1. < MAC & Bronchiectasis

Coughing At Night and Allergy Medications

Posted by picartist @picartist, Jul 24 8:24am

Coughing at night is my biggest issue with bronchiectasis as i wakes me up while in the most important part of my sleep cycle Rem and Deep. I will usually sit up and then huff some and clear out a small amount of mucus and can get back to sleep after a while. The amount is so small that I think maybe it is just sinus drainage. What do you use to keep sinus drainage at night down to a minimum? Do Saline Rinses help? Is Nasacort better than Flonase? When should it be taken before bedtime? I use Saline 3% about 7:30 pm nightly followed by the Acapella.

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Mentor
Sue, Volunteer Mentor | @sueinmn | 5 days ago
In reply to @crepass "I too(finally) was started by my pulmonologist on aztelin and flonase, along with protonix this summer(and..." + (show)
@crepass

I too(finally) was started by my pulmonologist on aztelin and flonase, along with protonix this summer(and more regular use of albuterol(along with all the normal nebs and ACT). I am starting to feel better for the first time in months.

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Yes, we think we can "get by" with fewer meds, and try to tough it out - we don't even realize how bad we are feeling until we get on a new regimen.
Do you have chronic asthma? If so, one of the new combo inhalers has become the first choice for opening airways in place of albuterol. They usually have a long-acting beta-agonist (LABA) instead of a SABA and control airway inflammation better. You might want to ask.

REPLY
crepass | @crepass | 4 days ago

Yes, that’s exactly what I was trying to do. I never had asthma, but my pfts at the beg of the year showed I did “better” with albuterol. no one ever said asthma, but this summer , I just started with increased sputum and coughing, so pulmonologist said to start taking albuterol “as prescribed “. The label said when “wheezing”. I defined it as “spasmatic coughing”. but have been using it every 4-6 hours with good results (less spasmatic.). She mentioned a long acting, so will do this for a couple of weeks and change up.
Definitely moved from a “person with a manageable chronic illness” to a “sick” person this summer. Hope to find my way back to the first thing again. I still have a few more tests to run in september to rule out stuff (CT and EgD).
thanks for listening.

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Mentor
Sue, Volunteer Mentor | @sueinmn | 4 days ago
In reply to @crepass "Yes, that’s exactly what I was trying to do. I never had asthma, but my pfts..." + (show)
@crepass

Yes, that’s exactly what I was trying to do. I never had asthma, but my pfts at the beg of the year showed I did “better” with albuterol. no one ever said asthma, but this summer , I just started with increased sputum and coughing, so pulmonologist said to start taking albuterol “as prescribed “. The label said when “wheezing”. I defined it as “spasmatic coughing”. but have been using it every 4-6 hours with good results (less spasmatic.). She mentioned a long acting, so will do this for a couple of weeks and change up.
Definitely moved from a “person with a manageable chronic illness” to a “sick” person this summer. Hope to find my way back to the first thing again. I still have a few more tests to run in september to rule out stuff (CT and EgD).
thanks for listening.

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I totally get "...Definitely moved from a “person with a manageable chronic illness” to a “sick” person this summer. Hope to find my way back to the first thing again..." I've walked that road a number of times over the past 20 years.
I was just chatting with some of the guys on the neuropathy group about balance and falling - it is becoming part of my "new normal" and I'm trying to learn to slow down before something really bad happens.
And when I realized I had to go back to daily saline nebs, and simultaneously my small nebulizer began to die, it coincided with a windfall. With my husband's urging, I "treated" myself to the pricy Pari eRapid nebulizer (which my insurance won't pay for) and am so far delighted with it. I just wrote about it here:
https://connect.mayoclinic.org/discussion/looking-for-a-decent-portable-nebulizer/?pg=4#comment-1358735

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