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In praise of Orgovyx

Posted by northoftheborder @northoftheborder, Oct 7, 2024

I'm hardly an old vet here (my stage-4 prostate cancer was diagnosed just 3 years ago), but I've seen big changes in treatment even over that short time.

In my opinion, the biggest improvement has been Orgovyx. Getting a Firmagon injection was like having the flu, a stomach rash, and a fist-sized swollen reaction to a wasp bite ... Every. Single. Month.

The past six months on Orgovyx — just another daily pill — have been like night and day for my quality of life. I find it puzzling when I read people posting about how "awful" Orgovyx is, and then I remember that they're not comparing it to Firmagon but to life before ADT.

So maybe I am an old vet after all, since I'm comparing things to the bad old days (uphill in the snow both ways and all that). 😉

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

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jime51 | @jime51 | 2 days ago
In reply to @vircet "I am sorry you're experiencing many side effects listed by the Orgovyx manufacturer. My 6 months..." + (show)
Profile picture for vircet @vircet

I am sorry you're experiencing many side effects listed by the Orgovyx manufacturer. My 6 months in Orgovyx will end in September; I'm hoping my favorable experience will continue until then. I also hope your situation will improve, see a reduction in SEs,

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Thanks! I’m supposed to be taking it until Christmas Eve, 2026 but I’m going to attempt negotiating early release!

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jeff Marchi | @jeffmarc | 2 days ago
In reply to @jime51 "I don’t know that my hot flashes are notable, but one or two will wake me..." + (show)
Profile picture for jime51 @jime51

I don’t know that my hot flashes are notable, but one or two will wake me up at night and I averaged one hourly on a trip this week while driving. It just feels like my scalp and face are melting but I’m not completely miserable

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I use an Embrlabs.com Wave 2 device to reduce hot flash intensity and for nights. The device has a night mode that last seven or eight hours and send cooling waves through your arm and at night it tends to eliminate any flashes that would wake you up. The bed used to be wet under me when I’d wake up And the device stopped that problem.

They do have a 60 day moneyback guarantee.

If the hot flashes bother you enough, get one and I can give you instructions for how to configure it the best way. I beta tested the product four years ago and I’ve been I worked with them to fix bugs since then.

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heavyphil | @heavyphil | 2 days ago
In reply to @robertmizek "Hope you feel great sooner than later!" + (show)
Profile picture for robertmizek @robertmizek

Hope you feel great sooner than later!

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Thanks, Bob, been feeling really good since being off ADT. Still damned tired, though…but not getting any younger so no surprises there.
Phil

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tjv1156 | @tjv1156 | 2 days ago
In reply to @jeffmarc "As with everything else with prostate cancer side effects from ADT vary from person to person...." + (show)
Profile picture for jeff Marchi @jeffmarc

As with everything else with prostate cancer side effects from ADT vary from person to person.

Even though I’ve been on it for nine years I’ve had never had a fatigue problem, but I have a terrible, hot flash problem.

I also never had depression from it and never gained weight from it, But many do.

The loss of muscles, The weakening of bones and Some cardiovascular problems affect almost everybody. Brain fog is another issue that only affects some people, And usually requires longer term use of ADT.

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Sometimes i wonder how much of my fatigue is psychosomatic. Hey , they tell me it’s going to make me tired-who am I to argue?

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