Brachioradial pruritus. (severe itching on forearms and neck, no rash).

Posted by Patrick Cotter @patrickcotter, Mar 19, 2012

Does anyone know of this. I think its rare but does exist. My neurologist does not know about this. I have compression between my c5 and c6 cervical disk and have had alot of sun damage to my skin.

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I have precisely these symptoms (severe itch, no rash) and definitely worse at night. Noticed first on my upper arms though - and was going through menopause so just assumed it was due to hot flashes. Twenty years later it is clearly along the brachioradial pathway and recent x-rays and treatments reveal a lot of issues going on at the C-4 to C-6 vertebrae. But I had not put this neck condition together with UV exposure. Now living in FL it makes absolute sense to me that this is the condition. Grateful to all the postings of things folks have tried. Ice gives immediate relief but is obviously not practical as a cure. I just had a hip replaced and noticed the itch disappeared- perhaps due to the medication but I suspect it had a lot to do with the level of relaxation my muscles finally received - and the hydration of fluids - and the lack of uv light I was exposed in the first 2 weeks of recovery. Now 12 weeks out it's back with a vengeance - and intense sun here in Florida. So I will be following up now to explore treatments and really appreciate any studies people can share to help inform my practitioners of this condition that clearly many people suffer in silence with. Oh - to get back those years of just enduring it! The "OMT" treatments are my first choice (gentle manipulation by a DO practitioner) as I have not found a chiropractor I trust here, and with osteoporosis now too I want to go the gentle route. I have been for over a year now learning to recognize "nerve pain" and damage - and there are many very gentle methods for nurturing the nerve fibers and restoring blood flow and relaxing them. Will post again when I find something that directly correlates to improvement. Cheers to all those who found relief!!!! There is hope!

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Profile picture for rlr602024 @rlr602024

I have precisely these symptoms (severe itch, no rash) and definitely worse at night. Noticed first on my upper arms though - and was going through menopause so just assumed it was due to hot flashes. Twenty years later it is clearly along the brachioradial pathway and recent x-rays and treatments reveal a lot of issues going on at the C-4 to C-6 vertebrae. But I had not put this neck condition together with UV exposure. Now living in FL it makes absolute sense to me that this is the condition. Grateful to all the postings of things folks have tried. Ice gives immediate relief but is obviously not practical as a cure. I just had a hip replaced and noticed the itch disappeared- perhaps due to the medication but I suspect it had a lot to do with the level of relaxation my muscles finally received - and the hydration of fluids - and the lack of uv light I was exposed in the first 2 weeks of recovery. Now 12 weeks out it's back with a vengeance - and intense sun here in Florida. So I will be following up now to explore treatments and really appreciate any studies people can share to help inform my practitioners of this condition that clearly many people suffer in silence with. Oh - to get back those years of just enduring it! The "OMT" treatments are my first choice (gentle manipulation by a DO practitioner) as I have not found a chiropractor I trust here, and with osteoporosis now too I want to go the gentle route. I have been for over a year now learning to recognize "nerve pain" and damage - and there are many very gentle methods for nurturing the nerve fibers and restoring blood flow and relaxing them. Will post again when I find something that directly correlates to improvement. Cheers to all those who found relief!!!! There is hope!

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Thank you for sharing. It seems an obscure disorder unless you have it!! You might look into a cranial sacral practitioner or failing that, perhaps an osteopath or someone who does myofascial work. (I was a massage therapist for a couple of decades in California and very much value informed hands-on work, plus I do not tolerate pharmaceutical without side effects that make the original condition worse!)
So far, I have not found a viable source of alternate treatments that are effective, but I am new to the disorder. It can be maddening. I will keep tabs here and post anything I find helpful and Hope others will too.

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Profile picture for rlr602024 @rlr602024

I have precisely these symptoms (severe itch, no rash) and definitely worse at night. Noticed first on my upper arms though - and was going through menopause so just assumed it was due to hot flashes. Twenty years later it is clearly along the brachioradial pathway and recent x-rays and treatments reveal a lot of issues going on at the C-4 to C-6 vertebrae. But I had not put this neck condition together with UV exposure. Now living in FL it makes absolute sense to me that this is the condition. Grateful to all the postings of things folks have tried. Ice gives immediate relief but is obviously not practical as a cure. I just had a hip replaced and noticed the itch disappeared- perhaps due to the medication but I suspect it had a lot to do with the level of relaxation my muscles finally received - and the hydration of fluids - and the lack of uv light I was exposed in the first 2 weeks of recovery. Now 12 weeks out it's back with a vengeance - and intense sun here in Florida. So I will be following up now to explore treatments and really appreciate any studies people can share to help inform my practitioners of this condition that clearly many people suffer in silence with. Oh - to get back those years of just enduring it! The "OMT" treatments are my first choice (gentle manipulation by a DO practitioner) as I have not found a chiropractor I trust here, and with osteoporosis now too I want to go the gentle route. I have been for over a year now learning to recognize "nerve pain" and damage - and there are many very gentle methods for nurturing the nerve fibers and restoring blood flow and relaxing them. Will post again when I find something that directly correlates to improvement. Cheers to all those who found relief!!!! There is hope!

