Wildly fluctuating O2 levels

It took a muscle biopsy to find the mitochondrial dysfunction and myopathy. Hopefully you don't have to go that route!

Mine woke me up too! I changed settings to not be woken up. Mine uploads to my computer and I have the reports to show what happens

I thought it was a good idea to be woken up originally, but sleep is precious so I will turn it off when sleeping now.

I know that readings when you sleep are lower.
I have an Apple Watch I can use, but I also have a pulse-oximeter.

I had ACDF surgery on cervical spine this past Monday and my oximeter readings are up and down and it beeps at me when it drops below ideal levels. It is very scary because I am breathing normally (or so I think) and not sure if it is due to the irritation of my trachea when being intubated. I have fired a doctor for putting in my record hypochondriac and treating me disrespectfully when I was suffering from being misdiagnosed for degenerative cervical myelopathy which is spinal cord compression injury. It caused many symptoms below my neck and improved after ACDF surgery but I have residual permanent spinal cord injury due to the delay in treatment (my 4th surgeon finally properly diagnosed me and explained to me what was behind all of my symptoms…finally validated!).

Here is what AI came back with to the original post. I was curious how it would respond and wanted to share:
“I'm sorry to hear that you're experiencing such distressing symptoms. Fluctuating oxygen levels can be concerning, especially when they vary significantly. Here are some points to consider regarding your situation:
1. Understanding Fluctuating O2 Levels
Causes: Fluctuating oxygen saturation levels can be caused by various factors, including lung conditions, heart issues, or even anxiety. In your case, the restrictive lung disease indicated in your pulmonary function tests (PFTs) may be contributing to these fluctuations.
Measurement Variability: Finger oximeters can sometimes provide inaccurate readings due to factors like poor circulation, nail polish, or movement. It's essential to ensure that the device is used correctly.
2. Importance of Medical Evaluation
Follow-Up with Specialists: Your upcoming appointment at Mayo Clinic with a pulmonologist is a crucial step. They can provide a more comprehensive evaluation and may conduct additional tests to determine the underlying cause of your symptoms.
Documenting Symptoms: Keep a detailed record of your oxygen levels, symptoms, and any triggers you notice. This information can be valuable for your healthcare providers.
3. Managing Anxiety and Stress
Mental Health Support: It's understandable to feel scared and depressed when dealing with health issues. Consider seeking support from mental health professionals who can help you cope with anxiety related to your symptoms.
Support Groups: Connecting with others who have similar experiences can provide emotional support and reassurance.
4. Emergency Situations
When to Seek Help: If you experience severe symptoms, such as difficulty breathing, chest pain, or persistent low oxygen levels, it’s essential to seek emergency medical attention, even if previous visits did not yield answers.
5. Advocating for Yourself
Communicate Concerns: If you feel that your concerns are not being taken seriously, it’s important to advocate for yourself. Be clear about your symptoms and how they affect your daily life.
Conclusion
Your experience is valid, and it's important to continue seeking answers and support. The upcoming appointment with a pulmonologist may provide you with more clarity and potential treatment options. In the meantime, focus on managing your anxiety and maintaining open communication with your healthcare providers.”