@johnjames Thanks for your post about your fox hole. It doesn't sound silly at all! A safe place is anywhere that we feel safe (or safer) during a crisis. Thanks for that great insight in finding a safe place even during a war. As I think about it, I realize that we all have our “war-like struggles” and to find that "safe place" is very important. Just a message to the rest of our group, @georgette12@safetyshield@jimhd @rspaulding @lesbatts@overwhelmed@ihatediabetes@johnhans, please share with the group, if you like, where your "safe place" is. Thanks to you all for your wonderful kindness and support to each other. As I've said before, you all really bless me! Teresa
I also talk to the Lord and Father every day but something that has just happened in the last few months is this growth on my tongue.
It is bitter tasting and flaky. I have been to my regular doctor who suggested it was thrush. I took the medication he prescribed to no
avail. He then sent me to a ENT specialist who gave me some kind of medication costing over a $1000. My insurance would not cover
it and with no sure signal from him I decided I would not spend the $1,000. What next? Has anyone out there experienced this?
I am starting to get concerned. I do take other medication for high blood pressure and diabeties. HELP
Thank so much Patti
@johnjames Thanks for your post about your fox hole. It doesn't sound silly at all! A safe place is anywhere that we feel safe (or safer) during a crisis. Thanks for that great insight in finding a safe place even during a war. As I think about it, I realize that we all have our “war-like struggles” and to find that "safe place" is very important. Just a message to the rest of our group, @georgette12@safetyshield@jimhd @rspaulding @lesbatts@overwhelmed@ihatediabetes@johnhans, please share with the group, if you like, where your "safe place" is. Thanks to you all for your wonderful kindness and support to each other. As I've said before, you all really bless me! Teresa
@brit Did the ENT give you a diagnosis? At times there have been meds prescribed that I felt were too expensive. What I have done is to call the doctor and explain the situation and asked him if there is another alternative med that would be less expensive. Try that approach and let us know what happens. Keep in touch @brit and let us know how you are doing. Teresa
@johnjames Thanks for your post about your fox hole. It doesn't sound silly at all! A safe place is anywhere that we feel safe (or safer) during a crisis. Thanks for that great insight in finding a safe place even during a war. As I think about it, I realize that we all have our “war-like struggles” and to find that "safe place" is very important. Just a message to the rest of our group, @georgette12@safetyshield@jimhd @rspaulding @lesbatts@overwhelmed@ihatediabetes@johnhans, please share with the group, if you like, where your "safe place" is. Thanks to you all for your wonderful kindness and support to each other. As I've said before, you all really bless me! Teresa
Hi Patti,
Sorry to hear about the issues you are having with your tongue. I recommend that you start a new discussion in the Skin Health group here: https://connect.mayoclinic.org/group/skin-conditions/ That way the moderator @kanaazpereira can connect you with other members who may have had this issue.
@johnjames Thanks for your post about your fox hole. It doesn't sound silly at all! A safe place is anywhere that we feel safe (or safer) during a crisis. Thanks for that great insight in finding a safe place even during a war. As I think about it, I realize that we all have our “war-like struggles” and to find that "safe place" is very important. Just a message to the rest of our group, @georgette12@safetyshield@jimhd @rspaulding @lesbatts@overwhelmed@ihatediabetes@johnhans, please share with the group, if you like, where your "safe place" is. Thanks to you all for your wonderful kindness and support to each other. As I've said before, you all really bless me! Teresa
Oh, just want to say something and then i will sign off. I gave my phone number to theresa and colleen. So i now can be contacted.
But i need to say one more time that i feel much safer than i did last week. To have our online community care so much and wonder if i was okay was not expected and it has so overwhelmed me with gratitude. I will definitely not do stupid things without checking in with you guys first! Blessings
Hi @ihatediabetes, There are 3 things in the message above that I would like to address separately:
1. Ground rules about suicide and self-harm
- You said "can we agree to not attempt or commit suicide while we are engaging people on mayo connect? Can we agree to not self harm like cutting or burning or hurting anybody else while we are talking to people on connect?"
- These would be great ground rules. However, as you know, this is a promise that may not be possible to keep. We cannot guarantee that no member will talk about suicide or self-harm in the Mental Health group. If someone does talk about it, I hope that the community can help in its limited way.
2. Lay people vs health care professionals
- You said "In my opinion we lay people can't substitute for professional mental health care."
- I totally agree. These discussions are peer-to-peer connections between lay people. The power of connecting with other people who have been there can be incredible powerful for healing, understanding the experience of disease, getting support with personal health goals, advocating for better care and so much more. But the discussions on Connect are not a replacement for professional medical advice, diagnosis or treatment. This is outlined in the Connect Disclaimer: https://connect.mayoclinic.org/disclaimer/
3. Managing your settings and email notifications
You can set your preferences and choose which email notifications you receive from Connect. You can set your preference in you Account Settings: https://connect.mayoclinic.org/account/
If at any time you no longer want to receive notifications from a particular discussion thread, simply click "Unsubscribe" in the bottom of the email. For more tips about following groups and setting notification preferences see this page https://connect.mayoclinic.org/get-started-on-connect/
Thank you ihatediabetes for bringing up these 3 important topics!
