Lichen Sclerosus: Any other women dealing with this disease?

I have had LS for over 10 years and currently in remission. Last flare up 1 1/2 years. Only med that worked Clobetasol.

I received the StrataMGT. It brought me so much relief. I ordered from Amazon. I saw my dermatologist today and she gave me a better report than usual. She has me using Opzelura daily, clobatezol 3x week and the StrataMGT. The LS is best it’s been in a long time. Now if I can find a soap for shower. I flare every shower.

My post seems to have gotten lost so I'll repost. I use estradiol cream 3 times a week 1/2 tube and I'm about to get progesterone to go with that. Also, Clobetesol oitmemt and pyridium as needed. I have real urological issues and this seems to keep them mostly at bay. It's tough though. A constant battle.

@gaggy I use Ivory bar soap. I can’t use any other soap - not even Ivory in other forms, e.g., liquid. Just the bar soap.

Have you tried Cottonelle toilet paper?
It helps me

Thanks il try that 👍

My Dr has me using dermovate ... opzelura might be best for me especially it's not a steriod cream thank you for replying I'm new to this site

@minnesota10 and @allthesingleladies12 I used Cottonelle years ago and found it clogged up the toilet. I use Charmin Extra Strong which does not disintegrate with the slightest wetness, and does not clog the toilet either. The only thing I don’t like about Charmin is that the sheets are so small - at least, that’s the case with the Charmin bought in Canada.

(@minnesota10 you and I should be paid for promoting both these brands, eh? 😉)

Hi sorry for my delay in responding.
I have been prescribed Estradiol Vaginal Cream USP , 0.01 and Clobetasol Propionate Cream.
I do not feel I have gone into a remission maybe a couple of days in the past year. Seems I am more uncomfortable, inflamed with friction irritation sometimes burning like UTI. ( I have had several UTI tests in last year all negative).
Only had the itching and white patches in the beginning when I diagnosed myself. My gyno and primary seemed to have no knowledge, my dermatologist a little more knowledgeable and my kidney MD said I was probably using too much cream and his PA had no idea what LS is.
Sorry for rambling but getting very discouraged.
I am 67 and have multiple autoimmune issues and my mom at 93 had LS a couple of flares only, cleared right up.
Any suggestions you may have would be good.

I am looking for specific brand name products to use in addition to the steriod cream? Lubricants, soaps and other helpful products.