1. < Prostate Cancer
Profile picture for northoftheborder

In praise of Orgovyx

Posted by northoftheborder @northoftheborder, Oct 7, 2024

I'm hardly an old vet here (my stage-4 prostate cancer was diagnosed just 3 years ago), but I've seen big changes in treatment even over that short time.

In my opinion, the biggest improvement has been Orgovyx. Getting a Firmagon injection was like having the flu, a stomach rash, and a fist-sized swollen reaction to a wasp bite ... Every. Single. Month.

The past six months on Orgovyx — just another daily pill — have been like night and day for my quality of life. I find it puzzling when I read people posting about how "awful" Orgovyx is, and then I remember that they're not comparing it to Firmagon but to life before ADT.

So maybe I am an old vet after all, since I'm comparing things to the bad old days (uphill in the snow both ways and all that). 😉

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

Profile picture for pesquallie
pesquallie | @pesquallie | 2 days ago
In reply to @scottbeammeup "Orgovyx never properly wore off after taking it for six months. My testosterone hasn't returned to..." + (show)
Profile picture for scottbeammeup @scottbeammeup

Orgovyx never properly wore off after taking it for six months. My testosterone hasn't returned to low normal 14 months after stopping, my estradiol is almost zero, and my FSH (the hormone that tells the body to make testosterone) is off the charts high. I'm starting to develop high cholesterol which I never had before, and now have full-blown osteoporosis.

So I probably won't die from prostate cancer, but instead from the side effects of Orgovyx.

I do finally have an appointment with an endocrinologist in January (made the appointment in August of this year) so hopefully can get to the bottom of what's going on.

Jump to this post

@scottbeammeup

I have had the same effect with Lupron but after 5 months off Lupron with very severe side effects they are starting to fade. I was only on Lupron for 4 months but had to stop because of severe headaches, sweating, aching joints and bones, and brain fog. I still have no libido or erections. PSA and testosterone both near zero after 5 months with a blood test planned for January , 2026. I am 83 years old.

REPLY
View MoreView Less
Please sign in or register to post a reply.