Heavy perfume in medical facilities, or anywhere, really
How do we get through to people that this could actually cause great respiratory distress? Even death.
I told a hotel guest the other day, in the kindest way possible, that I was allergic to her and she needed to understand what her chemical scent could do to those with respitory issues. She was headed to Mayo. I imagined the poor patients with even more severe conditions. It was the first time I ever said that to anyone's face, but felt it needed to be said.
I've experienced this a great deal this week, even with clinic staff. To date, I've had 0 complaints about MC, but I hope they are listening now and will work to make their buildings perfume free.
Interested in more discussions like this? Go to the Lung Health Support Group.
YES, post signs everywhere to stop polluting my air w perfume.
Oh my goodness, I forgot all about mentioning elevators and stifling scents; so much pollution we chemically sensitive victims are sent running for oxygen! So many times I have been stuck in an elevator, going to a very high floor, the damn elevator stopping at every floor and picking up even more truly awful polluted people, men included. It would be a perfect world to ban strong perfumes in elevators, but I think it would be very difficult. People coming into high rise buildings and into elevators for the very first time just wouldn't know their strong scents can nearly suffocate a lot of us. Yes, starting a petition to ban perfumes in elevators sounds wonderful. How would we go about doing it?
@Absolutely let's start a no loud offensive perfume campaign, Linda! But it won't be easy. These noxious scents all blend together, and linger forever. We could ask permission to put up a polite sign asking people to please not use heavy scents since many of us have severe breathing. Problems. Or something like that. Or take the stairs!
Thank you Peggy for your comforting words. Yes, I do believe it is some of my meds, but which one who knows? I know it is not right to just assume it is "hay fever as DR has suggested. This did not start till I went on various meds. Will see "ear nose and throat Dr just for argument sake. Believe in long run will just eliminate one drug at a time and see what gives. Best possible program from my point. Dennis
I appreciate your communication regarding allergies to meds and the dreaded parfumes, scents and hotel cleaning powders and harmful products.
I have been challenged with allergic reactions to Rx which lead me to Mayo Clinic Genetic testing. The Dr who researched and reviewed my test was of great help. I learned why I had these reactions and my doctors were eager to work with me! So, again proper diagnosis is key. I am on fewer RX and feeling better.
However, I still cover my face and run when confronted with the loud scents. Environmental issues are a huge challenge to our health. It is important we all speak out or write letters supporting research that will educate people about the best practices for life and breath!
I have found getting up and moving, walking, bicycling, jogging are all extremely helpful for my health and quality of life as I live with one lung.
I am truly grateful to be a 9 year 6 month (who's counting?) lung cancer survivor!...and I neVer smoked.
I appreciate all insights and comments that you all have shared. Thank you for being a part of connect!
linda w - mentor
Good for you Linda. My DRS are al VA and they don't have time to really work with you. My current is sending to a ear nose throat spec. Do NOT believe, but will go along. Might be surprised. I believe it is Meds.
I'm thinking of you!
keep up your great attitude and you will win the doctors over;-)
big hug
linda w
@peggyj4411 Hi Peggy! I hear ya! I went to a lung transplantee meeting two months at the Mayo clinic in Jacksonville that was held in a smallish meeting room. That particular day, they combined heart transplant people in that meeting as well. (not normally) Anyway, a women came with her husband who had had a heart transplant, reeked badly of extremely strong perfume. I was mortified that no one asked her to leave. I, and the woman next to me started to cough and get a bad headache. I finally approached the woman and kindly asked her to leave the room explaining to her that the people in there with lung issues cannot tolerate it. I was not happy to be the one to approach this woman; the moderator there should have been on top of it. I mean, nobody in there could have missed the strong perfume. I left there with a borderline migraine because of it, and it spoiled our plans that we had for the rest of the day. I feel like a poster saying NO PERFUMES ALLOWED IN THIS ROOM needs to be posted on the conference room door, if not everywhere in the hospital.
@windwalker, That had to have been a disappointing meeting! I hope that this was not a common occurrence at a transplant meeting. As a transplant recipient, I would like to believe that this was somehow an oversight for that particular meeting.
I want to share your experience with @lisalucier so that she can pass it on and help to get a solution.
Rosemary
@windwalker and @rosemarya
I understand what you are speaking about. In addition to "No Smoking" signs there really should be "No Fragrance" signs in hospitals. My daughter was being treated for asthma issues in a short-stay unit at a local hospital and the person in the next bed was being discharged and she was really lathering on the scented lotion - we had to leave the room and let it air-out.
Teresa