PRRT side effects and results

Posted by sophiarose @sophiarose, Jul 20, 2024

After my 2nd PRRT treatment I started having out of control erratic BP and Pulse also Heart skipping beats. I can’t touch my head or temples without pain it feels like my head is in a vise grip
I also did MRI of abdomen and pelvis tumors are still growing and multiplying
Has anyone else had this happen
Thank you

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Profile picture for sophiarose @sophiarose

Bring a good book or iPad
Bring food snacks drinks and lunch
Wear comfortable clothes
Roll up sleeves shirt or sweatshirt
I bought a throw blanket and glad I did the room was freezing
Slippers because they are easier to put on you will be urinating a lot
You are there 5-6 hours and I slept 90% of the time
Other than that it’s easier than anything else I had done

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Great ideas, thank you!

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Profile picture for fraaseo @fraaseo

Great ideas, thank you!

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Sending you best wishes
You got it
You will be fine

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Profile picture for sophiarose @sophiarose

Sending you best wishes
You got it
You will be fine

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Thank you, knowing what’s ahead helps with the anxiety😊

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I agree!!!
Everyday is a blessing
I am so grateful that I found this site it has helped now for 5 years
Happy 4th everyone

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How long should I expect the side effects of nausea and fatigue to last after PRRT treatment?

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Profile picture for caregiver207 @caregiver207

How long should I expect the side effects of nausea and fatigue to last after PRRT treatment?

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@caregiver207
They give you medication for the nausea when you get the treatment
It worked for me I never had any nausea
Fatigue was bad the first couple of days
Just rest drink gallons of water or Gatorade Zero for some reason sugar made me feel worst
The results are worth it!!!!
I am stable now for 1 year
Good luck
Bring food a pillow slippers blanket and wear really comfortable clothes
It’s takes a long time

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Profile picture for caregiver207 @caregiver207

How long should I expect the side effects of nausea and fatigue to last after PRRT treatment?

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I experienced fatigue for about 2 days, not to the point where I couldn’t function, not sure if it was directly affected by the treatment. I also get a respiratory reaction to the Ocreotide shots after the treatment so I have a double shot of Benadryl before the shot. .. And with the nausea meds they give I did not experience any nausea..

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Profile picture for vinnie694 @vinnie694

I experienced fatigue for about 2 days, not to the point where I couldn’t function, not sure if it was directly affected by the treatment. I also get a respiratory reaction to the Ocreotide shots after the treatment so I have a double shot of Benadryl before the shot. .. And with the nausea meds they give I did not experience any nausea..

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@vinnie694 thank you so much for the information. My husband’s oncologist has not been very helpful when discussing the impact of the side effects.

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I felt great till the nausea med injection wore off (48 hours). I was able to drive myself home (1 hour) after the treatment with no problem. However, I just felt “yuck” for 3 days. Tired, queasy, mild headache, no appetite. It wasn’t horrible, but not pleasant either. I took long naps, 2-3 hours. I was back to normal day 6.

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Profile picture for caregiver207 @caregiver207

@vinnie694 thank you so much for the information. My husband’s oncologist has not been very helpful when discussing the impact of the side effects.

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@caregiver207

I noticed today that most professionals limit the amount of information given (which is why I am prepared to ask a lot of questions, check Google, ChatGBT and anywhere where I can get a better understand of what's happening. I think these are just the times and we have to alter our expectations.
Good luck!

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