Post-Intensive Care Syndrome (PICS) - Let's talk
Have you heard of Post-Intensive Care Syndrome? Sometimes it's called post ICU syndrome or PICS. PICS is defined as new or worse health problems after critical illness. These problems can affect your mind, body, thoughts, and/or feelings.
On Connect we would like to bring together people who have been affected by critical illness, and hopefully lighten the burden you bear. Patients and family members welcome.
Grab a cup of tea, or beverage of your choice, and let's chat. Why not start by introducing yourself?
Interested in more discussions like this? Go to the Intensive Care (ICU) Support Group.
Thanks for clarifying @contentandwell. I refer to that function as the @ auto-fill. I have no idea why it appears sometimes and not othertimes as one starts to type a member's @username. It should activate the auto-fill anytime one inserts the @symbol. I'll ask the tech team.
Good points @contentandwell and @colleenyoung. I'd like to see the @ auto-fill work a little more predictable as well - also sometimes it appears far below the "reply box" rather than up close and sometimes it stays in the reply box and blocks the message I am posting. The latter does not happen often, but it is difficult when it doesn't go away.
Teresa
For the past four days, I have felt more uplifted. This might be the case because I have been successful in developing routine, though I have more to do to make this truly effective for physical and emotional recovery from my health issues. I am satisfied with small steps and am thankful. Even though my health issues have been difficult while at Mayo Methodist Hospital and Mayo Clinic, I actually feel very positive about my experiences there because of the compassionate and professional employees from each Mayo department. Being part of a worshipping community where I live is also helpful.
This is such great news, @muriel66. Thank you for sharing with us. Being satisfied with small steps is so important. They make the bigger steps possible. To use a running analogy: Not everyday can be a marathon. Some days we have to count putting on the running shoes as a success. You may find these discussions on Connect to be interesting to read or participate in:
- Staying Motivated for the Long Haul https://connect.mayoclinic.org/discussion/staying-motivated-for-the-long-haul/
While this discussion started about weight loss, the group is encouraging each other whatever a person's personal health goal is.
- How Spirituality Can Help Stress https://connect.mayoclinic.org/discussion/how-spirituality-can-help-stress/
The title says it all. Lots of different people sharing many aspects of emotional and spiritual health and how it relates to physical health
Muriel, would you mind sharing one (or more) of the small steps that you've made and how it helped?
Hello everyone my name is Prashant from india sorry for my bad english.
Last year my father died in an very bad accident he suffered for 8 days in hospital. I am 30 year old i never saw my father ill not a single band aid on his body in my whole life and i last i saw my father lying on bed on ventilator and my bighest regret of my life is that he didn't say a word to me my mom and and my brother because after accident he was in coma and then my father died.
After these events i started getting angry on small things.
my whole body shakes when i lie down or sit
My eyelids twich when i close them otherwise no problem in eyes or eylids
My teeths chatter when i close my teeths otherwise my teeeths are normal no problem in them
My lips twich
At night when i touch anything with my legs or fingers things feel like floating or moving,
When i lie down my legs feels like snakes from inside.
Very severe fatigue and no sleep in my eyes but after taking some mix vitamins syrups fatigue is gone and now there is sleep in my eyes.
And also there is one thing when i search for any disease on net it feels like that i have that symptoms but like when i search for teeth chatter on net result show parkinsons and the first symptom was finger tremor when i read that my fingers started shaking but after few days there was no tremor in my fingers can this happen
@prashantnayal123 thank you for joining the conversation and for sharing your story. I am so sorry that you have experienced such a deep loss. What you are describing sounds very much in line with what others who have experienced post intensive syndrome - family or PICS-F, have shared. You went through a very significant and unexpected trauma. Our PICS page has more information on this if you are interested in learning more. Have you had an opportunity to seek any type of counseling for your symptoms?
Link to PICS page:
https://connect.mayoclinic.org/page/pics/
No mam actually i am on bed for 3 months due to leg fracture as I told i am very poor and only income earner i didn't got the chance to tell anyone about my symptoms mam i am very scared that if something happens to me who will take care of my mom and small brother mam i cry at night and when my mom and brother are not at home i dont where to gi what to do.. mam i want to take care my sweet mom she is the sweetest person i have ever seen in my life in in night i look at her when she is sleeping and cry whole night ...
Please tell me how to cure my self what to do and what type of doctor will see me is this pics curable or i will suffer my whole life
@prashantnayal123 I am so sorry for your loss. Losing a parent is always difficult. I lost my father when I was 15 and my mother when I was 27. I will always miss them.
JK