation , easily irratedq by pants , socks, shoes, numbness down outer thigh, outside of leg calf, around the kneecap, around the ankle bone, and diminishing sandy feeling bottom of foot under toes and along right side of left foot. My personal daily health plan. AM. Alternating days of Physical therap exercises, yoga exercises, TENS unit application ( pads in proper place), Antiflamitory fruit, Greek yogurt, cinnamon, ginger, protein powder, apple cider vinegar, etc. shake, pils: D3, multivitamin, Tumeric, Krill oil,, multi vitam B vitamin. All of good quality. ( no synthetic ). ( there is a difference !). Deep tissue massage. ( look for a massage therapist trained in deep tissue massage). It’s not Swedish massage!). It can be painful sometimes). Accupuncture for pain in back ( after extensive failed back surgery). On going Pysical therapy, magnesium lotion on leg and whole foot.
It’s time consuming. I have to balance my daily life activities and what I do for my neuropathy.
I’m currently researching studies about the Sural nerve and Tibial nerve entrapment. Thanks for listening. Watch out for scams and poor quality ingredients.

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Which Mayo were you trying to get into? I was discouraged to read your post as I'm also waiting to hear from the Mayo Clinic in Rochester to see if I can get an appointment.

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Profile picture for hoch @hoch

Which Mayo were you trying to get into? I was discouraged to read your post as I'm also waiting to hear from the Mayo Clinic in Rochester to see if I can get an appointment.

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Mayo , Rochester, Mn. Layton phone said I should contact the Redwing mayo
office. I called Redwing. I was told I need a Dr Referral to Redwing clinic
? I’m in the process of getting my Dr referral. I don’t know if it will be
fruitful. ? ? J

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Profile picture for putsy @putsy

Mayo , Rochester, Mn. Layton phone said I should contact the Redwing mayo
office. I called Redwing. I was told I need a Dr Referral to Redwing clinic
? I’m in the process of getting my Dr referral. I don’t know if it will be
fruitful. ? ? J

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That's strange because I filled out and submitted an application over a week ago. I received a phone call the next day from them with some additional questions. They also told me that the application I submitted was for neurology and that neurology had suggested my application get sent to their neuropathy group. I was told to expect a response between 7-10 business days. I'm going to remain hopeful!

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Profile picture for hoch @hoch

That's strange because I filled out and submitted an application over a week ago. I received a phone call the next day from them with some additional questions. They also told me that the application I submitted was for neurology and that neurology had suggested my application get sent to their neuropathy group. I was told to expect a response between 7-10 business days. I'm going to remain hopeful!

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I didn’t apply on line. I called and a woman answered took all my info and passed it on to neurology. She said that neurology would review all my info. She gave me the direct phone number to neurology. I waited 10 days no response. I called the neurology number and that is when she said I was denied and vaguely why. That same day I got my rejection letter through Email/ text.
Wishing for better results for you.

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