Anyone experiencing muscle atrophy/muscle wasting due to Long COVID?

Yes, I am also wasting. I've been injured since Apr 2022 but started wasting Jan 24--so the last 1.5 years. I am losing it all over entire body... back, forearms, legs, ankles, feet, neck, face... but I am gaining weight all in the gut. Muscles feel like they are turning to jello. Off/on burning neuropathy as well. Limbs are slowly shrinking down. Just a shell of my former self... I mean, I used to take VACATIONS to go HIKE 10+ miles a day! I have not been able to get any answers and like you I am keeping up some levels of physical activity but wasting slowly by the day. I also am having muscle twitching. My issues started after 1 dose of a jab (began with heart issues and neuropathy/weakness in left arm within two days of receiving shot) and it's been downhill ever since.

Same exact experience here after the 1st Pfizer booster.

Wow so sorry. Have you been able to try any treatments or anything like immunosuppressants? I’ve been to so many doctors, even out of state, without any luck. Other than a POTS dysautonomia diagnosis.

Not sure why, but perhaps my saggy skin is LC related. It became that way just about when my other symptoms started to pop up. Any comments?

suef

I’ve read about the saggy skin from various folks with LC and losing muscle. Many have been impacted by connective tissue wasting and diseases like EDS. My skin has definitely changed as I’m losing muscles.

Really getting aggravating.

sec

So aggravating!!!!

My arms look like they need to be ironed!!!

Yes, our Long Covid Clinics say they’ll help us, but they did nothing for me. The Chief of Neuro and Infectious Disease at our Northwestern Hospital in the city said I would not be getting my taste or smell back if after a year! I’m going on 3 years this way! It’s awful when they leave you with no HOPE! Sorry you’re suffering and hope that you can get some relief soon.

I got sick 4 days after 1st Pfizer. Dizziness, vertigo, tinnitus, head fullness sensation, daily crashes of heavy sick sleep. Tremor in and out of sleep and from concentration even talking was difficult with brain fog and tachycardia when walking but also resting. This was for 2021-2024. In 2024, last summer, I lost 20 pounds suddenly, my muscles atrophied and I lost my hair, skin sagged in all my limbs and face. It’s like I aged 15 years overnight. I also developed pain in my muscles forearms, legs, shoulders ribs, knee caps, joints finger joints pain in tissue, bones and muscles. I tested positive for Lupus SLE. I get low grade fevers off and on. Rashes on and off. I had been dx with MCAS and pots a year before. I had three vaccines and each made me sicker and sicker but medical community denied vaccine injury. I see a rheumatologist the 14th and I hope she has answers. My limbs have indentations along the veins, so I wondered about eosinophil fasciitis? Can anyone relate? I would get tested for autoimmune diseases-Tracy