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Autoimmune attacking my lungs

Autoimmune Diseases | Last Active: Jun 17 10:51pm | Replies (39)
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Profile picture for dianececile1 @dianececile1

Hello, I am new to this group. Recently diag. with lung disease. It is something that women over 65 get from grass, dirt and other outside things. I have many polyps in both lungs also thick mucus. I am currently on nebulizer twice a day albuterol and saline solution. Also have a what I call a huff instrument which is supposed to loosen up mucus. So far nothing is happening. Anyone else having the same problem? Thank you for any help you can give me

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Replies to "Hello, I am new to this group. Recently diag. with lung disease. It is something that..."
Becky, Volunteer Mentor | @becsbuddy | Jun 17 8:56pm

@dianececile1 Welcome to Mayo Clinic Connect! What autoimmune disease do you have that may have sparked this?
Here is another support group on lung disease the may help you.
https://connect.mayoclinic.org/group/lung-conditions/
Members in this group may be more able to help you with the different devices you mention.

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Sue, Volunteer Mentor | @sueinmn | Jun 17 10:51pm

I think I might know what the doctor is diagnosing. Let me see if he used any of these terms - bronchiectasis, MAC or MAI, "Lady Wyndeme Disease" or "gardener's lung"?

The symptoms you describe are bronchiectasis, the official name for the disorder. There are many of us here on May Connect in the support group called "MAC &Bronchiectasis " https://connect.mayoclinic.org/group/mac-bronchiectasis/
An excellent place to start is here:
https://connect.mayoclinic.org/discussion/resources-for-the-abcs-on-bronchiectasis-and-mac-ntm/
It looks like you have a smart doctor (pulmonologist? ) who is knowledgeable about the condition, since they have already recommended one of the pillars of staying healthy with this condition- Airway clearance (using the nebs plus the device to get the mucus out.

There is much to learn about staying as healthy and strong as possible with damaged lungs. Please click on one of the links in this post and join our group. You will find our members helpful and encouraging. You might want to join one of several ongoing discussions on airway clearance.

Did the doctor also take a sputum culture to see if you might have a lung infection?

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