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Mayo Clinic For Parkinson’s
My sister diagnosed with Parkinson’s. It took us almost 3 years to get a proper diagnosis . We live in NJ and have found a Neurologist who will be treating her here …. She is 61 years old . I’m questioning if I should take her to the Mayo Clinic and asked his opinion and he said what are you hoping g to gain from it ??? I don’t know . Something more than watching her get worse and take dopamine? Is it worth it . What gave been peoples experience?
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It never hurts to get a second opinion! Is the neurologist that you have an MDS? I live in another state very close to Minnesota and I got a second opinion. I have a very good neurologist. He has an MDS and he’s very up on his field, he actually thanked me for getting a second opinion!
I don’t know the answer to that question if he has MDS . But when I asked him if it was worthwhile he didn’t mind but made me feel like it would be a waste of time and money for the same diagnosis. But im trying to see if they would have other treatment choices as she moving forward on the illness pretty quickly.
I just really want to know if I go there for a wk as they said 7 to 12 days and put her through all that would I feel going to the Mayo Clinic was a smart thing to do . Is there exam that extensive ?
Anyone who went to the Mayo Clinic from another state for Parkinson’s. Please tell me your experience?? Is it worth it ? Is it that extensive ? Do you feel it helped at all ?
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1 ReactionTagging a few members who have been to Mayo Clinic for a second opinion related to Parkinson's or who have considered it @vicwilbanks @mariemarie @glentitterington @oronogo @joanneeckert @alistair01 @21amy @sillyblone @terrirussell @melnicole and @hopeful33250 may also have some thoughts to offer.
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1 ReactionDo you yourself know what happens on that first visit and how extensive is the exam ?
@booplagirl3 - I honestly do not know all the specifics about a visit to Neurology for Parkinson's. What I'd suggest would be to use this link about getting a second opinion and ask about the information you are looking for http://mayocl.in/1mtmR63.
The information I’m looking for is to see if it’s worth bringing her to the Mayo Clinic and what people who have done that feel afterward ? Is it worth it to bring you sick family member there .
Hello @booplagirl3
It is a good idea to go to a Parkinson's Center of Excellence if you have a diagnosis of PD. Mayo Clinic is a Parkinson's Center of Excellence. The contact information for Minnesota, Arizona, and Florida can be found here http://mayocl.in/1mtmR63.
While I have not been seen at Mayo, other members on Connect have been there to confirm a diagnosis and/or to find a good treatment plan.
Are you seeking a second opinion for a correct diagnosis or to find better treatment plan?
My sister is struggling taking dopamine as she believes it makes her worse . 2 Drs have said it’s PD and tried different variations of the medication and one faulting her that she just needs to take it regardless as her symptoms are progressing. He also implied it’s PD what will I want from the Mayo Clinic . I ask myself is it worth it to push her to go ? Or will they just say it’s PD . I can’t seem to find someone to tell me there experience going there and it’s lot of effort to take a sick person there so I just want to make sure I’ll gain something in helping her if I put her through getting her there.