Looking to connect with people who have non-diabetic neuropathy

Posted by Ann broussard @user_ch98d0b5c, Aug 6, 2018

Would. Like to find people with this issue

Interested in more discussions like this? Go to the Neuropathy Support Group.

I love this site. It helps us ease the pain from lots of ailments. In this case, I am talking about combating PN. It helps to be able to ask here, what have you tried?" What are you using? What helps the most? Here at this helpful site we can get experienced responses! Nothing works the same for everyone, we know that! Most of the time, we must keep searching! My PN arrived to me, without any helpful information known at that time in the late 80's. I first followed one Doctor's diagnosis and had surgery, which was a complete failure. That caused me to walk on my heel for an entire year! Yep, that created more medical, (now hip) problems! We know how different we all respond to the same "good medicine", but we all have to keep trying to find our own solutions! My PN forced me to change careers. The amount of pain with PN we know is great. I have seen many doctors, and even had surgery that failed, The problem is we all will have to try a bunch of different "recipes" before finding the one that works for that particular person's pain AND that kind of PN. " We still don't know enough about it. Most drugs have some side effects for me, but during the day it is worth the trade off! . At night, I can only sleep if I have used THC cream or ointment on my feet to quiet down my foot pain. We all keep learning, so keep trying, there will be something you will find that helps! Best luck to all!

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@bennettrory

I have non diabetic neuropathy. Numbness from my lower back down. I'd like to connect with you and we can share each other's stories. Thank you

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I, too, am in the non-diabetic group. In fact, my neuropathy has yet to be connected to any underlying symptoms. Some autoimmune diseases like RA, lupus and others have been ruled out. I do not have numbness--mostly tingling in my feet and shins and sometimes a rope burn feel in my arms--that comes and goes. Physical therapy has been great for me--I had some muscle wasting so I am enjoying the challenge of trying to rebuild my body. I sometimes get a bit of fatigue and any soreness--which is not painful--I attribute this to my body trying to rise to the challenges. If you have any ideas about anti-inflammatory foods I am all ears. I am cutting back on sugar and some dairy. All in all, my life has changed and I, like you, am trying to cope.

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I was diagnosed with length dependent sensiromotor neuropathy a few months ago. I was diagnosed with a compressed nerve which is chronic. I was surprised to hear about the neuropathy. My understanding is that it is progressive. I became quite depressed but now I am feeling pretty good with acceptance. I walk with foot discomfort. It is difficult to do much else. I am on Gabapentin which niw seems ti be helping. Physical therapy seems to be helping the compressed nerve issue but not the neuropathy.

I wonder what other people's experience is with this?

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@davidmoll

I was diagnosed with length dependent sensiromotor neuropathy a few months ago. I was diagnosed with a compressed nerve which is chronic. I was surprised to hear about the neuropathy. My understanding is that it is progressive. I became quite depressed but now I am feeling pretty good with acceptance. I walk with foot discomfort. It is difficult to do much else. I am on Gabapentin which niw seems ti be helping. Physical therapy seems to be helping the compressed nerve issue but not the neuropathy.

I wonder what other people's experience is with this?

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As a lot of people on this site I developed neuropathy through receiving chemotherapy. I have had it for 7-8years. I use gabapentin. Not much else helps. Since yours is so new have you tried acupuncture?

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@crissma

As a lot of people on this site I developed neuropathy through receiving chemotherapy. I have had it for 7-8years. I use gabapentin. Not much else helps. Since yours is so new have you tried acupuncture?

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That is a good idea. I wonder where you experience symptoms after 8 years?

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I am just curious about progression issues.

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