Husband newly diagnosed

Posted by momshmallow @momshmallow, Jun 8 10:21pm

My husband is only 62 and was just diagnosed with Esophageal cancer. It sounds serious and I am very frightened. I want him to go to Boston which is only 35 minutes away where they appear to have a specialty group. How long can the wait be?

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Profile picture for momshmallow @momshmallow

So, just back from Boston. Saw chief of thoracic surgery at Brigham & Women's. He has accelerated the pace of things. Says we need to move faster than what is happening in NH (where we live). He made a lot of calls, orders, and sent messages to other doctors.
There will be some procedures on Monday with the surgeon (I believe another biopsy), Dana Farber oncologist on Tuesday, PET on Wednesday, surgery for jtube insertion on Friday.
At least he will be getting some nutrition and the Boston team will have all the tests and scans needed.

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Praying for you and your husband. Sounds like y’all will have a busy week.

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Profile picture for goldenshadow @goldenshadow

Being strong for each other is so important. Hi I’m Scott I’ve had EC since July of 2024. So I don’t know what treatments you might get. So I had flot treatments that is 4 chemotherapy treatments within a two month period with 3 different chemo drugs. Then waited 5 weeks had surgery with 2 surgical teams 9 hours. Waited 4 more weeks and had 4 more chemotherapy treatments. Through all this I had a I got this attitude always positive. Also my wife, my boys and my family were the greatest support team I could have possibly had. My oncologist my surgeons all the nurses were awesome. This is the most important part of this journey. So it’s so important you trust your doctor or doctors. Ask any all questions you have. Great doctors won’t shy away from your questions. Should have a nutritionist also that will help with all your concerns about eating and keeping weight on. I had a j tube for 7 months because I couldn’t eat or drink. That was great for keeping weight on for me. That’s and option if need be. So my treatments have been done for 2 months now. Eating is getting better depending on foods. You’ll have ups and downs. But you got this!! There’s other patients on here also that can help with different aspects of this cancer. Also I’m 62!

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Thank you Scott for sharing your experience.

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Profile picture for momshmallow @momshmallow

Thank you once again. I think it was just an overwhelming day.
We are both just shocked, scared, and honestly horrified at what is happening.
I'm trying to appear cheerful, calm, and concerned.
My best friend is going to take me for a drive tomorrow so I can try to regain my composure.

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How are you both ? Ive been thinking about you.

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Profile picture for momshmallow @momshmallow

Thank you once again. I think it was just an overwhelming day.
We are both just shocked, scared, and honestly horrified at what is happening.
I'm trying to appear cheerful, calm, and concerned.
My best friend is going to take me for a drive tomorrow so I can try to regain my composure.

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Hi Shelly, how are things for you both today ? Thinking of you and Rich. It’s a struggle getting to a place where you can start and begin to feel a little more positive..you can get there…. Sending hugs x

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Just checking in Shelly hope you and Rich are doing ok. Hope the treatments you’re getting are helping. Thinking of you.

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Hello!
Friday we are supposed to have a "chemo education" class and Monday, 6/30 is supposed to be his first treatment. I am very nervous and scared for him.
I have no idea what to expect. Many folks are telling me some horrible stories of vomiting and worse. I am hoping he is strong enough to get through it.
I'm hoping for a miracle....

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I’m so sorry you’re going through this. As a caregiver myself, I think my best advice I can give you, is prepare for your doctor visit so that you write down all the questions that both the patient and the caregiver have.
As the caregiver you have to stay in the moment and take it one day at a time. For my husband and I, once we knew the whole treatment plan , we broke it down into segments, the first four sessions of chemo, etc., the next step, etc. it helps us stay in the moment and not have our minds. be overwhelmed by the enormity of everything.
Fortunately, he has been through four chemo sessions and has had minimal side effects. The most impactful was fatigue.
Best wishes God bless.

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Profile picture for momshmallow @momshmallow

Hello!
Friday we are supposed to have a "chemo education" class and Monday, 6/30 is supposed to be his first treatment. I am very nervous and scared for him.
I have no idea what to expect. Many folks are telling me some horrible stories of vomiting and worse. I am hoping he is strong enough to get through it.
I'm hoping for a miracle....

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Hello Definitely know how you feel not knowing what exactly is going to happen. So write down any questions you might have and no there is no dumb questions. You should get a binder which will have all kinds of information. Now everything in the binder will not necessarily happen to your husband. I know the waiting is hard. But getting started is some relief. Having a positive mindset is more helpful than you might think for yourself and your husband. Not easy but helps emotionally and physically and mentally. You won’t know until you actually start the treatments everyone is different. I was pretty good a little nausea but with nausea medicine I was fine. So he might do fine which I’m hoping for you guys. Also nutritionist can help along with doctors and nurses. I’ll be thinking of both of you be well and remember you can always talk to anyone here even as your starting the treatments.

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Profile picture for kmordan @kmordan

I’m so sorry you’re going through this. As a caregiver myself, I think my best advice I can give you, is prepare for your doctor visit so that you write down all the questions that both the patient and the caregiver have.
As the caregiver you have to stay in the moment and take it one day at a time. For my husband and I, once we knew the whole treatment plan , we broke it down into segments, the first four sessions of chemo, etc., the next step, etc. it helps us stay in the moment and not have our minds. be overwhelmed by the enormity of everything.
Fortunately, he has been through four chemo sessions and has had minimal side effects. The most impactful was fatigue.
Best wishes God bless.

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Thank you so much for the encouragement. I have decided that one day at a time is all I can handle without going crazy. Good to hear your husband has had minimal side effects. I hope all is going well.
Thank you again and so much for the well wishes. I send you my best as well.
Hugs!

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Profile picture for goldenshadow @goldenshadow

Hello Definitely know how you feel not knowing what exactly is going to happen. So write down any questions you might have and no there is no dumb questions. You should get a binder which will have all kinds of information. Now everything in the binder will not necessarily happen to your husband. I know the waiting is hard. But getting started is some relief. Having a positive mindset is more helpful than you might think for yourself and your husband. Not easy but helps emotionally and physically and mentally. You won’t know until you actually start the treatments everyone is different. I was pretty good a little nausea but with nausea medicine I was fine. So he might do fine which I’m hoping for you guys. Also nutritionist can help along with doctors and nurses. I’ll be thinking of both of you be well and remember you can always talk to anyone here even as your starting the treatments.

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Thank so much for checking in! The visit today was a little overwhelming. Three months for the first phase going every two weeks with evaluation before each treatment.
I am glad they are so precautious but I am hoping that things go well for him. They did mention the anti nausea meds and we will see how that goes.
They also said we would have a nutritionist and some counselors and to just call if we have any concerns.
Everyone is so kind.
Monday's the day. Last day in June....

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