Dealing with a Spouse with a “Mild Cognitive Impairment”

Posted by tryingtimes10 @tryingtimes10, Dec 31, 2024

My husband was diagnosed with MCI in 2019. He is pretty independent, just forgetful of time, dates, location of places, anything electronic & events from our life together (we’ve been married 52 years). It’s all just getting to me. I find myself wanting to be alone so I’m not continuously reminded of these changes. Because my friends/family are out of state, working, or involved with their own families, I really have no one to talk to so I’m seeing a therapist twice a week to deal with the sadness, anger, grief I have over his condition. I just wonder if other women find themselves in this position & how they are dealing with it.

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@dillknox

When my husband's driving became a legitimate concern, I told him it was time to stop and cited two incidents that scared me as a passenger, wife, and potential co-defendant in an accident case. Whether your husband causes an accident or is involved in one caused by another driver, the fact remains that he has a dementia diagnosis of record, and you (wife) were aware of that fact as he continued to drive. The liability you share with him is real. Likely you have not advised your insurance company that one of the insured drivers on your policy has dementia or they may have required a certified driving assessment by a mental health professional or canceled his coverage. Unless your financial situation allows for self- insurance, and you are not concerned about causing property damage, serious bodily injury or death, or sharing in civil or criminal penalties arising from fault in a driving event, by all means continue to LET him drive. You can also advise him that due to your concerns for his safety, and the impact a serious accident may have on your financial security you will shift these worries to his PCP or physician managing his dementia. In this case liability would involve his doctor(s) and expose their medical licenses to jeopardy. No doctor will want to accept that type of liability. Physicians can initiate the process in your state of removing driving privileges. Sorry to be so blunt, but this is a very serious issue for you, your husband, and those on the road with him. With dementia no one ever knows when the "first time" for something will occur even when in the driver's seat with an excellent previous driving record.

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I told my husband last night that it was time to stop driving and gave the reasons you mentioned. Amazingly, he took it rather well. Perhaps it's beginning to sink in just how much help he needs and he's being very grateful and affectionate. My brother-in-law has offered to get him a Lyft app and cover the cost. Very kind. Thank you for the good advice. My kids are relieved.

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So well said-
A friend of ours, who is a Opthamologist had a patient whose daughter wanted him to tell her Dad he should not drive anymore. He told this story - when my husband complained that I took his license away.
One day a guy with cognitive impairment drove to meet his buddies for breakfast as he always did in the early morning. It was a familiar place near his home. On the way he hit something, but then kept driving. While at the coffee shop the police came in to question him about him hitting something. The man said, “ They were just two garbage cans.” The policeman said- “ No, those were two kids.”
I had my husband retested after a slight ding and altercation in a pizza place parking lot.
I prayed he would not pass.
We sold his car and I am the only driver in the family now but I have peace of mind.

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@pamela78

I told my husband last night that it was time to stop driving and gave the reasons you mentioned. Amazingly, he took it rather well. Perhaps it's beginning to sink in just how much help he needs and he's being very grateful and affectionate. My brother-in-law has offered to get him a Lyft app and cover the cost. Very kind. Thank you for the good advice. My kids are relieved.

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What a great brother in law!

Kids need to give this to their aging parents for their birthday or Christmas!!

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@pamela78

Thanks. Since I've been having to take over dealing with things like the car, I find myself getting grouchy and sounding sharp. I hate the sound of my own voice. I know you're right. I should just lay it out, but, gosh, this is difficult. He seems okay in many ways so I'm not sure just how impaired he is.

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It was so awful telling my husband he couldn't drive anymore. He didn't react when he nearly killed us and the other driver. It turned into a screaming/crying argument, one-sided since he shows little emotion anymore. He didn't want to give up the car keys, or his driving privilege, but I told him his brain was not giving him correct information anymore, which puts us and others in danger. I did manage to get him to voluntarily give up his driver's license at the DMV.
It was all just traumatizing for me.
Hope it goes better for you!

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@dilly22

May I ask where your CCRC is? It sounds wonderful!

