Looking Back - What Were Your Early Warning Signs of Parkinson's?

@rodgerg
Welcome to the PD support group on Mayo Connect. From your posts, it appears that you have not been officially diagnosed with PD, but you are having tremors and some gait problems. Is my understanding correct?

If this is so, I would encourage you to get a referral to a movement disorder specialist. These are neurologists who specialize in the type of movement disorders that you have described. It is easy to attribute these symptoms to the aging process, but often a correct diagnosis can put you on the right road with a treatment plan.

Do you exercise regularly, Rodger? Are you experiencing much fatigue?

thank you for the mail.
Yes, I walk about 5 km a day.
I'm a 9 pm to bed person from a young age, so not more tired than usual, thank you for the advice, much appreciated

kind regards
Rodger

I had no idea that I was having symptoms. I was so angry and still am the loss of words when I go to speak. I stumble but do not fall. I still drive but only short distance. My hubby likes to go with me and he drives.
Have you heard of boxing for PD? I inquired about it but it is at least half hour drive and for private lesson is $80 per half hrs. Group lessons $39. To far for me to drive. It is hitting a bag. You might inquire about it where you live.
I'm trying to hang in there and I know I am still me
Just a little slower.

Thank for encouragement some days are almost normal still but I know what is in store for me
I watched my dad die of this dam PD
I should have k own when it was getting hard to get up from sitting and out of bed. I also thought I might be getting dementia like forgetting one word while talking to someone. I am going to a counselor now to see if it helps taking about to someone other thN my hubby. I am trying
Thanks for listening

If you have incontinet issues, your handwriting goes to hell, or an issue with your voice I would definitely see a neurologist. Ask about early signs of PD. I was diagnosed in may of this year. But based on what I’ve learned, I’ve probably had it for at least 2 years!!

Well, took him to MRI. First time, the machine was too small. 2nd machine was right size, but he had an anxiety attack which triggered his PD tremors and then started to hyperventilate. All hell broke loose! I could see the pain and anxiety in him. I told him it was ok, we will find aother way. He has had imaging before, and this had never happened, which tells me the PD is progressing. He will go next week for another MRI but will be sedated. Without imaging, we are dead in the water. My husband has always been an extremely strong man, emotionally and physically, but even PD makes the strong go weak. May God grant us strength to endeavor!

What battery of tests did they run, if you are so inclined to speak of them?

I am going on 70 in a few months. I have a sister who is 88 that has PD for years. She talked about shaking hands and arms, dizzy feelings at times, pain in her feet that moved up into her upper legs. She had falls at times I recall. The foot/leg pain turned in neuropathy (pain, numbness, hot, cold feelings, tingling and shooting electrical like pains. This started in her early 70's. Now she can't walk with out a walker and has assistance where she lives now. I started having pain in my feet after my 2nd organ transplant. I was 62. Now it has moved a bit up my legs into my shin area. I feel numbness, tingling, cold/hot, electrical type shooting pains at times. I gone to a few different different Neurologists so far but not conclusive reason for my pain and numbness. I now see a PD Neurologist just in case. I take Pregabalin daily and basically rub my feet in the morning and apply a heavy menthol product to my feet.

I am so sorry. Anxiety and fear seems to escalate. It is hard for them too. I feel like I don't know what my spouse will do from hour to hour. Everyday is a new adventure or challenge. Our son is going to be taking him for a couple of week's so I can have some down time. I certainly will sleep better.I will miss him too. Our son is EMS and a firefighter.
I hope everything turns out better . Take care and 🫂

I hope you find the rest you deserve and need. My husband and I can't sleep in the same bed. I have been punched a few times in the darkness while in a sound sleep. Yes, every day is something different---a new challenge. There is no exact science to PD. While all this insanity has played out, we have been building our home on our own. We are on year 4 in the build. It is now up to me and my 17 year old son, but I am determined to get it done. May take me another year, but I hope to finish should the situation with PD worsen. I am also being checked for thyroid cancer this month. If I have it, it will be my 3rd fight against cancer. I know this sounds awful to most, but I am not sad. I am determined! Believe me, if I can fight the fight, you can too. Hang in there my friend.