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Side Effects starting on Camzyos

Posted by marigold13 @marigold13, May 12 11:43am

Just starting 5mg. First day I got really woozy an hour after, stayed in and out of that for maybe 4-5 hours, but evening felt better but felt a bit short of breath. 2nd day was better, still a bit woozy but not for long. Felt tired took a nap, felt better in the evening but again SOB. 3rd day was the best day but then late afternoon I began to get woozy and SOB. No SOB on exertion but in general. Also was told to stop Metoprolol before starting Camzyos. During the week I did notice my heart rate going into the 80s, I prefer in the 70s, feels better. BP started going up, too. Called the doc on Thursday and he said I could revert to 12.5 Metoprolol once a day and that helped. But each continuing day the woozy was ruining my day along w/the SOB feeling. Felt the need to breath deep almost all day. Best time of day was the late evening. But over the weekend I just felt like it was becoming too much, and it ruined my Mothers Day. Not seeing many posts here about being unable to handle side effects. Anyone else? Thank you.

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brumasterj | @brumasterj | Jun 14 2:15pm
In reply to @steckie "since starting camzyos, I fall asleep at a normal time 930-10:00, but have been waking up..." + (show)
@steckie

since starting camzyos, I fall asleep at a normal time 930-10:00, but have been waking up between 330 & 530 in the am and not able to fall back asleep. I was never an early riser. By 2:00 -3:00 pm I am exhausted. I have to get things done before that time because I end up on the sofa or bed resting. I was always hypothyroid and now I am the complete opposite, hyperthyroid. Doctor is adjusting my medication. I also take metoporol and valsartan, cymbalta. getting up that early makes for such a long day. I am so over it!

Jump to this post

When i first started camzyos i was having sleepless nights, im an early riser and late to bed, i was taking it first thing in the morning 5ish
I switched to taking it before bed time and it helped. I had those evenings in the beginning where i felt exhausted but that all subsided after some time.
If your able try and stay active bicycling, walking
I hope it gets better for you

REPLY
nrshields | @nrshields | Jun 14 2:57pm

Ask your doctor if you can take it at night at bedtime. My husband had same side affects and his doctor said he could take it at night. He still has a woozy or SOB problem when he first gets up but it only lasts an hour or two. After the third week he started feeling better and having more energy and less naps. Always check with your doctor first though!

REPLY
nrshields | @nrshields | 4 days ago
In reply to @marigold13 "Yes, I get it. I was feeling so fatigued and side effects popping out intermittently, I..." + (show)
@marigold13

Yes, I get it. I was feeling so fatigued and side effects popping out intermittently, I said I cannot take another day like this. After stopping I gradually went back to feeling "ok" but it sure took a while. I see it's been just one month since I started this post, and it is only now that I feel it is completely out. It def left me feeling short of breath more so. And I still feel more short of breath than I ever did before starting it. Just one week! I kept wondering if it affected my thyroid status, but I got labs and they are spot on normal. I thought maybe my TSH had gone up, but it was good at .90. I felt very shaky and I too wondered if it was making me hyper, but no I don't think so. I don't handle drugs very well. I see the doc next month. I wish you well.

Jump to this post

My husband was on 5mg for a month, he had similar problems and we called to ask if he could take his Camzyos at night instead, that helped a lot. After his first echocardiogram they decided to reduce his to 2.5mg, he’s still doing very well. I hope you can get it worked out with your doctor soon.

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