Connect
Treatment for chronic Epstein-Barr virus (EBV)
My son has been suffering with Epstein-Barr virus (EBV) for over a year. I have taken him to an immunologist and infectious disease doctor with no answers. He is always tired and never feels well. He has relapsed with Mono twice in the last 10 months.
Like
Helpful
HugInterested in more discussions like this? Go to the Infectious Diseases Support Group.
Connect
More than one person spoke about a video. How do I access it? I too have had Chronic Epstein Barr Virus for at least six months and have been trying to get more help with this. The Mayo Clinic rejected my application. I do have one doctor who recognizes the illness but doesn't have much experience with it. I am always searching out additional doctors but the only treatment plan I have is to get lots of rest and to take some supplements. I have modified my diet some but I have always had a mostly plant diet and lived a healthy lifestyle.. Besides the video if there are any other suggestions, please reply. Thank You.
-
Like -
Helpful -
Hug
1 ReactionJamaica, I too would like to learn more about the 3rd and 4th stage of EBV. There is so the medical field knows so little or isn't sharing it. Please reply if you have learned more. Thank you.
@michellebelle,
I believe you are talking about the video John Bishop shared about a TED talk about Chronic Fatigue Syndrome:
What happens when you have a disease doctors can’t diagnose TED talk by TED Fellow Jennifer Brea who became progressively ill with myalgic encephalomyelitis, commonly known as chronic fatigue syndrome:
http://bit.ly/2nvf21H-
Like -
Helpful -
Hug
2 ReactionsJonnybear619 are you still feeling bad? My 25 year old son has been dealing with this for 11 months not told he has adrenal fatigue and his EBV numbers are still high. Was I'll with the flu in December which was especially scary because his immune is so compromised. My son works full time then sleeps. He's getting depressed now because every dr we have seen just says this will go away but all admit 11 months is way to long to be expecting this.
-
Like -
Helpful -
Hug
1 ReactionMichellebelle, my 25 year old son has been sick with brain fog, blurry vision and extreme fatigue. He has adjusted his diet about 2 months ago and started some supplements. Dry just say he will get better on his own. We are now looking into holistic Drs. All costs a lot of money out of pocket and no proof this will even help. My son is living half a life and the drs have no answers. Very scary stuff.
-
Like -
Helpful -
Hug
1 ReactionI have been ill for six months, however I believe that I have had the EB virus all my adult life. I am now in my 60s. I manage everyday but have not regained my energy level. I'm constantly seeking more help but have not found or been set up with a treatment plan. Today I get the results back from a nutrition panel that was done last month. I've been to many doctors but haven't found an expert in the field. I too am hoping for an improvement. I went from being a very energetic person and having periods of fatigue/illness to now being fatigued all the time. I keep praying that by me seeking out alternative solutions that I'll find something to help boost my levels of fatigue. All my life I've lived a health life style so that isn't a great deal I can change. Most of the diet suggestions was how I lived my life. I have added additional supplements and essential oils but I haven't noticed any changes. I live with morning head acks, brain fog, blurry vision, fatigue and sleep most nights ten or eleven hours. I don't nap during the day because I'm not sleepy but I am extremely tired and want to crawl back in bed all afternoon. Sorry I can't be of any help to your son but I will keep perusing my issues and share any solutions I come across them.
-
Like -
Helpful -
Hug
1 ReactionThank you for your response. Those are the same symptoms my son has been having for the past 11 months. Since you are in your sixties, have you looked into hormone therapy. I'm 52 and for the past year I have been doing pellet therapy to help with energy and wow it is really helping me. The estrogen and testosterone are put in a pellet and I get it implanted every 3 months. The progesterone is given in pill form at night. My problems I was having were from menopause but this could be something for you to help with energy. My testosterone was undetectable when I started the therapy. Literally turned back the hands of time for me. I know this is off topic but worth looking into.
Thank you for your reply back. Yes and Yes. I too went to a Wellness Doctor who has shot me up with hormone pellets and I take progesterone. I do see some positive results from this therapy however it has not helped me with my fatigue. I just came back from an appointment with this doctor and I now have an additional supply of micro-nutrients that I am going to start today. Like the hormone therapy these supplements are to build up my immune system. I have been talking numerous supplements but I now just added five more. These supplements were recommended based on nutritional blood work that was done. I'll keep you posted if this helps my situation. The doctor I saw said there wasn't anything else to do except to build up my immune system and rest.
Has anyone heard of vitamin C IV treatment and hyperbaric oxygen therapy?
My son has an appointment with a neurologist next month. If we continue to not find any answers to help him, our next appointment is with a holistic dr. We are planning to try IV vit C which I've heard can help. He has done a few infrared sauna treatments which he finds comforting, not sure if it's helping. Another thing we are going to explore is ozone therapy, which sounds scary but we are going to look into it. I will keep everyone posted if he finds anything that gives him any relief.