My Parkinson's life is so confusing - this is not easy.

Hi. I was diagnosed 2 months ago also. It was hard to take! I’m
On carbidopa/levadopa. Have not seen much improvement. My gardening is my passion too. I’m 83 years young! I have movement issues just like you do! Are you taking medicine?

Hello @dodeebug

I can understand what you mean when you say, " I'm sure thinking back, I have had PD for sometime." Many of us with a PD diagnosis can say the same thing.

Regarding the urinary problems, pelvic floor therapy (https://connect.mayoclinic.org/blog/take-charge-healthy-aging/newsfeed-post/control-of-frequent-urges-with-bladder-training/) might be helpful. You may consider asking your doctor for a referral for this type of therapy.

Also, many hospital systems now offer PTNS procedures for urinary problems, (https://www.mayoclinic.org/tests-procedures/neurogenic-bladder-bowel-management/about/pac-20394763)

Both of these are good tools for dealing with urinary urgency and frequency.

I understand the less sharp mentally. I process things slower and when I try to talk about things I’ve read or heard I can’t seem to put it into smooth conversational speech. Thankfully I have an odd sense of humor so I am learning to laugh at myself and not take it too seriously but sometimes it still frustrates me.

Oh you have that right. Before they told me I had PD I blamed ot on old age.
I'm 88. Now I let .my friends know so they can help me fill in the blanks. Or I'll just say "you know".
This isn't for sissy. I cry every once in .awhile then I stop and see a sick child on TV with cancer. I tell my self I hav had a wonderful
Life. My hubby is always saying he loves me and showers me with kisses
Out of 3 husband's I finally found number1. I have to stop now as I keep falling asleep and I find this happens frequently now.
Hope to hear from you.
Regards Dodeebug

That is what I hVe been doing laughing at myself
Or I say you know what I mean or what's the word I'm looking for. My hubby says no don't no the word
It is hard but I tell him the word is hanging in the air right in front of me but my brain won't let me say it.
Very frustrating

Thanks every little bit of information helps

Hi @dodeebug,

I love that phrase, "...the word is hanging in the air right in front of me but my brain won't let me say it." Great description of how frustrating it can be!

There is one thing that I learned in speech therapy is the value of reading out loud for a few minutes each day. While it doesn't necessarily fix all of the speech problems you might have, it makes a positive difference overall.

Will you give it a try and let me know what you think?

This is very confusing and I hate that that I have to track everything such as food, when I go to sleep, how much water I drink, whatkind of mood I’m in etc. And 90% of the time you still can’t figure out what is causing the side effects. just when you think you’re starting to feel normal Something else comes up. And it’s generally another side effect I have good days and bad, but unfortunately, I have more bad than good. I have not slept a full night since I got this. Surprisingly though I’m not .I have had to cancel plans at the last minute because of the way I feel. I hate the panic attacks that I get. And I really hate the restless leg, but I have to say is what I hate most is what it appears to be doingto my kids. I’m a single mom and raised my kids alone and was very independent now I have to depend on others. And I can see the worry on my kids faces. The really sad thing is I’m stuck with it. There’s no cure so I’m trying to make the best of it. It’s probably one of the worst things I’ve had to deal with in my life. and I really hate when they say the medication helps you manage the quality of life. I’m sorry I don’t see any quality in
This way of life. Today has seemed to be one of the better days, but that’s always something to change when I take my next dose but day by day I pray it gets better

Hi I'm just another PD gal. The pills I take 3 times per day seem to help with the tremors . I have no special diet but try to eat more fruits and veggies. We like raw ones better than cooked. Your kids may have fun making a tray of carrots, celery stuffed with peanutbutter, little tomatoes, radishes, broccoli, cauliflower. And a little dressing for dip
Sleeping is another thing as I am with you there. I try to read myself to sleep I am going tell my Dr on next visit
.i try to exercise and maybe you could get the kids to do it with you. Since you are a single mom, I've been there, you should take a moment for yourself and if you need to cry just do it. Then tell the kids you are trying to do your best but they need to help you. Kep writing on this Mayo group for PD. I also joined Michael J Fox group.
Some days I want to give up but I love my family and would not want to hurt them. I have told my family I forget things now and when talking I will forget words. I just laugh and sad, hey it's my PD
hang in there you are not alone there is a bunch of us and we need to talk to each other. Oh bye the way I have RLS and take Ropinirol and works great
Your PD friend and my prayers and blessings are with you and family.

I

Hello @evynlouise and welcome to the PD support group on Mayo Connect. I'm so sorry that this diagnosis has been so difficult for you. How long ago were you diagnosed? What type of therapies have you had? For example, medication, physical therapy?

One of the most important therapies is regular exercise. I know it is difficult to think about movement when you don't feel well, but it is so important both physically, cognitively, and emotionally. Here is a link to information from The Davis Phinney Foundation about the importance of exercise, https://davisphinneyfoundation.org/resources/exercise-and-parkinsons/

Could you share more about your activity level?