Dealing with adult son with mental health: Parents want to share?

Posted by briarrose @briarrose, Oct 6, 2024

My 39 y. o. son suffered 2 major losses since April 2022 & has never been the same since. He is under the care of a psychiatrist & taking trintellix & adderall which are not helping. Gradually he became more & more isolated and suspicious of all - including his parents. His therapist for 2 years recently started a new position so he has none. And not interested in getting another. I believe he checks off almost every symptom of Paranoid Personality Disorder. I live in the east, he's in the midwest, not married, living alone. I must walk on egg shells with him, an innocent remark becomes an argument. He is never wrong, but everyone else is. Recently we had a blow up over the phone, he didn't like the way I asked him a question, saying I was "abusive"...he now refuses to have any contact with me. He is my only child, our entire lives we have always been so close. His Dad & I are divorced for 17 years. His relationship with him, worse than mine. Hasn't seen him in 1 yr. I am so depressed & heart-broken. I have reached out kindly to him since the blow up & no response. I can't talk to his psychiatrist due to HIPPA laws but thought I could...but he can not talk to me about him. His mental health clinic will not allow it. He did a complete 360 with his life, unrecognizable to everyone who knew & loves him. He is very paranoid. I don't know what to do - how to help him and the longer he doesn't contact me the worse it will be.
This is impacting my entire life...I am 69 y.o. and so very sad my beautiful son has now developed this truly awful personality disorder.
Any thoughts from other Moms going thru this, greatly appreciated.

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Thank you so much for sharing your stories. It is so helpful to hear that I'm not alone in this "journey".

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@jdsniff

how can i join this group?

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@jdsniff, you are following the group now and will receive notifications when new posts are made. Do you have an adult child dealing with mental health issues?

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My adult son’s mental illness is stealing his lovely life away from him. I had to stop taking calls and texts because of abuse … which never would have happened w/o the effects of pts and bipolar. He slipped out of the country because he became so weary in dealing with the court system. I hear from family and friends periodically who want to know why he would be contacting them for money and if it’s a scam. Every time I need to explain and apologize … and realize I have no control the situation leads me to such a dark place. In taking care of myself and of course reading every thing I can get my hands on… I find it almost impossible to find peace or even mobility. I guess I am physically , emotionally, spiritually, psychologically stunned. It feels like it’s too big to be true. I feel like life has given me a situation I cannot reconcile. Days like today when I have been unable to move off the couch except for taking care of myself. There was a time when I could not do that. My undoing is when I realize the terrifying situation he is in with all the relationships his mental illness has destroyed. I would rather be dead than to feel the pain I perceive he is dealing with. My own mental health becomes an issue.

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@suesea

Hello. I'm not a parent with a child in your situation. I'm a child that has gone through years mental health issues and I have a master's in psychology. First, your son loves you. It sounds presumptuous, but he is hurting and so he is lashing out. It doesn't mean he doesn't still love you or need you, and I'd suspect he hates that his life is causing you stress and pain.

I was a straight A student and athlete in University when I had a breakdown. I became paranoid of even the fumes coming through the vent in my dorm room. I was a residential advisor at the time, helping others adjust, while I was silently falling apart. This started after major losses in my life - divorce and death of loved ones, but in all reality, due to trauma during my childhood, I had struggled with feelings of being alone, or lonely, even with others.
Eventually, I reached out for help after a drastic attempt to take my life. It was a pressure that built up in me so great that I couldn't handle it or cope. I'm now older and looking back. The only thing that my family or friends could do to help is simply be there, listen, and try to be as understanding and supportive as possible. It may be you can't reach him through rational means and common sense conversation -- and definitely not with the old school "pull yourself up by your own bootstraps" speeches. My Dad was strict, military, and mental illness was simply weakness. I've since learned that's not the case at all.
What children experience during developmental stages of brain development does impact brain structure. Trauma can permanently change the brain - abuse, verbal and physical, stress, and so many things affect brain development. Sometimes, the trouble doesn't fully present itself until later in life. It may be a type of survivability where we are impacted by trauma and can only cope with it years later as adults. Children, although people say they are resilient, are sponges and the brain wires itself to survive.
Obviously, I don't know your son's history, but if he had a difficult time as a child, tried drugs, or other unhealthy coping mechanisms, it only compounded and complicates life when we try to fit into society as "normal" functioning adults later.
I would recommend continuing to just love him and listen to him without criticism or judgement. He is probably trying to fight through an inner struggle that he may not even be able to put into words.
Also, please don't only assume that depressive or irresponsible behavior is simply something a pill will remedy. I've tried so many medications and very few helped. One thing that is good is genesight therapy. It's a test that a primary doctor can order that will let him know what medications will work the best with his genetic makeup. That way he won't feel like a test subject while cycling through ineffective options.
I was recently diagnosed with Frontotemporal Dementia. This illness presents with behavioral problems, and it can be mistaken for mental illness. I was diagnosed bipolar (among other things by therapists who just really want to put a label on behavior and send you off with a pill). It may be an MRI of his brain would be helpful to see if anything more is underlying his emotional and behavioral difficulties. A neuropsychologist might be a good option for him. Frontotemporal Dementia can start at a younger age. I'm not saying this to say that's what it is or to cause you further concern, but to let you know there can be more going on in his brain that is causing behavioral changes, and it is worth investigating.

