small red blotches on skin

Posted by kerrywp @kerrywp, Jul 24 11:15am

Hi,
Has anyone had small red blotches randomly appear on your legs or arms?
Flat, not raised and doesn't itch. I think it is a side effect from prednisone but my rheumatologists say they have not seen that. I finally decided it was benign and I have just ignored it. But thought I would ask all of you.
Thanks!!

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Hi, I get these markings sometimes myself. Usually, it is from where I have carried a grocery bag on that arm. Sometimes I just don't know why. They will last a couple weeks and slowly disappear. If I didn't see the spot, I would not have known it was even there. Life happens.

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Side effects from the
prednisone . They call it thin skinned.

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Profile picture for jcapra51 @jcapra51

Side effects from the
prednisone . They call it thin skinned.

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Occur when you are NOT on prednisone too. It is called aging thin skin or thrombocytopenia should be considered as well.

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Profile picture for Mike @dadcue

"I will be off Methylprednisolone in 6 days and will keep up the Actemra infusions. I have good levels but just get so exhausted. I can do something, but then drag around like a zombie for 3 days. No one can say if that's the Actemra or the PMR. I felt better a year ago!"
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Whenever I read about fatigue being described like this ... I immediately think it might be related to a low cortisol level. It seems to happen when people are at low doses of Prednisone while trying to taper off.

It has been shown that cortisol levels should increase with moderate amounts of exercise. The adrenals are suppressed by long term prednisone use. I wonder if adrenal suppression is responsible for excessive fatigue and slow recovery times after exercise??

I recall feeling the same way when my cortisol levels were low. After my adrenal function improved so that more cortisol was being produced ... I could exercise longer and recover faster after exercise.
https://www.rupahealth.com/post/exercise-cortisol-how-exercise-affects-your-stress-hormone
My exercise tolerance didn't improve as soon as I tapered off Prednisone. It did improve with time as I exercised more. Also, my adrenals were capable of producing more cortisol with time after I tapered off Prednisone.

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Thank you I will see if I can get them checked.

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Profile picture for jagjgg1950 @jagjgg1950

These groups help, because I think I would lose my mind talking to my Drs I wish they would look at these chat groups.

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Exactly!

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Profile picture for LinaXYL @linaxyl

Thank you I will see if I can get them checked.

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Not much can be done about the adrenal suppression and a low cortisol level. It is another side effect of long term Prednisone use. The recommendation is to slowly taper off Prednisone which just prolongs the time we need Prednisone.

People think a slow taper is to prevent flares. However, a slow taper is mostly done to give the adrenals time to recover from Prednisone use.

In the past, if PMR was still active we needed to stay on Prednisone regardless of adrenal suppression. With Actemra and other treatments which achieve remission quicker without adrenal suppression then it should make it easier to achieve a "steroid free sustained remission."

I currently do monthly infusions of Actemra for PMR. I got off Prednisone almost 5 years ago, Most of my side effects from being on prednisone for 12 years have improved tremendously.

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The red blotches are called purpura, in case you want to research. There are 3-4 different types, but skin-thinning prednisone is right in there. Combine that with older age and sun damage, and it can be worse. I am on prednisone taper starting at 60mg in February 2025, now down to 12.5, reducing 2.5 each month. Purpura are not painful, but they sure are ugly. My Rheum doc says it the prednisone, and will go away once off the prednisone. I use base makeup to cover my forearms when I go out. It doesn’t cover completely, but it does soften the look quite a bit. You can get special makeup that covers bruise and scars also. That’s about it. See pic: warning, it’s ugly!

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Profile picture for sjc123 @sjc123

The red blotches are called purpura, in case you want to research. There are 3-4 different types, but skin-thinning prednisone is right in there. Combine that with older age and sun damage, and it can be worse. I am on prednisone taper starting at 60mg in February 2025, now down to 12.5, reducing 2.5 each month. Purpura are not painful, but they sure are ugly. My Rheum doc says it the prednisone, and will go away once off the prednisone. I use base makeup to cover my forearms when I go out. It doesn’t cover completely, but it does soften the look quite a bit. You can get special makeup that covers bruise and scars also. That’s about it. See pic: warning, it’s ugly!

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Ditto

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Profile picture for sjc123 @sjc123

The red blotches are called purpura, in case you want to research. There are 3-4 different types, but skin-thinning prednisone is right in there. Combine that with older age and sun damage, and it can be worse. I am on prednisone taper starting at 60mg in February 2025, now down to 12.5, reducing 2.5 each month. Purpura are not painful, but they sure are ugly. My Rheum doc says it the prednisone, and will go away once off the prednisone. I use base makeup to cover my forearms when I go out. It doesn’t cover completely, but it does soften the look quite a bit. You can get special makeup that covers bruise and scars also. That’s about it. See pic: warning, it’s ugly!

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Yup! That's it!!
Mine did go away -after I was off prednisone for awhile.
But now that I am back on prednisone due to a flare - they are back; not with a vengeance - but the occasional small blotch.

Good luck w your taper!!! 🍀

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Yes. My son says my arms look like I’m a plague victim. I’ve been on steroids (medrol for me.) and eliquis for about two years.those awful blood spots started about six months ago. Slight brush against something and bam! Crepey skin. Look at your arms you’ll see the crepe paper like pattern. At least I do. For me a cross between crappy and creepy. I’m using CeraVe Daily Moisturizing Lotion for Dry Skin, Body Lotion & Face Moisturizer with Hyaluronic Acid and Ceramides, and arm sleeves to protect the arms. I’m also drinking a smoothie concoction with collagen powder and protein. They are looking better and the blood spots reabsorbing more quickly. Do not drain the spots if they look more like blood blisters. Cover and protect.

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