1. < Parkinson's Disease

Looking Back - What Were Your Early Warning Signs of Parkinson's?

Posted by Singularity @azsingularity, May 8 6:06pm

I'm 51 and do not (currently) have Parkinson's. However, I've been deemed to be "at high risk of developing PD" due to having something called REM Sleep Behavior disorder (RBD), which I was diagnosed with 2 years ago (after suffering from it for 5 years prior).

I did see a neurologist at Mayo after the RBD diagnosis, who ran me through the battery of PD tests, but she said I wasn't showing any detectable signs of it.

She tried to set my mind at ease by saying there IS a (small) chance I'll never actually develop PD. Yay for that, I guess.

For those of you who have Parkinson's, I'm curious:

Looking back over your "healthy years," knowing what you know now, were there any very early (pre-diagnosis) warning signs that you didn't recognize at the time? Anything you ignored or just wrote-off as "normal"?

What I'm getting at here is: short of the obvious symptoms (tremors, walking issues, etc), is there anything subtle I should be on the lookout for... so I know when to reach out to a neurologist again?

Interested in more discussions like this? Go to the Parkinson's Disease Support Group.

dodeebug | @dodeebug | 3 days ago
In reply to @rodgerg "Hi ..Thanks for input.. yes it can be frightening .i have times when i want to..." + (show)
@rodgerg

Hi ..Thanks for input.. yes it can be frightening .i have times when i want to give up must admit, but carry on.thats why group chats help knowing that you not alone. Best wishes Rodger

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Thanks for reading sbout me and my dad
Lets chat again

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Mentor
Teresa, Volunteer Mentor | @hopeful33250 | 2 days ago
In reply to @dodeebug "I use bio freexe on my feet every night then slip on sny kind of socks..." + (show)
@dodeebug

I use bio freexe on my feet every night then slip on sny kind of socks
I have onlu been doinh it for about 4wks and eorks for me
I remember my dad every night taking a very hot bath not a shower yhen rubbing Bengay all over his legs and feet. I suspect he had RLS as i have that too
Just try it what do you have to lose.

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You are right, @dodeebug, it is worth a try! I appreciate your response.

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evynlouise | @evynlouise | 2 days ago

Slowed motor skills, constipation, shuffling when I walked, right wrist twisted sporadically

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mondo3019 | @mondo3019 | 1 day ago
In reply to @eojeda1 "I hope you find the rest you deserve and need. My husband and I can't sleep..." + (show)
@eojeda1

I hope you find the rest you deserve and need. My husband and I can't sleep in the same bed. I have been punched a few times in the darkness while in a sound sleep. Yes, every day is something different---a new challenge. There is no exact science to PD. While all this insanity has played out, we have been building our home on our own. We are on year 4 in the build. It is now up to me and my 17 year old son, but I am determined to get it done. May take me another year, but I hope to finish should the situation with PD worsen. I am also being checked for thyroid cancer this month. If I have it, it will be my 3rd fight against cancer. I know this sounds awful to most, but I am not sad. I am determined! Believe me, if I can fight the fight, you can too. Hang in there my friend.

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Keep fighting the fight! The doc thinks it is Parkinson’s plus syndrome oh well that’s why the meds aren’t working..

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eojeda1 | @eojeda1 | 1 day ago

I am very sorry to hear this. Definitely don't give up or in. CL does treat some of the symptoms of PPS, but is not always effective, even in some PD patients like my husband. There are different medications that can be used depending on your symptoms with Parkinsons Plus. You need to find your right cocktail so to speak. Exercise is necessary as well. It took me since last October to figure out what worked for my husband. Don't get discouraged! Figure out what works best for you.

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dodeebug | @dodeebug | 1 day ago
In reply to @hopeful33250 "Hello @bobweller, I'm interested in your comment about applying a heavy menthol product to your feet...." + (show)
@hopeful33250

Hello @bobweller,

I'm interested in your comment about applying a heavy menthol product to your feet. How does that help?

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Well hello all I can say is that like any body part that aches and you use a muscle rub on it, it seems to just feel better. No a cure but sure does help me get to sleep.
I also have spinal Stenosis which at times goes from my spine down the back of my legs and I will rub bio freez on them. Just feels good.
Just try it.

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