I hope he comes around soon to you to comfort you and let you know he loves you. Please realize that depression can suck you into a completely warped and self-absorbed world where you are simply struggling to survive each day, so it becomes harder and harder to be thoughtful of the needs of others because it feels impossible to add more to the load your already carrying. I'm not sure if I should send this to you because it's not really my place, but as a child whose been through hell, I can say I never stopped loving my parents. I just hated myself, my thoughts, my struggles, my anxiety, and the paranoia. Nobody wants to live that way or be seen that way, so we withdraw. However, your love is a strength to him -- even if he doesn't show it. It's not fair; it's difficult for both of you. Just please hold on and be there for him -supportive, kind, patient, and without judgement. I'm a Christian, so I will say pray for him, don't quit on him, it's a rough road, but you can make it through in time. I hope in some way this was helpful.

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Thank you. I appreciate your perspective and I do hope my son, in some way, knows that he has always been unconditionally loved by me, his mom. He was the light of my life and I miss him desperately. I do pray fervently and I thank you for your sharing. God bless you.

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@cowgirl1953

My adult son’s mental illness is stealing his lovely life away from him. I had to stop taking calls and texts because of abuse … which never would have happened w/o the effects of pts and bipolar. He slipped out of the country because he became so weary in dealing with the court system. I hear from family and friends periodically who want to know why he would be contacting them for money and if it’s a scam. Every time I need to explain and apologize … and realize I have no control the situation leads me to such a dark place. In taking care of myself and of course reading every thing I can get my hands on… I find it almost impossible to find peace or even mobility. I guess I am physically , emotionally, spiritually, psychologically stunned. It feels like it’s too big to be true. I feel like life has given me a situation I cannot reconcile. Days like today when I have been unable to move off the couch except for taking care of myself. There was a time when I could not do that. My undoing is when I realize the terrifying situation he is in with all the relationships his mental illness has destroyed. I would rather be dead than to feel the pain I perceive he is dealing with. My own mental health becomes an issue.

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I more than understand you completely. I am in your shoes. A beautiful, wonderful, kind, fun loving & so smart - my dearest only child - my son has disappeared. I too feel I see no end in sight, his life at this point, so destroyed. I have no hope he can return to what he was…& my health has suffered too. Seeing a therapist who is only helping to a point. Her children are all great. My son knows how stressed he has made me. Why would he ask me twice “I gave you cancer”. Diagnosed in February this year. He never listens to me, his life a complete isolation & he has tons of friends. Estranged from his father (we are divorced) my extended family & his father’s as well. So paranoid & thinks the worse of everyone. I am his only friend now. So I walk on eggs with him, not wanting to destroy our relationship but I feel I am an enabler. I simply can’t lose him altogether. I would be beyond sick myself. I don’t have any answers except to take care of yourself the best you can. And don’t give up on prayer.
Nothing stays the same forever. Nothing.
All the very best to you. I am with you in spirit.

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We were so fortunate to have had so many years of a loving mother/son relationship. I remind myself that those mentally healthy years were so fun and productive and rewarding and promising. And life dealt us a card that changed our lives totally. I’m so very sad about losing what we had. I look at the devastation and the years we have tried desperately to find healing… and of course I am shattered. So I try to surmise how I might be able to express my love for my son within these horrific confines. I know that he would not want me to be shattered and ruined. And I know that God wants me to Trust Him and continue to live my life to honor Him. And, because I love God, it’s so important for me to be present and loving to others in my life. And I understand that I must love and take care of myself in order to honor God. I’m quite sure I would have committed suicide if it were not for my Faith. So if I’m going to understand all that… then I guess I have to figure out what that looks like.
So far it seems like lots of devotionals, Sunday School Class… worship service, VBS, volunteer kitchen work. Yoga class. Today I was invited to come and join the mah jong girls. It’s my own terrible secret that I don’t want to do any of this and I don’t enjoy the seemingly senseless chatter of All this. But while I spent 3 1/2 hours trying to learn the game and be socially acceptable… I was able to be fully engaged and even “lost” in doing my best to do my best. My son would be so happy to see me try to overcome such odds.
And even today I imagined that he is also doing his best to do his best. I’m so grateful that we can share this pain and encourage each other. We got to love them and have them love us and we will always be their mom. And you and I can always pray for each other and hope that a little something could pop up like this to make our lives a little more bareable. Thank you. And I am so sorry for your excruciating pain…I know God has allowed us to share and take some comfort in knowing that we are trying to glorify Him … even in our pain and struggle. Love of Christ.

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