Anyone have success with treatment for vaginal Lichen Sclerosus?

Hi all LS sufferers. I've had surgery for labial adhesions--3 months ago. I'm still having sharp, strong pain when I pee. The surgeon's NP says to use coconut oil or olive oil. They also say I will have to use estrogen cream nightly for the rest of my life. I don't have a problem doing that but it does nothing for my LS. I began using clobetasol about 5 days ago and initially it seemed to help. Now, not so much. I've read that some have began using a bidet to help their LS. How many have found that helpful? I have a pari bottle with an extendable ?neck that is very easy to use but just checking if any others have tried this and what has been the results. Thanks all.

I have had this condition for six years and the directions i have gotten kept changing.
Most of the time i suffer from a burning sensation, sometimes inching and pain during intercourse.
Lately I am applying Clobetasol twice a week and Vaseline daily.
Could you please share what your treatment plan if it helps you to control the symptoms. Thanks!

Clobetasol every other evening

I have had this condition for six years and the directions i have gotten kept changing.
Most of the time i suffer from a burning sensation, sometimes inching and pain during intercourse.
Lately I am applying Clobetasol twice a week and Vaseline daily.
Could you please share what your treatment plan if it helps you to control the symptoms. Thanks!

Clobetasol twice a week, Estragyn cream twice a week (on different days), and vaseline, or aquaphor, or emu oil multiple times a day (ie after shower or going to the toilet). Vaseline and aquaphor serve as barriers and so keep the area dry from my occasional urine leakage and the emu oil supposedly penetrates deep into the dermis to keep the vulva area well hydrated. The estragyn cream is placed internally, but the doctor suggested smearing a bit on the vulva too.

Clobetasol twice a week, Estragyn cream twice a week (on different days), and vaseline, or aquaphor, or emu oil multiple times a day (ie after shower or going to the toilet). Vaseline and aquaphor serve as barriers and so keep the area dry from my occasional urine leakage and the emu oil supposedly penetrates deep into the dermis to keep the vulva area well hydrated. The estragyn cream is placed internally, but the doctor suggested smearing a bit on the vulva too.

I have had this condition for six years and the directions i have gotten kept changing.
Most of the time i suffer from a burning sensation, sometimes inching and pain during intercourse.
Lately I am applying Clobetasol twice a week and Vaseline daily.
Could you please share what your treatment plan if it helps you to control the symptoms. Thanks!

My journey began with the fact it took 10 years to be diagnosed which means I have quite a bit of scar tissue. My dermatologist made the diagnosis. Needless to say I changed my gynecologist. I currently see both my dermatologist and my gynecologist yearly. I've had this condition for about 26 years. I had to spots biopsied for cancer and thankfully they were negative.

I use Aquaphor 1 % anti-itch cream in the vaginal/vulva area once or twice daily. I also use regular Aquaphor in the anal area at least once daily. I am very comfortable now. Note I also use Estrace cream on the vaginal opening once or twice a week.

Other recommendations: use Dreft laundry soap for babies or similar, don't use dryer sheets (I use dryer balls), use mild soap such as Dove or Norwex wash rags that don't require soap, pat - don't wipe, use Charmin toilet paper with Aloe Vera or similar, limit any bike riding or at least "grease" up when you do and use padding.

I also have found that Jockey Worry Free underwear is really nice. It is slightly padded but mostly is important as with all the lotions I don't have to worry about anything showing through my clothes.

Everyone is so different but I hope some of these ideas might help you out and give you hope!