My wife's Neurologist recommended a Psychiatrist-Experiences?

Posted by gl66 @gl66, Jul 24 4:34am

My wife's Neurologist recommended a Psychiatrist. I am not sure it will be a help.
My wife has trouble communicating. Can't finish thoughts. Has trouble using the right words.I'm not sure she can communicate well enough to enable any great insights to be discovered.

Recently she had a meltdown during which she said she wanted to die and was going to jump off a bridge. I couldn't calm her down so I called the EMT's and they took her to the hospital. During her stay the hospital psychiatrist spent abut 5 minutes with her, diagnosed her with Alzeimer's (which neither her primary care doctor or Neurologist had determined - they just say dementia) and put her on 250 mg of Depakote 2x day in addition to the 25mg of Seroquel she was taking 2x a day. He recommended weaning off the Seroquel but her Neurologist said to keep her on both. She has been on both for about 2 weeks and all I see is her not being able to stay awake during the day and having more frequent sleeplessness at night.
Now the neurologist has referred her to a psychiatrist. Why I am not sure.
I worry that it will be for naught and maybe a new drug gets added.
I am frustrated by the inability of there being no cure for dementia and don't want to add another point of view unless there is a good reason to.

I am interested in hearing from those who went this direction and to see if you thought it produced positive results.

Interested in more discussions like this? Go to the Caregivers: Dementia Support Group.

First of all my heart is with all of you as we pull at straws to get through the days and nights with this disease of brain failure.

I’m surprised so many are using Seroquel. Definitely need a psychiatrist or pharmacist to help with management.
What dosage are you using?
What experiences with this drug?

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Profile picture for Helen, Volunteer Mentor @naturegirl5

@gl66 I agree with @grammato3 that a thorough evaluation will provide you with more information. A neuropsychologist (Ph.D. And licensed in psychology) does this type of testing. However, neuropsychologists are often fully booked and sometimes it is a long wait for an appointment.

In what region, state, or province do you live? There are specialized Memory Diagnostic Centers all over North America. Many times this Memory Diagnostic Centers are found within an academic medical center at a university. Here are some examples below.

Wisconsin Alzheimer Institute Affiliated Dementia Diagnostic Clinics:

https://wai.wisc.edu/clinic-network/

Mayo Clinic Affiliated Memory Care Clinic in Eau Claire, Wisconsin:

https://www.mayoclinichealthsystem.org/locations/eau-claire/services-and-treatments/psychiatry-and-psychology/memory-care-clinic

University of Michigan Cognitive Disorders Program:

https://www.uofmhealth.org/conditions-treatments/brain-neurological-conditions/dementia-and-alzheimers

The above are example of multidisciplinary clinics. Might you and your wife be interested in this kind of evaluation?

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Wow. This is a great resource post!

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Profile picture for gl66 @gl66

Sorry to hear about George but glad Seroquel is working for him. It has helped my wife also.
I am hopeful our visit to a psychiatrist today will give some help on med management.

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How did the visit go?

After overseeing the medical care of two family members with dementia, I would suggest the following:
Confirm the type or cause of dementia….such as Alz, vascular, etc. a neurologist should be able to do that with brain scans, office exam, etc,

Find a primary doctor who has experience with treating dementia patients. They can prescribe and monitor meds.

Be open to medications. Meds for Alz helped my dad a great deal. Both my family members responded to meds for depression, anxiety. Seroquel helped both.

One family member saw a neurologist then psychiatrist, but it wasn’t productive because my cousin could not answer questions, couldn’t remember what doctor said, didn’t understand her condition, etc. We still saw the psychiatrist for about a year, who monitored her meds. My other family member saw his primary doctor who had experience with treating patients with dementia.

Of course, everyone is different. See what works for your situation.

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Profile picture for celia16 @celia16

How did the visit go?

After overseeing the medical care of two family members with dementia, I would suggest the following:
Confirm the type or cause of dementia….such as Alz, vascular, etc. a neurologist should be able to do that with brain scans, office exam, etc,

Find a primary doctor who has experience with treating dementia patients. They can prescribe and monitor meds.

Be open to medications. Meds for Alz helped my dad a great deal. Both my family members responded to meds for depression, anxiety. Seroquel helped both.

One family member saw a neurologist then psychiatrist, but it wasn’t productive because my cousin could not answer questions, couldn’t remember what doctor said, didn’t understand her condition, etc. We still saw the psychiatrist for about a year, who monitored her meds. My other family member saw his primary doctor who had experience with treating patients with dementia.

Of course, everyone is different. See what works for your situation.

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I was pleased with our visit. For the first time I felt like the doctor listened and cared.She changed the distribution of my wife's medicines to hopefully allow for more thorough sleep at night and a lot less during the day. I am hopeful.
I am frustrated with the other two doctors but haven't found good replacements yet. Due to insurance and finances we're kind of stuck but I'll keep looking for better.

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Profile picture for gl66 @gl66

I was pleased with our visit. For the first time I felt like the doctor listened and cared.She changed the distribution of my wife's medicines to hopefully allow for more thorough sleep at night and a lot less during the day. I am hopeful.
I am frustrated with the other two doctors but haven't found good replacements yet. Due to insurance and finances we're kind of stuck but I'll keep looking for better.

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I hope you do find care that works well for your wife. I will add that dementia behavior and symptoms often changes, is not easily managed, is frustrating, etc., so my expectations were in line with that. I accepted that my loved ones with dementia might not always be content and happy. What I valued was a good relationship with their medical team, so I was able to communicate easily and get their support and attention.

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