My Husband Had RC on May 29th. For Stage 2 MIBC. Doing Well.

@eustacia55 Hi Holly, I think a care suite would be nice for him! He wouldn’t have to walk up and down stairs. My husband came home on the 7th day from the hospital and was able to walk up the stairs. I have a 1920’s home with no bathroom on the first floor. I was worried about the staircase, but,..thank God…he made it up. He was able to go up and down the stairs. He wasn’t allowed to lift anything ….Just walk around the house and outside. We started walking around the backyard. Then, we walked around the block. He walks everyday…to prevent blood clots (he also has a blood thinner shot that is given to prevent clots) and he is almost done with that. I gave him protein shakes 2x a day. No fiber. No fried foods. He ate bland , soft foods. Mashed potatoes, sweet potatoes. Bits of white meat chicken cut up. Nothing to upset his stomach. My husband had his bladder, prostate and 24 lymph nodes taken out. Praise God he is cancer free now. We went to see the surgeon yesterday. He still has his JP Drain in. He has to go for a Cat Scan on Wednesday morning to see if everything is okay…because the bulb it is still filling up. Hopefully, he can get it removed next Friday.
The most important thing is to help him out of bed and chairs. It’s hard for them to get up. He also, cannot bend down. Also, to wear those disposable gloves when changing the dressing on the JP drain and changing the pouch. That will prevent infections. Have him drink 2 liters of water a day. Prevents UTI’s. I have all his supplies in a cupboard in the room …the pouches, night container/and bags, alcohol pads, (adhesive remover, powder only if needed)….disposable gloves, gauze etc.
in the bathroom, I have the mixture to clean the night container and tubing. He is using Coloplast. The container for nighttime is Convatec. The insurance covers it. Your husband is in my prayers for a complete recovery and a cancer free life. I am also praying for you ….my legs were hurting after the first 2 weeks. I was not used to running up and down the stairs so much…the laundry and cleaning…..I think I over did it. The cooking. I was used to my husband being at work all day. He was high maintenance for a while. He goes back to work in a month, God willing. God bless you and your husband. We give God all the glory for showing mercy to my husband and taking him through this so well. Also, for giving me the energy and capability to help him in during this uncertain tough time.
The Visiting Nurse will come see your husband to change the pouch…check the JP drain. She will show both of you how to change the dressing and the pouch. The Nurse comes every 3 days for my husband for 2 months. Now, June 14th, my husband does everything himself….he doesn’t need my help anymore. He’s also been taking a shower since he was in the hospital. He never needed me to help him. I tried to ….but I think he wanted to do it himself. He’s very self sufficient and needs his own space and privacy.
I hope this helps. Any other questions, please feel free to message me or ask on this forum. I’m also on Inspire for bladder cancer. I get a lot of good tips there.
Blessings always…I give God all the glory for my husbands recovery. Rose xx

@skybolt robotic surgery and Yale Hospital. He’s doing well. Only thing is the JP Drain…dripping outside tube and inside tube. Thank you for asking! God bless you . Hopefully you are doing well

Hi Rose, How are things going ? My husband may go for the RC in September, he is still in neoadjuvant chemo. Two more chemo treatments before he will be done.

@skybolt Im very glad your husband has almost completed the chemo! I remember my husband ringing the bell and all the nurses on the sides when he ran to ring it. It’s a great accomplishment. Some can’t do the full line of chemo.
My husband is back to normal…pretty much. A few weeks ago he had his JP Drain removed, had his Port removed and 1 stent in his stoma, also removed. He wears a 1 piece pouch by Coloplast…he just sticks it on and changes it every 2 days. I’ve been giving him organic protein shakes since he got home. Also, organic food with high protein content. Lentil soup for fiber etc. He likes to make his own salads with organic chicken & veggies. He drinks 2 liters of Mountain Valley water each day and he’s had no UTI’s. At night he uses the Convatec container which has a tube to attach to his pouch…I think that’s how he does it…and he bought a special wash for it. He’s always been extremely self sufficient and does it all himself. By the 2nd week home…he was taking walks with me around the block…mowing the lawn….but no lifting anything. He’s been on the go a lot and has now started jogging and bike riding again. Thank God…We gave God all the Glory and Praise for the doctor finding the bladder cancer before it left the muscle…if he waited any longer to go to the urologist…the cancer would have left the bladder. Praise the Lord it didn’t metastasize. Also,Everyday we pray for all His miracles and blessing. I’ve been praying for your husband that he is NED or Cured after these chemo treatments🙏🙏🙏🙏 He does remember to rest everyday…that’s needed. He’s going to go back to his desk job soon. I hope soon…I think I might be getting on his nerves. I’m too over protective. How are you? Are you feeling tired or worrying? When I was feeling that way, I quoted scripture. If you have any questions about anything, feel free to message me. I would love to talk. God bless you and may God put His Healing Hands on your dear husband 🙏IJN Amen🙏

Rose I am so happy to hear things are going well. This is so uplifting for my husband to hear. The chemo has his Red blood cells low so he is weak and dizzy which he is not use to being. I am getting so many good tips from you . Thank you and may God continue your healing and full recovery. ❤️