1. < Osteoporosis & Bone Health
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Are you taking Reclast for osteoporosis?

Posted by Becky, Volunteer Mentor @becsbuddy, Jul 21, 2020

Two years ago I was diagnosed with pretty bad osteoporosis because of the prednisone I was on for my autoimmune disease. I started taking Fosamax (a bisphosphonate) and had no problems. Today, the endocrinologist suggested that I switch to Reclast for 3 yearly infusions. Has anyone else taken this drug? What side effects have you had?
Thanks

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harborside24 | @harborside24 | Jul 4 7:07am
In reply to @ameliabmc "I think you are spot on. The doctor just told me to do that. She should..." + (show)
Profile picture for ameliabmc @ameliabmc

I think you are spot on. The doctor just told me to do that. She should have told me to take that before, as well as lots of water, I learned recently. Thanks!

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Wonderful! I hope it helps. Keep me posted.

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lkf109 | @lkf109 | Jul 4 4:52pm
In reply to @ameliabmc "It was my first time on June 30, and my experience has been awful. I am..." + (show)
Profile picture for ameliabmc @ameliabmc

It was my first time on June 30, and my experience has been awful. I am still experiencing the following side effects.
* back pain
* some skin burning, crawling, itching, or tingling feelings
* discouragement
* crushing headache
* some loss of appetite
* nasal congestion
* pain in the joints and muscles
* trouble sleeping
* belchinng
* stomach discomfort or upset, flatulence
* unusual dullness, tiredness, weakness, or feeling of sluggishness
* pain on the eye when moving to look up or to the sides. I developed a fever that at this point is resolved.
I’m taking Tylenol that seem to temporarily alleviate the symptoms.
I have tried to contact my doctor and I have received no answer to learn how long should I expect to experience these symptoms, and what can I do to resolve them.

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I received an infusion at the end of January. Approximately 1 1/2 months later I started having pain in both arms, including wrists and hands. I think my back pain was exacerbated too. The pain can be extremely uncomfortable and Tylenol doesn't help. I can't take NSAIDS because I have one and a half kidney anda they affect the kidney. It's very frustrating. I feel your pain. This was never explained to me by the physician who prescribed it. He just told me about the fllu-like symptoms that may occur within four days of receiving it. I had none of that. Ugh!

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jjourneying | @jjourneying | Jul 6 10:11am

I've had 2 infusions of Reclast with no side effects at all.

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findtheanswersdn | @findtheanswersdn | Nov 15 5:21pm
In reply to @merle725 "I have had leg pains from the thigh to the calf on both legs for 6..." + (show)
Profile picture for merle725 @merle725

I have had leg pains from the thigh to the calf on both legs for 6 weeks. It is awful. Tymlos gave me a kidney stone. My Dexa score shows these treatments are not working. However, I fell down hard on my knees and hands but no bones were broken or damaged.

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@merle725 your leg pains continuing not left us it from reclast u got.? Hope u feel better soon.

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sue417 | @sue417 | Nov 15 5:25pm

Hi
I just had my fourth infusion and I've had no side effects whatsoever to this medication. As long as you hydrate well the day before and the day of usually you're good

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findtheanswersdn | @findtheanswersdn | Nov 15 5:30pm
In reply to @normahorn "The medication guide for Reclast states that 2 glasses of liquid are to be consumed a..." + (show)
Profile picture for njhornung @normahorn

The medication guide for Reclast states that 2 glasses of liquid are to be consumed a few hours before the infusion to prevent kidney damage. That most likely would be the minimum. This had caught my attention as I have difficulty consuming large quantities of liquid at a time. Luckily they do not specify water as I can drink chocolate milk more easily.

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@normahorn hi i do not believe that chocolate m8lk will be hydrating enough to protect your kidneys
This is a pretty powerful drug. I would be drinking lots of water daily before and after for 2 to 3 weeks to BE SAFE THAN SORRY . IM SUPPOSED TO GET THIS IN FEB. I rethinking because of powerful effects and risk of jaw discintigratimg and femur fracture risks and long term bone joint severe that does not go away. I do not have any pain after my fusion now nor do I want any pain. Be well. Be safer than sorry. MY mom's advice she is in heaven now I have never forgot her words. Unfirumtunately with low bone and all these shitty drugs there is no such think as safe.

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findtheanswersdn | @findtheanswersdn | Nov 15 5:32pm
In reply to @jmd5 "I also have lots of back pain. I was diagnosed with early acquired degenerative disk disease..." + (show)
Profile picture for jmd5 @jmd5

I also have lots of back pain. I was diagnosed with early acquired degenerative disk disease at age 32. I have just gotten used to living with it because I'm scared of surgery. I've heard too many stories of people having to go back for more. I did a lot of reading this morning and there was a lot of good information on one of these pages for Boron for Osteo Arthritis and joint pain, so I went online and did some research about it and it is not expensive so I thought I would try it. I ordered it and I'll see how it works. I looked it up on Amazon and they tell you the ones that have the most positive reviews and so we will see. Cheers, Judy

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@jmd5 be careful because i think u can get too much. Google how much is too much. Please.

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findtheanswersdn | @findtheanswersdn | Nov 15 5:37pm
In reply to @windyshores "My doc was going to start Reclast with a test dose with my Tymlos now finished...." + (show)
Profile picture for windyshores @windyshores

My doc was going to start Reclast with a test dose with my Tymlos now finished. But my eGFR was 36, indicating stage 3 kidney failure, approaching stage 4. I don't think he can prescribe Reclast with that kidney value. I will redo after drinking more water: I believe I was dehydrated. But even hydrated I am stage 3. Anyone else?

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@windyshores I WOULD NOT DONRECKAST WITH STAGE 3 KIDNEY DISEASE. I would probably ask for risendronate pill not quite as rot gut as fosamax pill. Ask dr.

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findtheanswersdn | @findtheanswersdn | Nov 15 5:39pm
In reply to @windyshores "@ljgraham166 your experience makes me nervous. I don't have any other choice of meds at this..." + (show)
Profile picture for windyshores @windyshores

@ljgraham166 your experience makes me nervous. I don't have any other choice of meds at this point. I am hoping that a "test dose" (1/4?) with lots of water and slow infusion is tolerable- if I can get my GFR up enough to make the doc comfortable about my kidneys.

Has anyone else done a partial dose? How about premedication?

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@windyshores I asked mayo dr about half dose? He didn't even answer my text. Heard from someone else that mayo Dr's dont do that.

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findtheanswersdn | @findtheanswersdn | Nov 15 5:43pm
In reply to @windyshores "I ran into a friend today who has just left her Reclast infusion and she was..." + (show)
Profile picture for windyshores @windyshores

I ran into a friend today who has just left her Reclast infusion and she was perky and animated and absolutely fine. Everyone sure is different.

Kidney stones are a side effect of Tymlos. That is one reason I take 800mg calcium instead of the recommended 1200mg! But some people will get a stone no matter what they do and sorry that was you!

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@windyshores I heard reclast symptoms from initial phase can show up about 12 hours later.
Good luck hope u dont get any. Im worried about leg and joint or arm, shoulder pain or swollen feet not leaving or any pains anywhere not leaving and being long term. And jaw degradation ruining your teeth then u ate like an 80 or 90 year old. Im 69 I dont want to be disabled in pain. I have no pain since my fusion but now I have osteopenia and fusion with rods and screws.

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