@fdixon63 Welcome to Mayo Clinic Connect! I’m so glad you found this support group! I see that you have posted your question in the Women’s Health Group. That is a great location as you will reach more women with your questions.
I’m so glad that you found the group and hope you will feel free offer thoughts.

use a pari bottle every time I urinate.

@fdixon63 Im still in the process of getting a doctor through my health insurance to actually do the biopsy so they can say i have LS and gibe me treatment for it. But I can say I've tried coconut oil, olive oil and for me there was absolutely NO relief just more irritation. I hoped to get diagnosed without the biopsy just cus I've heard so many horror stories about it. People losing full feeling in that area etc. But at this point I'm begging for it. It's been since I was 14-15 years old thaf I've suffered from this and I'm now 38 years old takkmg a photograph into the doctors office basically shoving my vagina in their face. Like see, you see that??? T hats my problem and I finally got a dr to listen after that. Im now waiting for my health insurance to find me an obstetrician to treat it because my health insurance doesn't cover dermatology and thats where every Dr kept sending me to knowing I couldn't pay for it. But im on HRT and ive tried placing estradiol on it and NOTHING. It seems like anytime I think I found something to give me some relief I'm wrong. I end up with another flare up. I NEVER thought I'd EVER go through something like this in my lifetime. And I pray that they find a cure for thsi disease. It ruins your everyday value of life, I can't wear clothes I used to just skirts and loose dresses now. Im having trouble with my relationship because my partner doesn't understand it. It also doesn't help that the 9 years we've been together I've gone to Dr to Dr being told its just a yeast infection or BV. So now that I've finally figured out the problem on my own its like he looks at me differently. He saw me taking photos of myself in the bathroom and I had no choice but to explain that they were for my doctor and then I had to show them to him. I was so embarrassed, I felt my heart fall right through my stomach watching the way he looked at the images up close and personal. It really is a horrible disease and I pray 🙏 everyday that we find a cure during my lifetime. Not even for me but other ppl who are suffer from LS. Like im that person waving my hand ✋️ like take me, I will be your guinea pig , or monkey or rat! Like I would do anything to help them to find a cure for this. If you wanna know what living in hell feels like? Well this is it! Constant burning. Pain, itching, more burning. Like thats the only way I can describe it. Good luck fellow LS friends. I will stay praying for us all.