Chronic Pain members - Welcome, please introduce yourself

Karen, Bless you sweet lady. I have not had a TBI, but, have had migraines since I was in
the 3rd grade. I do not have them daily (bless you), but, can have them 15 days in a row.

My Neurologist recently and recommended alternating Maxalt and Ubrelvy for migraines. Stay tuned.... Allergies, Sinus infections & Asthma tend to be triggers for me, lack of sleep, barometric pressure changes & certain foods that I have to stay away from. Sugar, Sodium & Caffeine tend to be culprits as well.

This humid summer has added to the list. Staying hydrated is very important for migraine sufferers as is taking Magnesium Glycinate as us migrainers tend to be low in Magnesium.
I also take B2 for migraines.

I cannot take NSAIDS, so that limits what I can take for pain for one along with the Triptan.

Honestly, Prednisone works the best for me, but, not a drug I want to have to stay on due to
the longterm side effects
.
I hardly have a migraine when I am on a Prednisone taper for upper respiratory infections.
Migraines are caused by inflammation, so that would make sense as to why the Prednisone
helps so much. I also have in the past taken a 4 day Low Prednisone Taper to break the migraine cycle when I have had one for several days in a row.

Have you ever tried the Magnesium Infusion or Migraine Cocktail? Also, my doctor
recommended that I come in for a Torodol Injection. I have never done any of the above,
but have heard they help a lot of folks.

I do find that soaks in Epsom salt in the tub, voltaren gel on my back, neck and shoulders (I have a lot of arthritis) and the Bedbuddy heat pack helps a lot.

I get a massage and it helps after I've had a migraine. I could not tolerate one while having a
migraine.

Praying for you to get some relief. I empathize and I care. I'm so sorry you have so
much pain. Blessings....

Hi Karen ! My name is Amie and I also suffered a TBI about 20 years ago. It's great that you are working with pain management. It's really important to let them know what works and what doesn't so they can adjust the meds. My Dr started me on Norco, Cyclobenezine and then added Oxy to the mix. I started seeing a neurologist who has helped me immensely. After the TBI I started getting killer migraines and she put me on a shot once a month for them plus Ubrevly which ended up being a godsend to me.
I hope are able to find some relief. Take care !
Amie

Hi Amie, thanks for reaching out to me. I’m so glad Urbrevly is helping you. I hoped it would help me, but my neurologist tried every med under the sun to help mine and nothing touched them. I am so blessed to find a pain specialist that finally has helped a little. I hope you will continue to feel better. Take care! Karen

Hi covidstinks2023, I have the exact same triggers as you and think this weather is making my migraines worse this summer. I have tried everything you mentioned with no relief, except the epson salts and the gel, and I will give it a try, thank you. I have terrible knots in my back and hoping it helps. I can’t take NSAIDS or Triptons either. I’ve tried the prednisone tapering, but it doesn’t really help and I get very depressed when on it. If I were you and in a cycle like that I would try what your doctor recommended. I see a pain management doctor now, as well as my neurologist and he prescribed Suboxone for me and it has helped a little. I also take magnesium glycinate.

I can’t imagine having migraines beginning at age three that must’ve been so horrible for you. I’m so sorry you had to experience that as a child and still do until this day.

Thank you for sharing your story and for your support.

I empathize and care and will be praying for you, also. Many blessings..🙏

Hi. I’ve had chronic pain since 2005. I received chemo for NHL then a clinical trial chemo, and within one month of completing all the chemo, began to have excruciating pain. The initial dx was fibromyalgia, chronic fatigue syndrome and chronic myofascial pain. Years later, three EMG’s confirmed a diagnosis of CIPN. I was awarded SSDI after the pain started in 2005.. I had worked as an RN for 30 years and couldn’t return to work. What surprises me is the progression of symptoms. Foot drop, loss of fine motor skills, pain in my legs and arms, burning sensations, muscle weakness in my arms and legs, and several other things.
I appreciate being able to join this group and would welcome any suggestions that may have helped any of you deal with these type things. Thanks!

My name is Jacqueline it's been 9 years of chronic pain from a shingles outbreak that damaged my nerves. Nobody understands your life but others who are experiences pain daily. I'm exhausted. Overwhelmed.

I texted about my chronic back pain but I also have occipital neuralgia that travels from my neck over my ear and into my right eye. It has been compared to migraines. That eye also had a hole in the macula, then surgery , then it formed a cathartic so more surgery so now a wrinkle so this very difficult to read much. I also am on oxygen 24/7 and have been for years. I have COPD which is a progressive disease and it is progressing. I can start to feel depressed just texting that. I try not to dwell on on my health problems but they are hard to ignore when you feel bad so much of the time.

I'm John and I have pain from 2 MS like illnesses. All the best to you and every one of us.

Hi John, I am sorry you suffer. If you have most of time people do not realize how exhausting and tired you get. Physically and mentally. People love stories about people who suffer in silence and are saints with their pain! I want scream and tell people to give me a break but I don’t.