Looking to connect with people who have non-diabetic neuropathy

Posted by Ann broussard @user_ch98d0b5c, Aug 6, 2018

Would. Like to find people with this issue

Interested in more discussions like this? Go to the Neuropathy Support Group.

@japanjim

I found that stretching seems to agitate the nerves and makes the pain and needles worse. Everyone is different. I have a bottle of ALA and it says to take 2 tablets on an empty stomach, and 2 total 1,500mg. I have not tried it yet. Maybe I should start with just one. Have you noticed any difference with it? If so, after how long? Thank you.

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I haven’t taken ALA, but others in this group have and found it helpful without side effects.
It’s something sim thinking about taking myself.

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I plan to ask my neurologist about that on Wednesday.

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@arv10

Wonderful, that no pills. I am trying same. May I ask where do you buy your ALA 600Mmg from and brand ?
Regards
Arvin

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Purchased online via Amazon. The brand for my R-Alpha Lipoic Acid is "Immunovites. (Contains no S-ALA.)

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i will e mail you about the soft wave treatment , and what it was like. Keep in mind, from many Drs over all my years, i have learned one thing..........if a Dr., doesn't really know anything about a certain treatment, or supplement. many seem to simply say...........it won't help, it's a waste of money...............if yours says the same thing, hmmm............don't give up your search, just because of an answer like that............years ago, a co workers husband was told he needed by pass surgery.........i gave her a book to give to him..........they both read it.....the wife said, this therapy is what my husband wants .......i gave her the name and phone no of one of the dr.s who use an alternative treatment......chelation , after his treatments, his original dr., after his testing said.........it looks like you Never had a heart problem, he was cured..................so don't give up..........

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As there are many forms of neuropathy, there are many ways that individuals find relief for me as I’ve stated before it’s 1500 mg of gabapentin and 100 mg of pregabalin a day I walk at least two or 3 miles a day I stretch do three sets of 50 pushups a really good hot shower in the morning. It’s relieves the muscles that have tightened up overnight. Also take ala and methylene blue, and for the most part can function normally, and even some days forget that I even have neuropathy and that’s autonomic neuropathy. My symptoms still ricochet through my body, making their presence known I do have days when the mental aspect of this totally keeps me down, so yes, it’s a struggle, but as I said, at the beginning of this comment since the effects of neuropathy vary from person a person we must treat it as best we can using whatever tools necessary to make this chronic condition palatable at this point in time I feel very fortunate compared to a lot of the Post's by people I have read so we do what we can and hope for the best

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@arv10

Wonderful, that no pills. I am trying same. May I ask where do you buy your ALA 600Mmg from and brand ?
Regards
Arvin

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I have had neuropathy for 1 year. I believe ii is coming from my lumbar stenosis. I do Physical therapy and stretching that helps for the moment. Having tingling, burning and numbness in my calfs, feet and toes, especially when standing straight and walking. When severe, balance is an issue. Had epiderals that did nothing. Wear back brace at home as movement is limited. Use tens unit. Looking into stimulator implant. Trying to avoid laminectomy. Neurologist prescribed Lyrica but I have kidney issues and take weak prescription. Happy to converse and wish all betters days.

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@japanjim

I just bought a bottle on Amazon. I haven't taken any yet. I am only taking Gabapentin and it looks like there is no interaction. I am also taking Nervive, but don't know if it has any affect. The tablets are 750mg each of Alpha Lipoic Acid. Just by coincidence, I see the neurologist Wednesday for the yearly check. I actually forgot the appointment. He only checks and tells me I am getting a bit worse. But he will surely know about ALA, so I will wait to see what he says. Thank you!

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I take Healthy Feet and Nerves by Terry Naturally I buy on amazon. Worth every penny. I took one a day the first week and noticed relief and was able to sleep better. Now I take it every other day. I’m 5’1” 120 lbs so I don’t need big dose.

I also take a lot of other supplements too. Multivitamin, extra B vitamins, R-ALA, Bromelian, C, Calcium, D+K. I still have to take Gabapentin 2-3x day but at least I only get up 1x a night now to pee instead of 2-3x because of the nerve pain in my feet. Restless legs is about gone. I plan to always stay on these supplements. I also don’t have any sugar or other food after 8pm and I drink only decaf green tea and coffee. Hope this helps

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@andyjustin

As there are many forms of neuropathy, there are many ways that individuals find relief for me as I’ve stated before it’s 1500 mg of gabapentin and 100 mg of pregabalin a day I walk at least two or 3 miles a day I stretch do three sets of 50 pushups a really good hot shower in the morning. It’s relieves the muscles that have tightened up overnight. Also take ala and methylene blue, and for the most part can function normally, and even some days forget that I even have neuropathy and that’s autonomic neuropathy. My symptoms still ricochet through my body, making their presence known I do have days when the mental aspect of this totally keeps me down, so yes, it’s a struggle, but as I said, at the beginning of this comment since the effects of neuropathy vary from person a person we must treat it as best we can using whatever tools necessary to make this chronic condition palatable at this point in time I feel very fortunate compared to a lot of the Post's by people I have read so we do what we can and hope for the best

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I noticed that walking helps more than anything. It turned hot in Florida, and my dog does not want to walk. It was then I started noticing a big increase in pain. She walks a bit, but not enough, so I started using a treadmill in an air-conditioned gym. Unfortunately, stretching only irritates my neuropathy. I think we all have to keep trying different things.

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@arv10

Wonderful, that no pills. I am trying same. May I ask where do you buy your ALA 600Mmg from and brand ?
Regards
Arvin

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I ordered ALA from Amazon. Have been taking it for3 months. It has, along with Magnesium glyconate, really helped my leg pain. No longer taking Gabapentin or Lyrica.
Give it a try. Cheers

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