I have been on Dupixent 4 months and I can't say I see a difference in my breathing.. Something I have been dealing with daily since I started using it is muscles aches and joint pain, body aches, chills, being unusually tired. I contacted the pharmacist at the Speciality Clinic I get it from and asked if what I am experiencing could be side effects. She said it could be as these are all possible side effects of Dupixent. We are going to hold off on my next injection and see if there is any difference.
I am wondering if anyone else has experienced any side effects such as these from Dupixent? Or any side effects at all?
I agree—I’d ask your lung doctor and also the folks at Dupixent about their coupons and patient assistance programs. I am using a coupon from DupixentMyWay and my copay is $0! Without the coupon, it’s have a pretty high copay, I believe. There are some requirements to use the coupon or the patient assistance programs.
You can try calling the pharmacist that is supposed to be filing your prescription about this issue as well. In my case, it’s CVS Caremark. I was able to do to the Dupixent website and figure out how to sign up for the Dupixent MyWay discount card on my own and have it activated before any of my prescriptions were filled.
I find Dupixent really helped me. Several times since starting it in November, events have occurred which would normally have triggered an exacerbation but didn’t! That was what we had hoped for! My breathing is about same as always and saturations have been slightly better than before. I have NOT noticed any troubling side effects.
Well, since Dupixent was approved for asthma and COPD and high eosinophils, I gave all three. I am waiting for CVS specialty pharmacy to finish processing my pre-authorization and then waiting for an appointment with my lung doc’s office so I can get my 1st doses there and be sure I get everything right.
I don’t understand why it’s not the default when we get a new Rx with new mode of administration that we should have it demonstrated before we are on our own.
Patients would likely be better able to correctly take their medications if it was always 1st administered in the MD’s office.
My lungs docs have conferred and agreed that I need to try adding SOMETHING to help reduce my COPD exacerbations. I have been having 1-6/year except during the years we hibernated due to COVID. Additionally, I have chronic asthma and allergies and high eosinophil levels. I am hoping it will work well for me without making my dry eyes worse. I have had dry eyes since I turned 40 and had to stop wearing contact lenses. I have had to stop taking the higher dose Spiriva (tiotropium bronide) and switch to the lower asthma dose because the higher dose caused me to have painfully dry eyes and mouth—5 cavities in 6 months!
Anyway, I believe my doc will start me on this as soon as he can get my pre-authorization approved for it. He originally wanted to try starting me on Fasenra but the other lung doc that also consults on my case highly recommended Dupixent because it is approved for Asthma/COPD/high eosinophil and also is supposed to help improved lung function and reduce frequency and severity of exacerbations.
I understand it’s an auto-injection, similar to Epi-pens but needs to be taken every 2 weeks. (My local lung doc was attracted to Fasenra because it only needs to be taken every 8 weeks after initial shorts. It didn’t show improvement for COPD, so my other lung doc said it was her last choice.)
@hicopd my pulmonologist has me scheduled to take theAZ Faserna injection this Tuesday but after reading it was not approved for COPD and your pulmo saying last choice I’m very hesitant especially since eosphinol levels are fine. But after moving from NYC where I would have maybe 1 exacerbation a year to Chatleston SC in April 2025 I’ve had two and my chronic bronchitis is back after doing a RheOx trial in 2022 and was free until Aug 2025.
I had Dupixent and then have been switched to Nucala because of side effects.
Had 3 exacerbations in the 12 months before starting Dupixent and none since.
Connect
Connect
Like
Helpful
Hug
I have been on Dupixent 4 months and I can't say I see a difference in my breathing.. Something I have been dealing with daily since I started using it is muscles aches and joint pain, body aches, chills, being unusually tired. I contacted the pharmacist at the Speciality Clinic I get it from and asked if what I am experiencing could be side effects. She said it could be as these are all possible side effects of Dupixent. We are going to hold off on my next injection and see if there is any difference.
I am wondering if anyone else has experienced any side effects such as these from Dupixent? Or any side effects at all?
Thank you.
I just found out my co-pay for Dupixent will be $1150 per month. Heck I cannot afford that with my SS and small pension.
How is everyone paying for this expensive medicine??
Is there a place to try to get this medicine subsidized??
Have you asked your pulmonologist for financial help programs?
My pulmonologist helped me get help through The Assistance Fund. I pay nothing.
I agree—I’d ask your lung doctor and also the folks at Dupixent about their coupons and patient assistance programs. I am using a coupon from DupixentMyWay and my copay is $0! Without the coupon, it’s have a pretty high copay, I believe. There are some requirements to use the coupon or the patient assistance programs.
You can try calling the pharmacist that is supposed to be filing your prescription about this issue as well. In my case, it’s CVS Caremark. I was able to do to the Dupixent website and figure out how to sign up for the Dupixent MyWay discount card on my own and have it activated before any of my prescriptions were filled.
I find Dupixent really helped me. Several times since starting it in November, events have occurred which would normally have triggered an exacerbation but didn’t! That was what we had hoped for! My breathing is about same as always and saturations have been slightly better than before. I have NOT noticed any troubling side effects.
-
Like -
Helpful -
Hug
1 ReactionI believe it read that it can take up to 3 months. Some will get a response sooner, others not!
You may want to look into the Dupixent my way program, possibly able to get it for nothing or low amount.
@hicopd my pulmonologist has me scheduled to take theAZ Faserna injection this Tuesday but after reading it was not approved for COPD and your pulmo saying last choice I’m very hesitant especially since eosphinol levels are fine. But after moving from NYC where I would have maybe 1 exacerbation a year to Chatleston SC in April 2025 I’ve had two and my chronic bronchitis is back after doing a RheOx trial in 2022 and was free until Aug 2025.
I am taking Dupixent. It definitely helps me.
I had Dupixent and then have been switched to Nucala because of side effects.
Had 3 exacerbations in the 12 months before starting Dupixent and none since.