@johnjames Thanks for your post about your fox hole. It doesn't sound silly at all! A safe place is anywhere that we feel safe (or safer) during a crisis. Thanks for that great insight in finding a safe place even during a war. As I think about it, I realize that we all have our “war-like struggles” and to find that "safe place" is very important. Just a message to the rest of our group, @georgette12@safetyshield@jimhd @rspaulding @lesbatts@overwhelmed@ihatediabetes@johnhans, please share with the group, if you like, where your "safe place" is. Thanks to you all for your wonderful kindness and support to each other. As I've said before, you all really bless me! Teresa
A relative of mine was told she had thrush and was treated for over a year. She finally went to another doctor and was told it was cancer. Second opinions are always good. It could not hurt to try a second ENT and see what that doctor says.
I am replying to the comment you made about your car accident. That your too had a NDE experience. When I had heart surgery, I was told that the Dr's. were not sure I would recover, I was in a coma, medication induce, for 4 days. And this seems to be when I had this visitation and was given instruction and be sure to remember that I and others are loved, and that all would be good. Usually when you have heart surgery, the "breathing" tube is taken out almost immediately after recovery, but the Dr's believed that if they did I would die. I am grateful to still be alive. Although it took some hard work to recover. I was in rehab for 4 weeks. When I went home I still could hardly walk even with a walker, still had trouble speaking sentences. Then I went through Cardio Rehab, which included being wired for heart function and riding a stationary bike. I am now functioning as well as anyone with other health conditions. When I was made aware of the four days I was unconscious, I had thought that I had dreamed it, but then later I knew it was real. No one that I know personally can fully tell anyone exactly how they know. When my husband died, I read books by C.S. Lewis, Elizabeth Kubler Ross , and many, many books and articles about NDE. I wasn't sure about any of these stories, until it happened to me. This is not the end when we die to this world! And true unconditional LOVE is crucial! so everyone.....PEACE & LOVE...jj
@johnjames Thanks for your post about your fox hole. It doesn't sound silly at all! A safe place is anywhere that we feel safe (or safer) during a crisis. Thanks for that great insight in finding a safe place even during a war. As I think about it, I realize that we all have our “war-like struggles” and to find that "safe place" is very important. Just a message to the rest of our group, @georgette12@safetyshield@jimhd @rspaulding @lesbatts@overwhelmed@ihatediabetes@johnhans, please share with the group, if you like, where your "safe place" is. Thanks to you all for your wonderful kindness and support to each other. As I've said before, you all really bless me! Teresa
Johnjames, thanks so much for telling us about the pain specialist . i am praying that you will have more and more strength each day. I did not know that there are service dogs specifically for psych issues. I am going to look that up. My english bulldog serves the purpose for now. I lost my bassette hound last year at the age of 14. Long life for a bassette. My chow mix had also passed 6 months earlier. I got my puppy before gracie died because i knew i wouldn't do well when she passed. I stayed with my chow, louie, and of course with gracie as i had to make the decision to let each of them go. I still can't look at their pictures because it is still too traumatic. But louie did live 11 years which is long for his breed.
Oh...i used to work in rehab/hospice/alzeiheimers (wrong spelling there) facilities and we brought in petting zoos for our patients. We actually brought into the building and even up the elevator a llama, goat, pigs and rabbits and all sorts of unusual animals. They sat on the beds (well, not the llama and goat)! And everyone came out of their yukky mental and physical stuff they were dealing with. Even me! I carried a baby pig around all day but, unfortunately, the zoo wouldn't let me take him home. They found me hiding in a closet with him but they heard his squeeks through the door and found us.
It sounds like you have a loving wife and your comment about not wanting to leave her alone to suffer if you were "not here" is extremely compassionate and sensitive. Those who take their own lives have no idea of the life-long trauma they leave for their loved ones. It sounds like, even though you live with such mental and physical pain, you put your family first, and friends. Please keep us informed as to what is happening with you. You are definitely a role model and i feel encouraged when you share. Blessings.
Sorry this is so late- I have been answering the conversations on page 2, Thank you for such kind words and your trust- I just had surgery on both eyes- -the last surgery was this past Tuesday. But I know I will see better and be able to read long( more time). Yes, as you said ( Dogs- are such a joy and some are smarter than some people by Son told me-I hope he was kidding right) we have a our second Golden, she is family and she thinks the house is really hers- if I could only figure a way for her to pay the mortgage. My Parkinson's Doctor told me because of Agent Orange the Parkinson's will progress three times faster- well I didn't like those numbers, but I know that God is in charge of my Ticket to heaven- so we all have to keep going and support each other and ( " if I may say-also cry together")/ JJAMES
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I also talk to the Lord and Father every day but something that has just happened in the last few months is this growth on my tongue.
