Looking Back - What Were Your Early Warning Signs of Parkinson's?

It sounds like he has the most important part---you! You are key to his care. Your encouragement and caregiving will truly benefit him. My husband is struggling now due to a lower back issue that has pretty much disabled him in bed. After being passed around by doctors, I went back to the spinal surgeon and pleaded with him to help me find the issue in his lower back and fix it. I explained to him how it was laying my husband up in bed for nearly 1.5 months now and he is unable to exercise to help his PD. I explained how the steroid shots from pain management don't work and only shoot his diabetes into the 400/500 range, placing him at risk for keto and other issues. They previously found a lipoma on the spine, but no one, except 1 doctor who was not in charge, wanted to eliminate it. I was not taking NO for an answer, and the spinal surgeon has agreed to help now. I spent 24 years as a Criminal Investigator and then went into nursing to help people, and I never said no. When they said things were impossible, I showed them things were possible. My husband's journey is my journey too, and I will fight the fight with him!

I am thankful for your comments. My spouse had lower back surgery . He had a cyst pushing on the nerve. They found a foreign body . Sent both for confirmation of any Cancer, etc. He has melanoma insitu. He sees the dermatologist for evaluation. I requested the appt. and was able to get a referral.
By the way his back was degenerated disc's and herniated . We knew he had a herniation as I took to a Neurosurgeon. He did get several injections through the last few year's. He was in agony. I begged forever since 2018 for a referral to a Movement Disorder Neurologist. ..Our Neuro said it was not necessary! He retired last year and we were so surprised when our new Neurologist asked us if he had ever been to one. She explained that this is not unusual for older physicians. He did the usual Neurologist stuff and gave him Carbo-dopa Levadopa. I approached several times to no avail. He said get him into boxing ! No.. I did some research and found out our local YMCA had a Parkinsons Program and PT on staff. We went 3x a week. He did great.. Of course Covid stopped that. We had to get a revaluation and he went back. There was no PT on staff. Imagine that. But I knew his program as I worked out with him. Imagine that I didn't need help from a physician. I am so proud of how he has done since 2013. He is stubborn sometimes and I try to reflect the outcomes to him if he does nothing. Kudos to you for sharing and being a good Nurse.🫂

I can tell you are a think outside the box person. I love that! You and I are twinning. It seems like we are in the same boat. I seem to have lost my oar! Lol
Went for MRI today, and he has to go to another location tomorrow because the MRI machine was too narrow for him. The poor man looked like a stuffed sausage. Over the past 2.5 years, he has gone through 25 major surgeries, including a staph infection that landed him at home for 7 weeks on a pik line. There hasn't been a shift change for me since, but I am still going strong. Perhaps it is my Type A personality or git r done attitude. Perhaps I am plum crazy or it is just internal strength. Personally, I don't know why I haven't broken yet. I know that I am not alone in this matter, and I can't give up. It just isn't in me to give up. I pray for answers and resolutions at this point. I encourage others to fight the fight because it is worth it. I consider myself mildly religious, and despite the hard times, I feel blessed. My thoughts and prayers go out to you and your husband. Enjoy your lives and know that you've got this! 😉

You and I are very much alike. I fight for my husband every chance it is needed. He will get what he deserves ..the best care until he is unable to participate. Sorry about the MRI. I hate having those done. Too loud! By chance are you the oldest adult child in your family?🫂💕💯

Hello. From early childhood i had small amount of hand shakes. Got used to it and it never got worse. Now 72 in March 2025 i noticed left hand shakes which have got worse and now right hand a bit as well as feet and jaw. I walk normal and walk approx 5km a day .dont stumble but slower but assume my age. What do you think ? I would appreciate some input and suggestion. Thanks Rodger

Hi I was diagnosed with PD just last month. I am 88 and my dad had it. My father had balance and falling when they diagnosed his PD. He was at least 80 and very active. I lived with him his last 2yrs. I was in my 60's . I supposedly had a stroke last year. My left leg went numb and left hand was .not Mobil. Hospital dr said it was not a stroke but a nerve in my neck mu neurologist said stroke
That started my balance e problem. Just 3mo ago they gave me all the test. DaT scan showed PD. I believe I did not have stroke it was the start of PD. I now have balance problems and stiffness hard to get in and out of bed and rise from sitting. I am trying to stay positive. Blessings

It sounds like he has the most important part---you! You are key to his care. Your encouragement and caregiving will truly benefit him. My husband is struggling now due to a lower back issue that has pretty much disabled him in bed. After being passed around by doctors, I went back to the spinal surgeon and pleaded with him to help me find the issue in his lower back and fix it. I explained to him how it was laying my husband up in bed for nearly 1.5 months now and he is unable to exercise to help his PD. I explained how the steroid shots from pain management don't work and only shoot his diabetes into the 400/500 range, placing him at risk for keto and other issues. They previously found a lipoma on the spine, but no one, except 1 doctor who was not in charge, wanted to eliminate it. I was not taking NO for an answer, and the spinal surgeon has agreed to help now. I spent 24 years as a Criminal Investigator and then went into nursing to help people, and I never said no. When they said things were impossible, I showed them things were possible. My husband's journey is my journey too, and I will fight the fight with him!

Hi I was diagnosed with PD just last month. I am 88 and my dad had it. My father had balance and falling when they diagnosed his PD. He was at least 80 and very active. I lived with him his last 2yrs. I was in my 60's . I supposedly had a stroke last year. My left leg went numb and left hand was .not Mobil. Hospital dr said it was not a stroke but a nerve in my neck mu neurologist said stroke
That started my balance e problem. Just 3mo ago they gave me all the test. DaT scan showed PD. I believe I did not have stroke it was the start of PD. I now have balance problems and stiffness hard to get in and out of bed and rise from sitting. I am trying to stay positive. Blessings