Treatment for chronic epstein barr

Posted by cummings3 @cummings3, Jan 23, 2017

My son has been suffering with this for over a year. I have taken him to an immunologist and infectious disease doctor with no answers. He is always tired and never feels well. He has relapsed with Mono twice in the last 10 months.

I have tried 2 UV and Ozone treatments like what you describe. I hope to start up more sessions when I am done with some travel. I will report back as well as to if they help!

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What are Ozone treatments?

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@michellebelle

What are Ozone treatments?

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Hi @michellebelle — here is some information I found about ozone treatments that may provide a better understanding.

Newsmax.com article in their NewsMax-Health: Ozone Therapy: Hope for Chronic Illnesses
https://www.newsmax.com/health/health-news/ozone-therapy-treatment-cancer/2015/03/20/id/631395/

I also found a video that may be more relevant.
Epstein Barr Virus Disease (EBV) KO'd by Oxidation Therapy – YouTube
https://www.youtube.com/watch?v=eULdPNUuTbE

John

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@shellr13

i am in the same boat with my son but now he is 21! We are going back today to get him tested for the 5th time in 3 years. Always tests positive. He does heavy lifting at work and now his spleen is hurting. If someone can help us It sure would mean the world to me. He is too young to stay so run down.

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Does anyone is this group have titanium implants in their body. My son 25 year old son became ill with what drs are saying is chronic EBV his numbers stay elevated. Saw a recent post on another sight about high EBV numbers and people with titanium implants. My son had double jaw surgery 2 years ago and has screws and plates in his jaw. His surgeon said no his constant fatigue, brain fog and blurry vision are not from his surgery but I have a inking feeling it is related. His immune is under attack.

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@michellebelle

What are Ozone treatments?

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My son started ozone treatments 2 weeks ago, hasn’t felt any difference. His holistic Dr is suggesting 10 treatments, one a week. Very expensive and experimental but several drs I spoke to said it’s safe as long as proformed by Dr that has experience doing it. It is an IV therapy with ozone and light supposedlcleaning and oxygenating blood. I will keep posted if we notice any help. I stated in an earlier post does anyone have titanium dental or jaw implants?

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Thanks for posting about the Ozone treatments. I will look further into the treatments.

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They hook you up to an IV. They fill a tube full of your blood and run it through the Ultra violent light and Ozone oxygenation and flow it back in. They do this about 3 times each treatment. Very safe and only takes about 20 minutes. Not sure yet if it will work!!

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@shellr13

i am in the same boat with my son but now he is 21! We are going back today to get him tested for the 5th time in 3 years. Always tests positive. He does heavy lifting at work and now his spleen is hurting. If someone can help us It sure would mean the world to me. He is too young to stay so run down.

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For what it is worth, I had spine surgery March 2017. Titanium rods. In December, I wake up with can only be described as a full blown rheumatoid arthritis flare. Excruciating pain in every bone and joint, except my neck and back. Blood test show negative for rheumatoid arthritis, but positive for Epstein Barr. I'm 61. I've been a Nurse for 40 years. I find it very, very strange that I have not been exposed to mono in forty years of nursing. I have my last appointment with the neurosurgeon March 27. I'll ask him about the immune system and this surgery I had, causing mono.

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@jonnybear619

How has your son progressed? I am 30 and have been sick for 10 weeks. I had mono at 13yrs old ebv. Have always been tired alot but now i struggle to do basic day to day things like go to work and stay sharp. Each time I do anything physical next day i have phlem sore throat congestion and feel horrible. I use to lift weights box played college football. I’m scared for my future will this ever be gone? What do i do besides rest? I pray no one has to go through this. I sleep 9 10 11 hours and still exhausted my job and happiness are in jeopardy. I just want be back to normal. I am sinking lower every day and compared to stories i see of years of this struggle i dont think i could do that. I am not able to live life right now and it selfishly breaks my heart. Please help me.

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@jonnybear619 I just came across this posting and you're situation sounds eerily similar to mine. I've never (that I'm aware of) had mono but have had an EBV infection (based on labs in 1999). I also have had low IgM immunoglobulin levels since 1998. Last year I found out I also have low IgG subclass 1 too. In addition to the general fatigue symptoms and struggle to do day to day activities, including work and brain function I too have been very active most of my life but decades ago i starred to notice I would feel like I was catching a cold after running. Now when I run or do anything physical (hiking, mt biking, running, cleaning my condo, walking around shooting photos for hours, etc) my sputum will turn yellow or brown in the day after doing such activities. I was wondering if you also have low immunoglobulin levels? Also if anyone else on this thread has low immunoglobulins levels please comment. My doctor has been testing my sputum when I start to get signs of a respiratory tract infection and just in last year and half I've had 6 positive bacteria infections – 4 or 5 different types of bacteria. For many years now (over a decade) I've felt like I can even tell the difference when I get over one infection and when the next one starts since any physical activity will start symptoms again. My doctors (and I've been to probably 50 + specialists on my life since these symptoms first started in 1998) can't seem to figure out what to do and really what is causing this. They think the low immunoglobulin levels are a factor but they offer no answers to making me feel better and stop the infections. I have recently ran across research by Dr Nieman at App State University that shows exercise can suppress the immune system and I asked him if he has done any studies on individuals with immunodeficiencies or EBV infections but he hasn't. He said that such research might be valuable. If possible would you be willing to have a conversation off this feed as there's so many more specifics that I think we should discuss to potentially help us get answers.
Thanks!
Roger

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@cummings3

My son is 17yrs. old and a senior in high school. He got the Epstein Barr virus 14 months ago, which caused Mono with another relapse with it a month later. His doctor made him homebound from school for 4 months, due to the severity of this. He has been to see an immunologist and infectious disease doctor, but no help in solving this puzzle. Since diagnosed with Chronic Epstein Barr, he’s been constantly fatigued, just doesn’t feel great half of the time, and is constantly contracting other infections and viruses.

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@cummings3 has your son's immunoglobulin levels been checked by an immunologist? Have these tested for bacteria when he gets infections? Please see my reply to @jonnybear619 below about my case.

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@shellr13

i am in the same boat with my son but now he is 21! We are going back today to get him tested for the 5th time in 3 years. Always tests positive. He does heavy lifting at work and now his spleen is hurting. If someone can help us It sure would mean the world to me. He is too young to stay so run down.

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I'm afraid the your body maybe reacting to the titanium and your getting a false positive of EBV. My son took a different type of EBV test and it came back negative for EBV. There are plenty of people complaining of chronic fatigue and brain fog that have titanium in their body. Scary stuff. Could be causing the immune system to react.

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@shellr13

i am in the same boat with my son but now he is 21! We are going back today to get him tested for the 5th time in 3 years. Always tests positive. He does heavy lifting at work and now his spleen is hurting. If someone can help us It sure would mean the world to me. He is too young to stay so run down.

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Do you suffer from fatigue, brain fog? My sons vision is blurry. Some people have rashes and pain. Just very strange? My son became ill also about 11 months after jaw surgery.

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