It is bitter tasting and flaky. I have been to my regular doctor who suggested it was thrush. I took the medication he prescribed to no
avail. He then sent me to a ENT specialist who gave me some kind of medication costing over a $1000. My insurance would not cover
it and with no sure signal from him I decided I would not spend the $1,000. What next? Has anyone out there experienced this?
I am starting to get concerned. I do take other medication for high blood pressure and diabeties. HELP
Thank so much Patti
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Helpful -
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2 Reactions@brit Did the ENT give you a diagnosis? At times there have been meds prescribed that I felt were too expensive. What I have done is to call the doctor and explain the situation and asked him if there is another alternative med that would be less expensive. Try that approach and let us know what happens. Keep in touch @brit and let us know how you are doing. Teresa
Hi Patti,
Sorry to hear about the issues you are having with your tongue. I recommend that you start a new discussion in the Skin Health group here: https://connect.mayoclinic.org/group/skin-conditions/ That way the moderator @kanaazpereira can connect you with other members who may have had this issue.
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1 ReactionThank you so much for your "swifty" reply. I will contact the mayo clinic group and see what they say. Thanks again
Patti
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1 ReactionHi @ihatediabetes, There are 3 things in the message above that I would like to address separately:
1. Ground rules about suicide and self-harm
- You said "can we agree to not attempt or commit suicide while we are engaging people on mayo connect? Can we agree to not self harm like cutting or burning or hurting anybody else while we are talking to people on connect?"
- These would be great ground rules. However, as you know, this is a promise that may not be possible to keep. We cannot guarantee that no member will talk about suicide or self-harm in the Mental Health group. If someone does talk about it, I hope that the community can help in its limited way.
2. Lay people vs health care professionals
- You said "In my opinion we lay people can't substitute for professional mental health care."
- I totally agree. These discussions are peer-to-peer connections between lay people. The power of connecting with other people who have been there can be incredible powerful for healing, understanding the experience of disease, getting support with personal health goals, advocating for better care and so much more. But the discussions on Connect are not a replacement for professional medical advice, diagnosis or treatment. This is outlined in the Connect Disclaimer: https://connect.mayoclinic.org/disclaimer/
3. Managing your settings and email notifications
You can set your preferences and choose which email notifications you receive from Connect. You can set your preference in you Account Settings: https://connect.mayoclinic.org/account/
If at any time you no longer want to receive notifications from a particular discussion thread, simply click "Unsubscribe" in the bottom of the email. For more tips about following groups and setting notification preferences see this page https://connect.mayoclinic.org/get-started-on-connect/
Thank you ihatediabetes for bringing up these 3 important topics!
-
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Helpful -
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2 ReactionsA relative of mine was told she had thrush and was treated for over a year. She finally went to another doctor and was told it was cancer. Second opinions are always good. It could not hurt to try a second ENT and see what that doctor says.
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Helpful -
Hug
1 Reaction@johnhans To get a second opinion from another ENT is a great idea for @brit Thanks for the suggestion!
I am replying to the comment you made about your car accident. That your too had a NDE experience. When I had heart surgery, I was told that the Dr's. were not sure I would recover, I was in a coma, medication induce, for 4 days. And this seems to be when I had this visitation and was given instruction and be sure to remember that I and others are loved, and that all would be good. Usually when you have heart surgery, the "breathing" tube is taken out almost immediately after recovery, but the Dr's believed that if they did I would die. I am grateful to still be alive. Although it took some hard work to recover. I was in rehab for 4 weeks. When I went home I still could hardly walk even with a walker, still had trouble speaking sentences. Then I went through Cardio Rehab, which included being wired for heart function and riding a stationary bike. I am now functioning as well as anyone with other health conditions. When I was made aware of the four days I was unconscious, I had thought that I had dreamed it, but then later I knew it was real. No one that I know personally can fully tell anyone exactly how they know. When my husband died, I read books by C.S. Lewis, Elizabeth Kubler Ross , and many, many books and articles about NDE. I wasn't sure about any of these stories, until it happened to me. This is not the end when we die to this world! And true unconditional LOVE is crucial! so everyone.....PEACE & LOVE...jj
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Hug
3 ReactionsI Agree, my tongue issue was not diagnosed and turned into cancer.<br><br>
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1 ReactionSorry this is so late- I have been answering the conversations on page 2, Thank you for such kind words and your trust- I just had surgery on both eyes- -the last surgery was this past Tuesday. But I know I will see better and be able to read long( more time). Yes, as you said ( Dogs- are such a joy and some are smarter than some people by Son told me-I hope he was kidding right) we have a our second Golden, she is family and she thinks the house is really hers- if I could only figure a way for her to pay the mortgage. My Parkinson's Doctor told me because of Agent Orange the Parkinson's will progress three times faster- well I didn't like those numbers, but I know that God is in charge of my Ticket to heaven- so we all have to keep going and support each other and ( " if I may say-also cry together")/ JJAMES
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Helpful -
Hug
1 Reaction