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Just tired: Husband has colon cancer and I have MDS

Caregivers | Last Active: Jul 31 9:10pm | Replies (18)

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I have myelodysplastic syndrome ( MDS). I will be starting on Lenalidomide hopefully next week. Caught it early

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Replies to "I have myelodysplastic syndrome ( MDS). I will be starting on Lenalidomide hopefully next week. Caught..."

Good morning, @nrdl2879 I hope you’re having a pleasant day so far. I’m relieved that the oppressive heat seems to have moved on from my neck of the woods. But we are under heavy smoke from wild fires so there won’t be any outside activities today! Yikes.

It’s good to see that your doctor discovered the MDS early so that you can start treatment. Connect has several discussions with members who also have MDS. Just so you are aware, there are different types of MDS, some being a little more troublesome than others. So some of the conversations you read through may not be relevant to your condition. But it can be helpful to be able to talk with others who know what you’re going through.

A good place for you to start might be this discussion: Living with MDS with @momz and others… https://connect.mayoclinic.org/discussion/living-with-mds/

Since Revlimid is the brand name for Lenalidomide, which you’ll be starting soon. You might find this discussion helpful:
Is anyone here taking Revlimid:
https://connect.mayoclinic.org/discussion/is-anyone-here-talking-revlimid-for-chemo-if-so-please-share-with-me/
Feel free to drop into any discussion. We’re all here to support each other as you’ve found out in the Caregiver Group. ☺️
Were you having symptoms that led up to your discovery of MDS?