Hi,
My name is Peggy. I have any chronic pain suffer virtually my whole life. It started with what they called growing pains as a child that I still have to this day. I can hardly go to sleep at night. In fact, I actually dread going to bed.
I take restless, sleep medicine that helps with this, but my other significant ailment is my back. I have had two total disc replacements in L4 and L5.. I have sciatica in my left leg, in constant pain all day, long in my lower back, stream pain in my glutes down my legs to my knees. Every evening, this pain is exacerbated and I’m really not given any thing to help relieve this. Have been seen by various specialist, but not yet Mayo and I am considering it. Absolutely nothing pain at night time. I use heating pads, ice, I’ll get up and jog in place, but I’m still in so much pain.
I also have something that’s going on with me probably about eight years or so and my doctor and other specialist have yet to truly diagnose me. Body cream, cramps, arm, cramps, cramps times of the day they are extremely difficult to get rid of. In the evening, I will get cramps so bad in my thighs, hamstrings, ankles, feet, calves, I would tell you is on the scale of eight or nine on the pain scale. I can’t move and I have to endure roughly 8 to 15 minutes. I literally cry when this is going on. It does not happen every night and I have no relief from it when it happens.
I have extensive blood work done to see if I’m deficient in something, but nothing seems to show up. This is another reason why I may be visiting Mayo too.
I don’t want to stop any part of my living. I do everything and I’m extremely active. I’m just in pain almost all the time.
Sorry for this rant.
@pegsj3
I want you to know I hear what you are sharing about your full time challenge with all that chronic pain. I also dread going to bed most nights. I haven't heard anyone else mention that. When I read the last lines you wrote: "I don't want to stop any part of my living. I do everything and I'm extremely active. I'm just in pain almost all the time. Sorry for this rant."
I have to tell you that's an amazing account! You are still able to do everything and are extremely active!?! To me this means you've found a way to cope with your chronic pain. I've learned that my chronic illnesses are not going away, treatment is not always helpful, but I can learn to COPE. This is how we get our lives back!
I'm thinking that night time is harder because there isn't anything to keep our minds off pain in the body.
I became a poet because I'm disabled from severe fatigue, many autoimmune illnesses. I have a short biography when I'm published: jwj9 lives with chronic disabling illness that informs her life but does not define it.
I think that might be true for you; you are informed by severe chronic pain, but it doesn't define you as a person.
Most of all I want to tell you, you don't have to be "sorry" for your ranting. At least for me, in this support group, I want to hear people's honest stories. I will not judge or ask for forgiveness because we didn't ask to have these challenges. We are not defined by illness and pain.
Please write more rants soon!