Chronic Pain members - Welcome, please introduce yourself

Hi ! I am sorry you are going thru this. I also suffer from migraines. Have you tried:
- Marijuana Gummies (low dose)
- Monthly shots - I am on Ajovy 225 mg
- Ubrelvy, 100 mg
- Ondansetron (melts under your tongue for quick nausea relief)
I would be interested in what you are taking for the migraines.
I found this mint thing that looks like a tube of lipstick. You inhale it and it helps ease pain/nausea.
I would love to share what works for you and what you have tried that doesn't work.
Take care !
Amie

Hi everyone, i am rae. does any one have paroxysmal hemicrenia? It is a severe headache. I wonder if anyone herd about it, or conquered it? Thank you.

Hey there! I’m River, and I’ve got suspected type 1 CRPS in my right ankle from an injury five years ago. I’m looking for treatment options and just generally finding others in the same boat

@seldomseen I am so sorry you are having so much pain!
I’ve never heard of these diseases, but they sound wicked.

Is there anything they can do to help you with the pain?

Hi,
My name is Peggy. I have any chronic pain suffer virtually my whole life. It started with what they called growing pains as a child that I still have to this day. I can hardly go to sleep at night. In fact, I actually dread going to bed.
I take restless, sleep medicine that helps with this, but my other significant ailment is my back. I have had two total disc replacements in L4 and L5.. I have sciatica in my left leg, in constant pain all day, long in my lower back, stream pain in my glutes down my legs to my knees. Every evening, this pain is exacerbated and I’m really not given any thing to help relieve this. Have been seen by various specialist, but not yet Mayo and I am considering it. Absolutely nothing pain at night time. I use heating pads, ice, I’ll get up and jog in place, but I’m still in so much pain.
I also have something that’s going on with me probably about eight years or so and my doctor and other specialist have yet to truly diagnose me. Body cream, cramps, arm, cramps, cramps times of the day they are extremely difficult to get rid of. In the evening, I will get cramps so bad in my thighs, hamstrings, ankles, feet, calves, I would tell you is on the scale of eight or nine on the pain scale. I can’t move and I have to endure roughly 8 to 15 minutes. I literally cry when this is going on. It does not happen every night and I have no relief from it when it happens.
I have extensive blood work done to see if I’m deficient in something, but nothing seems to show up. This is another reason why I may be visiting Mayo too.
I don’t want to stop any part of my living. I do everything and I’m extremely active. I’m just in pain almost all the time.
Sorry for this rant.

Hi All.
I’m Linda, 78, and have recently consulted a pain management physician regarding my lower back pain. X-rays show Grade 1 anterolisthesis of L4 in relation to L5 and L5 in relation to S1. Moderate degenerative disc disease at L5-S1. So, the doctor wants to do the epidural lumbar procedure & I’m wondering if this isn’t a bit premature when we haven’t tried any medications other than Advil or low dose Meloxicam and/or physical therapy etc first?? Seems like he went from zero to 10 without anything in between. Thoughts?? Experiences?? Thank you!!!

My name is Elaine and I live near Toronto, Canada.
I have lived with extreme lower back and leg pain for many years.
I have built up a tolerance to hydromorphone so the high doses I was taking no longer work. I am in the process of getting off hydromorphone slowly so I don’t go into withdrawal.
My pain doctor tried 50 mcg of Fentanyl and that did nothing.
I’m still using Fentanyl but am now trying Suboxone, which is actually a medication used to get off opioids, but has an off-label use as a pain medication.
I’m slowly titrating up to a dose which might work.
So far no pain relief. I am hopeful.
I will keep you posted.

Hi, I’m laura. I broke my neck in 1988. Initially a complete quadriplegic, I recovered some nerve functions. I have what is called central cord syndrome. I can walk, but have little function in my hands and arms. Because of Chronic pain and spasticity I had a Medtronic intrathecal catheter placed for spinal infusions of dilaudid and baclofen.

After the pump was placed had gradually worsening back pain and after 6 years had the pump removed. Later diagnosed with arachnoiditis, inflammation of the sac surrounding the Spinal cord in the area the pump was placed. It is chronic now and the prognosis for improvement slim. Also as a result of the arachnoiditis I have lost the use of my buttocks and low back muscles, so my muscles needed to keep me erect when sitting don’t work. I can’t sit for more than 20 minutes without having excruciating upper back pain. I think this is due to working muscles trying in vain to compensate for the lack of muscles that traditionally hold one in the sitting position.

Anyway, happy to have recently found this site and to be here!

Make sure to ask your doctor about side effects of the epidural, in particular arachnoiditis, an inflammation of the sac surrounding the spinal cord. It is only recently been identified as a reason patients don’t recover from spinal procedures as hoped. I have arachnoiditis from a spinal pump. It is not reversible, either stays the same or worsens with time. If I had known about it, I never have had the pump placed. Good luck!

I’ve been hoping that they would give me some kind of pain med like hydrocodone, or oxycodone or something. Can a person Max, out on pain relief with that?
I’m really sorry that you’re struggling with trying to find relief. I can relate. It sure makes life difficult.