Anyone experiencing muscle atrophy/muscle wasting due to Long COVID?

Posted by tatjohns @tatjohns, Dec 2, 2024

I have long covid (2 1/2 years) and have been experiencing progressive muscle atrophy/muscle wasting which is unrelated to inactivity. To the contrary, I have tried to stay very active with walking, swimming, resistance training, but none of it does any good. The muscle atrophy continues and is debilitating. The head of the local long covid clinic said I was the only patient out of the 3,000 patients he has seen in LC clinic with this symptom.

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Yes, I am also wasting. I've been injured since Apr 2022 but started wasting Jan 24--so the last 1.5 years. I am losing it all over entire body... back, forearms, legs, ankles, feet, neck, face... but I am gaining weight all in the gut. Muscles feel like they are turning to jello. Off/on burning neuropathy as well. Limbs are slowly shrinking down. Just a shell of my former self... I mean, I used to take VACATIONS to go HIKE 10+ miles a day! I have not been able to get any answers and like you I am keeping up some levels of physical activity but wasting slowly by the day. I also am having muscle twitching. My issues started after 1 dose of a jab (began with heart issues and neuropathy/weakness in left arm within two days of receiving shot) and it's been downhill ever since.

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@boykin1017

Yes, I am also wasting. I've been injured since Apr 2022 but started wasting Jan 24--so the last 1.5 years. I am losing it all over entire body... back, forearms, legs, ankles, feet, neck, face... but I am gaining weight all in the gut. Muscles feel like they are turning to jello. Off/on burning neuropathy as well. Limbs are slowly shrinking down. Just a shell of my former self... I mean, I used to take VACATIONS to go HIKE 10+ miles a day! I have not been able to get any answers and like you I am keeping up some levels of physical activity but wasting slowly by the day. I also am having muscle twitching. My issues started after 1 dose of a jab (began with heart issues and neuropathy/weakness in left arm within two days of receiving shot) and it's been downhill ever since.

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Same exact experience here after the 1st Pfizer booster.

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@thedreamingtree

Same exact experience here after the 1st Pfizer booster.

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Wow so sorry. Have you been able to try any treatments or anything like immunosuppressants? I’ve been to so many doctors, even out of state, without any luck. Other than a POTS dysautonomia diagnosis.

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@boykin1017

Yes, I am also wasting. I've been injured since Apr 2022 but started wasting Jan 24--so the last 1.5 years. I am losing it all over entire body... back, forearms, legs, ankles, feet, neck, face... but I am gaining weight all in the gut. Muscles feel like they are turning to jello. Off/on burning neuropathy as well. Limbs are slowly shrinking down. Just a shell of my former self... I mean, I used to take VACATIONS to go HIKE 10+ miles a day! I have not been able to get any answers and like you I am keeping up some levels of physical activity but wasting slowly by the day. I also am having muscle twitching. My issues started after 1 dose of a jab (began with heart issues and neuropathy/weakness in left arm within two days of receiving shot) and it's been downhill ever since.

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Not sure why, but perhaps my saggy skin is LC related. It became that way just about when my other symptoms started to pop up. Any comments?

suef

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