Low dose naltrexone for Post-Covid Recovery experiences?

That’s good news, Beachbum, about LDN helping with your “head sensation.” (I also have a head sensation - maybe heaviness? thickness? un-clearness.) Maybe your head sensation is what others call brain fog. No one here has described what brain fog is. (All of us could help each other a lot by writing more carefully and thoroughly. Goodness knows we have the time, and this subject is very important to us.) So, I have QUESTIONS: (1.) Did Dr. Bream explain why LDN, in particular, would help with your head sensation? Was he just guessing? Had he similarly treated others with head sensation? If head sensation (HS) is the same as brain fog, and brain fog is one of the three worst symptoms of LC, a lot more docs should be prescribing it. Right? And maybe Dr. Patterson should be adding LDN to his standard treatment! QUESTION 2.
Do you have any idea why LDN with Cymbalta didn’t work for you in 2023, but now it IS working for you? Maybe you had a different set of symptoms back in 2023? Or maybe the combination of LDN and Cymbalta wasn’t good, and LDN ALONE would have worked. So, did you have different symptoms in 2023? I had chest pain and SOB in my first bout with LC, but not now during my second bout. Now it’s fatigue, neuropathy, poor balance, a swaying feeling, weak legs, and recently a rash. IMPORTANT - I’m taking VALACYCLIR for the rash, and suddenly, after two days, my fatigue has disappeared, my brain is clear, my legs feel a little stronger, and I’m not as dizzy. Hallelulia! I’m crossing my fingers. Another writer here said she had a cold sore, took the same med (Valtrex) and here LC symptoms disappeared after two weeks. She went on a lower dose to keep the symptoms from returning, and it worked. So there’s hope, folks. Spread the good word. Best wishes, Beachbum. By the way, how’s the water?

One has to get LDN through a compounding pharmacy so how do people get theirs?

My primary care doctor contacted a local compounding pharmacy. She was able to order 90 1mg tablets for $67.50 (my insurance will cover 1.5mg or 4.5mg but not smaller doses).

I started a few days ago on 1/2 tablets (0.5mg). I'm supposed to stay at that dose for 1-2 weeks and then gradually increase. By the time I need a refill, I should be at the 1.5mg dose at least, and my insurance will cover that. For $67.50 it seemed worth it.

@stuartkjones4 I had tried LDN after my Mayo Rochester visit in September 2023 along with Cymbalta to no affect. As for Dr. Patterson's team, Dr. Bream is using it in an attempt to solve one of my symptoms which I find incredibly hard to describe that I refer to as a 'head sensation' that just wrecks me mentally and physically for hours of the day. Its occurrence is highly variable, sometimes hitting me right out of bed, sometimes later in the morning, again lasting for hours. The only thing that stops it is a Power Nap or alcohol. Thus, naltrexone, starting at 1.5, now at 4.5. Dr. Bream said that in the cases where naltrexone helps, for many people that. occurs at 2.5. It is far too early to tell, but after my second dose at 4.5 my head sensation occurrence is zero. But, I am also tapering off Maraviroc at the same time so its possible it's the result of one or the other or both. A bit of a mystery to us all unfortunately.

One of my worse symptoms is a strange head sensation also. I call it zombie brain because it’s not brain fog in the traditional sense. It’s pressure, fogginess, like I’m walking around in a cloud, dissociation. Is this description at all similar to your head sensation? I’ve been diagnosed with LC, but I don’t see this particular symptom being mentioned at all so I’ve always felt like an outlier in terms of the standard symptoms like CFS, PEM and POTS, which I have none of them. I’ve been told by some doctors that it’s some kind of silent migraine but none of the migraine meds helped. Just wondering.

One of my worse symptoms is a strange head sensation also. I call it zombie brain because it’s not brain fog in the traditional sense. It’s pressure, fogginess, like I’m walking around in a cloud, dissociation. Is this description at all similar to your head sensation? I’ve been diagnosed with LC, but I don’t see this particular symptom being mentioned at all so I’ve always felt like an outlier in terms of the standard symptoms like CFS, PEM and POTS, which I have none of them. I’ve been told by some doctors that it’s some kind of silent migraine but none of the migraine meds helped. Just wondering.

My primary care doctor contacted a local compounding pharmacy. She was able to order 90 1mg tablets for $67.50 (my insurance will cover 1.5mg or 4.5mg but not smaller doses).

I started a few days ago on 1/2 tablets (0.5mg). I'm supposed to stay at that dose for 1-2 weeks and then gradually increase. By the time I need a refill, I should be at the 1.5mg dose at least, and my insurance will cover that. For $67.50 it seemed worth it.