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Post-Intensive Care Syndrome (PICS) - Let's talk
Intensive Care (ICU) | Last Active: Nov 14, 2023 | Replies (597)Comment receiving replies
When I spent 5 days in ICU with sepsis, dehydration, acute kidney failure, and endstage liver disease, I was in and out of awareness. I was sometimes halfway aware of my surroundings, or activities happening to me and around me (only if I was moved, or a sudden noise). I have a partial recollection of the people and of the procedures. But I had no context time.
I have a vague recollection of being flown to another hospital. And arriving there. Although not in ICU, I was on the transplant floor at Mayo Methodist, and for the first few days, I continued to be in and out of awareness.
Later on, when I asked my husband, who is my caregiver, to explain to me what had occurred, I was shocked. So much had occurred that I didn't even realize. And on top of that , my memory of it, was all jumbled. For a while this really bothered me. But now, as time has passed, (8 years) it is not a concern to me, anymore.
Rosemary
Replies to "When I spent 5 days in ICU with sepsis, dehydration, acute kidney failure, and endstage liver..."
Once I get a Kidney I am sure we will celebrate that Anniversary. The waiting for the call is so hard.
Hi @beitel I invite you to follow the Transplants group. https://connect.mayoclinic.org/group/transplants/
In this group you can connect with addition members waiting for a kidney and recipients, along with @rosemarya mad @2011panc, who can share their wisdom and experiences.
A very good book
is You will Get Through This by Max Lucado
@beitel Thank you for responding to me. The yoga exercises I do are to improve my intestinal function and balance; maintain or regain flexibility; practice controlled breathing; and build stamina.
Here are a few of the poses I practice often: (1) The Cobra has you lie on your stomach, relax your entire body, place your hands under your shoulders, raise your head and shoulders as high as you can and hold that position for 20 seconds (a slow count to 20 or as long as you can) before relaxing. Repeat three times making sure to keep all movements slow and controlled. There are variations to this exercise but this is a good way to start. (2) The Compete Breath has you sit (floor or chair), stand or lie on your back (whatever is most comfortable for you to complete the exercise. Again you relax your entire body, begin breathing in through your nose -- filling the bottom of your lungs first (your stomach should expand), the middle of your lungs second (your ribs should expand and the top of your lungs last (your chest should expand); hold, and then reverse the inhale for the exhale, breathing out through pursed lips. Your goal is take 20 seconds to breath in, another 20 seconds to hold, and 20 seconds to exhale. (3) The Lunge begins standing (or sitting on a chair) with your feet shoulder width apart, turn your left foot to face the wall on your left side, turn your torso to face that wall and step out so that your left knee is bent but keep your shin vertical. Make this step as large as possible to stretch the right leg and work the muscles of the left leg. Hold for 20 seconds and relax to the beginning position. Then repeat for the other side. Make sure to sit or lie quietly for 5 minutes to concentrate on your body parts and how everything feels.
It is okay for your mind to wander and race until you have more healing. I highly recommend 5 minutes of meditation before bedtime to help you process the day, calm yourself and prepare for sleep. Lie down, close your eyes and relax every part of your body beginning at the top of your head. Once your toes are relaxed clear your mind and focus on one thing. That one thing can be darkness, a candle flame, a white marble or any one thing you prefer. You may drift off to sleep during this time and that is okay. My son gets anxious and frustrated at work and often has trouble falling asleep. This works for him and helps him meet the next day with a fresher and better frame of mind. This 5 minute meditation can be done sitting in a chair during the day also. It is a 5 minute break that will refresh you better than a cigarette, walk or cup of coffee.
For books, my favorite author is Steven King, so I have read almost everything he has written. If you do not like horror, though, I also like mysteries. I have trouble with my memory, so I will have to look through my books for names of other authors I have read and post that later.
I appreciate your Yoga exercise, meditation and reading ideas. I found a Youtube demonstration of the Cobra position if anyone is interested in seeing a demonstration on just how it is done. Here is the link, https://www.youtube.com/results?search_query=cobra+yoga+exercise
Teresa
@beitel, I hope your labs turn up some information that will lead to more information for you.
Hugs,
Rosemary
It was 1 yr ago today and I am OK. Hard to believe but I am staying busy and feeling grateful.
@beitel, I am happy to hear that you are doing ok today. You and your loved ones have had a difficult year. Gratitude is the perfect attitude to take forward into your next year.
Are you at work? Or 'doing your own thing' today?
Thank you so much for the great advice. I am sitting at work and started the breathing exercises, it really did feel good! I will try the others when I get home tonight. I struggle with relaxing so I am looking forward to trying something new.
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@2011panc I also have a strong faith which has grown tremendously in the last year. Little things hit me or remind me of my past and what led me here and my stomach sinks. Yesterday my youngest son,14 yrs old wanted to go for a walk. He took me to where my accident was, the tire marks and certain things are still there. I guess it is his way of trying to heal, he talked a lot about that day and his feelings since he was behind e on the 4-wheeler. It brought back a lot of different feelings. My other son , on the other hand, did not want to go but eventually did, for him he does not like to talk about any of it. I am still so confused about the events of that whole month. My depression also gets worse n the winter, especially Holidays. I pray a lot. I know I wonder off on my thoughts but I feel like my mind is 100 miles a minute. The more I try to relax the worse it gets. Is there a special kind of Yoga that you do? My counselor suggested reading a good book . Do you have any that you could suggest?