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Immunoglobulin infusion--when it's given.

Posted by fdixon63 @fdixon63, Mar 16, 2023

I've been seeing immunoglobulin infusion mentioned in different groups. I'm curious, at what point would a physician determine this is something to be done for the patient. Appreciate any input.

Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.

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lasks | @lasks | Apr 17, 2023
In reply to @mermaid7272 "I lost hair as well, doctors believe it was from the severe stress from my hospital..." + (show)
Profile picture for mermaid7272 @mermaid7272

I lost hair as well, doctors believe it was from the severe stress from my hospital stay.
If you need hair to start growing and getting strong & healthy again, try the supplement Biotin.
It caused my hair to grow back again after about 3 months. Also nails start growing)
Glad you didn't have to start IVIG treatments and happy you are on the mend!

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Fortunately, as soon as the infusions stopped my hair started growing in. Still has a way to go, but is getting there. Waiting and hoping now that the dose of CellCept I am on will keep me from getting worse. Had to cut the dose in half because of a side effect.

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lasks | @lasks | Apr 22, 2023
In reply to @mermaid7272 "I lost hair as well, doctors believe it was from the severe stress from my hospital..." + (show)
Profile picture for mermaid7272 @mermaid7272

I lost hair as well, doctors believe it was from the severe stress from my hospital stay.
If you need hair to start growing and getting strong & healthy again, try the supplement Biotin.
It caused my hair to grow back again after about 3 months. Also nails start growing)
Glad you didn't have to start IVIG treatments and happy you are on the mend!

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Thanks for the suggestion. Will try.

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richardab | @richardab | Apr 23, 2023

My IgG and IgM are really low (my IgA is high but not dangerously so). In discussions with my heme/onc, she said she would consider IgG infusions if I start regularly getting respiratory infections, which I haven't to this point.

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jacquelinegreen | @jacquelinegreen | Aug 25, 2023

My IgA is low (Iga Immune Deficiency) and my doctor is recommending Plasma Immunoglobin (SCIG) infusions. I am scared. I have seen some sites that say immunoglobin won't help with fighting infections not used for IgA deficiency. Other sites says it can help...but no cure. I am looking for someone who has used immunoglobin.
I have Bronchietasis, keep getting SIBO or overgrowth of bacteria in my gut and sinus infections, short of breath and constant infections.

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Colleen Young, Connect Director | @colleenyoung | Aug 26, 2023
In reply to @jacquelinegreen "My IgA is low (Iga Immune Deficiency) and my doctor is recommending Plasma Immunoglobin (SCIG) infusions...." + (show)
Profile picture for jacquelinegreen @jacquelinegreen

My IgA is low (Iga Immune Deficiency) and my doctor is recommending Plasma Immunoglobin (SCIG) infusions. I am scared. I have seen some sites that say immunoglobin won't help with fighting infections not used for IgA deficiency. Other sites says it can help...but no cure. I am looking for someone who has used immunoglobin.
I have Bronchietasis, keep getting SIBO or overgrowth of bacteria in my gut and sinus infections, short of breath and constant infections.

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Welcome Jacqueline. you may also wish to join the discussions in the
- MAC & Bronchiectasis Support Group https://connect.mayoclinic.org/group/mac-bronchiectasis/

@naiviv @fdixon63 @mermaid7272 @lasks @goddard @siragusas may have experiences to share about subcutaneous immunoglobulin (SCIg) therapy

What other treatments have been tried?

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jacquelinegreen | @jacquelinegreen | Aug 26, 2023

i have tried herbs, vitamins, antibiotics when i have infections. i have used Methotrexate, Humira, Remicade for autoimmune disease Ankylosing Spondylitis. I just found out about the IgA Deficiency 2 weeks ago, but I am sure I always had it. I have been complaining about my Shortness of Breath and all the other issues for years. I just found a immunologist who diagnosed it.

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jacquelinegreen | @jacquelinegreen | Sep 5, 2023
In reply to @colleenyoung "Welcome Jacqueline. you may also wish to join the discussions in the - MAC & Bronchiectasis..." + (show)
Profile picture for Colleen Young, Connect Director @colleenyoung

Welcome Jacqueline. you may also wish to join the discussions in the
- MAC & Bronchiectasis Support Group https://connect.mayoclinic.org/group/mac-bronchiectasis/

@naiviv @fdixon63 @mermaid7272 @lasks @goddard @siragusas may have experiences to share about subcutaneous immunoglobulin (SCIg) therapy

What other treatments have been tried?

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thank you

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ddowacter | @ddowacter | Jun 22 9:05pm

I have MS and have acquired steroid Induced Osteoporsis. My Neurologist said that having this is a contraindication for using steroids anymore and has told me that IVIG q 3 months ongoing as a treatment to decrease flare ups. Is this a common replacement for steroids?

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Becky, Volunteer Mentor | @becsbuddy | Jun 22 10:03pm
In reply to @ddowacter "I have MS and have acquired steroid Induced Osteoporsis. My Neurologist said that having this is..." + (show)
Profile picture for ddowacter @ddowacter

I have MS and have acquired steroid Induced Osteoporsis. My Neurologist said that having this is a contraindication for using steroids anymore and has told me that IVIG q 3 months ongoing as a treatment to decrease flare ups. Is this a common replacement for steroids?

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@ddowacter Welcome to Mayo Clinic Connect! I, too, got osteoporosis from steroid use. It took quite a few tries before I was able to come off the prednisone. I took my calcium pills religiously and went walking everyday. The endocrinologist was very pleased
I think that you might get this question answered better in the osteoporosis support group. I’ll give you the link which will take you there and you can see what all is being discussed there!
https://connect.mayoclinic.org/group/osteoporosis/. You are certainly welcome to stay with this group and ask/learn about your MS!

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penn | @penn | Jun 23 12:38pm
In reply to @ddowacter "I have MS and have acquired steroid Induced Osteoporsis. My Neurologist said that having this is..." + (show)
Profile picture for ddowacter @ddowacter

I have MS and have acquired steroid Induced Osteoporsis. My Neurologist said that having this is a contraindication for using steroids anymore and has told me that IVIG q 3 months ongoing as a treatment to decrease flare ups. Is this a common replacement for steroids?

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No. I get IVIG for Small Fiber Neuropathy, Sojgrens Syndrome. It for autoimmune

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