Looking to connect with people who have non-diabetic neuropathy

Posted by Ann broussard @user_ch98d0b5c, Aug 6, 2018

Would. Like to find people with this issue

Interested in more discussions like this? Go to the Neuropathy Support Group.

@andyjustin

I have nine diabetic autonomic neuropathy, diagnosed 2 1/2 years ago plainly life-changing based on my symptoms, which are progressive, but are being maintained by medication. I understand that the future I anticipated is no longer in the future. I will live every day another and just adjustment learning to live with my symptoms. Some days are better than others my symptoms come and go they run the gamut. . Some days are better than others my symptoms come and go they run the gamut anywhere from tangling. to problem swallowing concentrating a bit with my balance arbitrary changes envision hearing bodily functions they come and go. They’re like bad relatives. They keep coming back even though you don’t want them to important to keep some sort of sense of humor and a positive outlook even in those dork moments they come and go to sharing on this website seems to help me by hopefully helping others who who are experiencing the effects of neuropathy to all have a good day and keep your head up and your spirits

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That’s funny. I thought I was the only person who described them as bad relatives 😃

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@cb3

There is always hope. Believe that. Are you seeing a physical therapist?

I'm on the TENS crusade right now. I'll be receiving my TENS unit from Amazon today. TENS is an electrical stimulator that can help reduce pain, and because of that, I believe it can help with mobility: your mobility. There are many people at this group that use TENS with positive results. I suggest you search TENS here and read the messages. It's a hot topic right now. And I am so eager to try out my unit today and see if the neuropathy in my feet goes away, so I can walk and exercise with ease. Keep the faith. Hugs, CB

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DOES THE WHETHER AFFECT

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@kathieb48

I also have PN, not related to diabetes. Has anyone had vision problems (double vision) or hearing problems due to neuropathy? I'm trying to figure it out.

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Hello Kathie,
I think we all need to remember and remind ourselves that neuropathy is a very weird condition and not too well known by medical providers. There are no concrete causes and definitely no treatment. Each person will have different symptoms. However, funny you should mention vision as I just saw my neurologist on May 1st for the second time and it's the second time she's telling me to go to an ophtalmologist. I'm in the midst of making an appointment and just waiting for the neurologist to put in a referral so I can get a sooner appointment than July.
As for hearing, I've had pulsatile tinnitis in my left ear for a number of years now. I have no idea if neuropathy exacerbate that. So far I have not looked into it.
Wishing you the best and take care,
gus

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@3740

DOES THE WHETHER AFFECT

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I don't know if weather affects neuropathy. I've never noticed any difference in pain, etc. when it's cold outside.

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