Anyone experiencing muscle atrophy/muscle wasting due to Long COVID?

Posted by tatjohns @tatjohns, Dec 2, 2024

I have long covid (2 1/2 years) and have been experiencing progressive muscle atrophy/muscle wasting which is unrelated to inactivity. To the contrary, I have tried to stay very active with walking, swimming, resistance training, but none of it does any good. The muscle atrophy continues and is debilitating. The head of the local long covid clinic said I was the only patient out of the 3,000 patients he has seen in LC clinic with this symptom.

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suefish | @suefish | Aug 11 5:37pm

In reply to @suefish "My arms look like they need to be ironed!!!" + (show)

That is a perfect description of my arms. It’s bad enough that they were just skinny; now they wobble like a drunken sailor. Thanks for making me feel better. 😘

h2998sc | @h2998sc | Aug 12 5:57pm

In reply to @lkirnbauer "Yes, our Long Covid Clinics say they’ll help us, but they did nothing for me. The..." + (show)

You MUST have hope.Keep saying it toyourself.."I will get through this.This will be a memory up ahead".Dr Paul Anderson...he can help you...he's the real deal.God Bless and strengthen yourself daily in your mind.It isn't going to last forever...listen to what your body is trying to tell you.xoxox..I've been having this since 2020.It's virtually over.I'm almost there.No quitting now.

sweetwater9 | @sweetwater9 | Aug 12 6:47pm

I have noticed the sagging stomach and arms but I thought it was just aging. Hmmmm. I have gained a lot of weight around my stomach too.

friedrich | @friedrich | Aug 12 7:24pm

In reply to @h2998sc "You MUST have hope.Keep saying it toyourself.."I will get through this.This will be a memory up..." + (show)

To h2998sc —

Thank you for encouraging us to strengthen our determination to get through this LC challenge. And to have faith that we will.

Also, thank you for reporting that you’re now nearly recovered from LC. These reports of recovery boost our confidence that we, too, will see our LC resolve.

~ friedrich

h2998sc | @h2998sc | Aug 12 8:56pm

Never thought it would end.It's VERY close to ending.I know it.I feel it.Get the right supplements...gotta have those ....Dr Paul Anderson.Real Deal...and God Bless.

lkirnbauer | @lkirnbauer | Aug 13 8:57am

In reply to @h2998sc "You MUST have hope.Keep saying it toyourself.."I will get through this.This will be a memory up..." + (show)

I’ve had Long Covid since December of 2022 and was told by the Chief of Neuro and Infectious Disease that after a year of loss of taste and smell, I won’t get those senses back. I left his office with no hope and now what do I do? My body is stuck where it is, that’s what it’s telling me!

frouke | @frouke | Aug 13 9:22am

I wouldn’t let him bother you, no one can tell you what to expect because they really don’t know. I had covid in 2022 and afterwards I had some very bad symptoms, for one, I had a rapid heart beat and profuse sweating and with digestive problems and so on. I went for many tests to rule out any problems and nothing was found, of course you’re happy but what the heck, I still suffered but the symptoms changed over time and I also changed in the end. I think we have to try and deal with the symptoms unless they’re serious but otherwise I’m still moving forward with the new normal until they find more information about long covid and how to treat it. It’s very helpful to talk to others about it and find some comfort, also, you can get some good advice here from people who have similar issues that you may have so you don’t feel so afraid, the best advice I would give to people going through this is wear a mask when you’re indoors with people, another covid infection is not going to help you get better, exposure to covid will only cause you more problems.

h2998sc | @h2998sc | Aug 13 12:52pm

In reply to @lkirnbauer "I’ve had Long Covid since December of 2022 and was told by the Chief of Neuro..." + (show)

I lost my taste and smell on and off for the duration of lc.My doctor told me...'it's all in your head"...sorry.Epic fail.None of this is 'in your head'.It's real.Go on youtube and find Dr Paul Anderson.I ve been suggesting him now since I signed up here.(3 wks?)Been following him and his vlogs for a few years now.Started doing what he recommended supplement -wise.If I could be so bold as to say...I'm one second to the finish line.Feeling so much better these days.I never thought I'd really get well again.I'm feeling good now.No real flare ups.My stomach pain has stopped.My thinking is sharper now.Don't have massive anxiety anymore.I trust this Doctor.You can get well....don't quit believing.I was sick all the time.Now I'm not...at all.

lkirnbauer | @lkirnbauer | Aug 14 8:55am

In reply to @h2998sc "You MUST have hope.Keep saying it toyourself.."I will get through this.This will be a memory up..." + (show)

Thank you so much for the encouragement! How do I find this Dr. Paul Anderson. I do take several supplements already, but am curious what he suggests and see if I’m on the right path. If there’s a specific web site, I’d like to know of it. Thank you again!

tls5alex | @tls5alex | Aug 14 11:41am

In reply to @fancy50 "I'm the same way Covid first time four years ago and now have it again and..." + (show)

Check for Lupus SLE and Sjogren’s, MECFS MCAS and pots. All of these diseases can be triggered by the Covid vaccine and Covid itself. I never got COVID but got all of these syndromes 4 days after the shot. Took 4 years to get the lupus dx. Seeing specialists is a slow process here in Canada and not all of them are created equal once you do get in to see one. But have your dr test your ANA at least that will set you up to know if there is possible autoimmune stuff going on. See a rheumatologist 👌

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