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Tell me about your nurturing ways to help with nerve pain. There are a million scams out there! Thank you.

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Profile picture for Kay Rovik @anniemaggie

Well my primary (shes fairly new, moved here recently ) said it's simple as a pinched nerve in the neck. I went to many dermatologists for 30 years, all worthless. I have given up. Like everything in my medical history of now 12 diseases and syndromes and 4 rare diseases several I have had to self diagnose. After years of research found this on this website.

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So did you figure out a cure for this?

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Profile picture for wanttoscream @wanttoscream

The itch started about in 1997. The bouts were in in August only and lasted for about a week each year until about 2005. There were no bumps or anything visual on my forearm. From what I recall, it was only on one of my forearms at a time at first. I went to my doctor at the time who thought I was nuts. He biopsied me twice with no results. During the years I have seen many dermatologist who have just prescribed anti-itch cream's which do nothing. In the last 10 years the itch has lasted for months at a time showing bumps of all varieties as mentioned in the reports that I've seen about this disease from scaly to bleeding. In about 2012 or 13, I finally went to see a dermatologist at the Mayo Clinic in Jacksonville. He diagnosed my itch as most likely BRP. He prescribed a compund to apply 4 times a day in a wrap, a good moisturizer, and anti-itching cream. I did that diligently for a long time. I even had to get another order of the compound. None of that worked. Sorry to say. Then about two years later the itch went away completely for about two whole years maybe longer. I just couldn't believe it and I was so happy and I thought I was cured. I have no idea what I did to make this happen. The doctor at the mayo clinic said that the itch was most likely from sun exposure and nerve ending damage. of course I stopped going out in the sun and when I did I completely covered up which I am still doing. Last night I finally past out with a freezing cold ice pack on my forearm.
This bout of itching has lasted a year now. The first six months the itch was on my right forearm only. That went away completely. As it subsided on my right forearm, the itch started on my left and has continued there.

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@wanttoscream have you had any relief? I’m new to having this and also live in Jax.

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Yes! I have it it started with the rash on my arms it was so itchy it was like poison ivy and my skin doctor looked at it and couldn't figure it out it wasn't common rashes then he asked me if I had problems with my neck and I said yes my cervical neck is very bad my discs are wearing thin and the nerves are being pressed and he said that's what it was he told me to use capacian cream. And to stay out of the Sun. However my arms have been doing better even without the cream but my nape of my neck has been getting very itchy and it goes up into the back of my head the whole back of my head behind my ears and all around the back and it can happen sporadically especially from Heat and it's so itchy I don't know what to do I'm not putting cream on my scalp. He looked at it I don't have any scalp skin diseases. It's got to be the same thing and it drives me crazy

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And this is been going on for several years it's just this past year it's been more the back of the head and the neck I'm tempted to see a neurologist I'm not sure if that's what I need I know I don't want surgery on my neck I just want it to stop

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Profile picture for scarletmia2 @scarletmia2

Yes! I have it it started with the rash on my arms it was so itchy it was like poison ivy and my skin doctor looked at it and couldn't figure it out it wasn't common rashes then he asked me if I had problems with my neck and I said yes my cervical neck is very bad my discs are wearing thin and the nerves are being pressed and he said that's what it was he told me to use capacian cream. And to stay out of the Sun. However my arms have been doing better even without the cream but my nape of my neck has been getting very itchy and it goes up into the back of my head the whole back of my head behind my ears and all around the back and it can happen sporadically especially from Heat and it's so itchy I don't know what to do I'm not putting cream on my scalp. He looked at it I don't have any scalp skin diseases. It's got to be the same thing and it drives me crazy

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My wife has had BRP for a good 20 years. Nothing has helped. Her Dermatologist had suggested Capacian. Since that burns she adds Ebanol - which is a numbing creme. Since the BRP is on many parts of her body she does put both on her scalp. Only thing that helps.
We ahve been to too many Drs, Dermatologists, Allergist, Light rtreatments, -Acupuncture -- nothing has helped but the capacian. Not a cure only temporary relief.
Went to a Neurologists and he totally rejected the "disc" theory. Never heard of such a thing and wrote a nasty letter to the Dermatologist for even suggesting it.

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Profile picture for ilyne @ilyne

My wife has had BRP for a good 20 years. Nothing has helped. Her Dermatologist had suggested Capacian. Since that burns she adds Ebanol - which is a numbing creme. Since the BRP is on many parts of her body she does put both on her scalp. Only thing that helps.
We ahve been to too many Drs, Dermatologists, Allergist, Light rtreatments, -Acupuncture -- nothing has helped but the capacian. Not a cure only temporary relief.
Went to a Neurologists and he totally rejected the "disc" theory. Never heard of such a thing and wrote a nasty letter to the Dermatologist for even suggesting it.

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@ilyne
Wow. It does act up more at night too..and it can be worse on one side at times than the other.
I do believe putting iice pack can help however if it's convenient.
It's very annoying..can a strong antihistamine help? My doc gave me Atarax. I had that for hives years ago and it was the only thing that helped

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