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It sounds like this might be the CCRC connected with Arizona State University in Tempe. We just moved to a wonderful CCRC in Tucson, but it's not affiliated with the University of Arizona here. I wish it were, as the intergenerational connections as well as the University classes sound great.

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@judimahoney

It was so awful telling my husband he couldn't drive anymore. He didn't react when he nearly killed us and the other driver. It turned into a screaming/crying argument, one-sided since he shows little emotion anymore. He didn't want to give up the car keys, or his driving privilege, but I told him his brain was not giving him correct information anymore, which puts us and others in danger. I did manage to get him to voluntarily give up his driver's license at the DMV.
It was all just traumatizing for me.
Hope it goes better for you!

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We have always driven our own vehicles and plan to give his car to our son. Although accepting that his medical condition and driving put us both at financial risk, he forgets that he agreed not to drive. He has been a safe driver but others on the road aren't.

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@pamela78

Thanks. Since I've been having to take over dealing with things like the car, I find myself getting grouchy and sounding sharp. I hate the sound of my own voice. I know you're right. I should just lay it out, but, gosh, this is difficult. He seems okay in many ways so I'm not sure just how impaired he is.

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You have to protect yourself too. There may be great financial risk to both of you after a diagnosis.

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@pamela78

I have a dilemma and would appreciate some input. Yesterday my husband's old Mazda died and I spent much of the day dealing with having it towed, picking him up from where it expired, and finding a place to take it. Today I'll arrange to donate it to the Make-A-Wish Foundation. My husband has Alzheimer's that was diagnosed at least two years ago and had been evident for several years before that. Two doctors have recommended he stop driving, but he only drives to one or two places that he's very familiar with. One is a coffee shop where he's able to socialize and get out of the house for a few hours. I know he shouldn't drive anywhere else, but I think that for now he's okay. But, now that his car is gone it would be a good time for him to stop driving. My own car, a Toyota Camry that will live forever, is 21 years old and, though it runs okay, it's a mess. I've wanted a new car for a long time and am worried that mine will break down or need expensive repairs. Now would be a good time to get a new car and downsize to just having one. The trouble is, my husband wants a new car for himself. When I mentioned getting one for me and getting rid of my old decrepit vehicle (we are not a car-loving family particularly), he objected. I want him to stop driving but we've reached an impasse. I can't tell my husband to stop driving. I can't tell him to cut his long hair and beard, let alone stop driving. I know what I should do: get a doctor to do it, but I need some encouragement. What to do?

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Hi, my mother had alzheimer’s too but she wouldn’t stop driving and i didn’t want her to kill anyone. We found out DMV has an anonymous turn in a person online. They watched for her to drive then pulled her over and said she needs to go to DMV to clear it up. We took her there and they asked to meet with us in a room and they did a cognitive test to see if she was able to drive. They told us not to help her with the answers and she flunked. needless to say they took the rap for not letting her drive instead of us taking the bad rap. It was a wonderful thing and very nice of them to provide. Hope my experience helps. Dellie

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@dellie4u

Hi, my mother had alzheimer’s too but she wouldn’t stop driving and i didn’t want her to kill anyone. We found out DMV has an anonymous turn in a person online. They watched for her to drive then pulled her over and said she needs to go to DMV to clear it up. We took her there and they asked to meet with us in a room and they did a cognitive test to see if she was able to drive. They told us not to help her with the answers and she flunked. needless to say they took the rap for not letting her drive instead of us taking the bad rap. It was a wonderful thing and very nice of them to provide. Hope my experience helps. Dellie

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Thank you for this suggestion. It's a good one. I managed to talk to my husband last night, told him he could no longer drive, and he took it surprisingly well. I feel so fortunate that my husband isn't prone to anger or insults. He's really quite affable, considering. We had an awful time getting my dad to stop driving. In the end, his license was taken away by the court after complaints were lodged against him. He loved driving almost more than anything and parked his beloved car in the parking lot across from the assisted living facility where he was living so he could look at it out the window.

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@dilly22

May I ask where your CCRC is? It sounds wonderful!

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Mirabella at ASU in Tempe, AZ.
https://www.mirabellaasu.org/

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