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C5-c6 sponal cord compression surgery svhedule got dvt and pe

Posted by bujanowicz @bujanowicz, 5 days ago

I have spinal cord compressdion c5-c6 with pain in my arms and hands and fingers also fingers numbness also pain alike electric shocks
Jad schedule surgery ACDF but developed femoral vein and 4 in the the calf DVT and PE surgery is on hold
One doctor wants to do surgery after 3 months 2 otget neurosurgeons are saying i need to waight long as much i can is to risky
Monitoring myself for neurological senses loosing like dropping things and walking instability
Maybe someone had same sytuation like me
I am suffering i can not take antinflanatory meds or epidural injections because of nlood thinner can not stop

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Mentor
Jennifer, Volunteer Mentor | @jenniferhunter | 5 days ago

@bujanowicz I am a spine patient and had spinal cord compression at C5/C6. The burning and electric pain you describe is nerve pain. Am I understanding correctly that you've had a DVT blood clot that is preventing any spine surgery and you need to remain on blood thinners? Have you discussed with your providers how to get past this dilemma? I do think to have surgery, you would need to stop blood thinners temporarily, but it sounds like you may not be able to do that safely.

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1 reply
bujanowicz | @bujanowicz | 5 days ago
In reply to @jenniferhunter "@bujanowicz I am a spine patient and had spinal cord compression at C5/C6. The burning and..." + (show)
@jenniferhunter

@bujanowicz I am a spine patient and had spinal cord compression at C5/C6. The burning and electric pain you describe is nerve pain. Am I understanding correctly that you've had a DVT blood clot that is preventing any spine surgery and you need to remain on blood thinners? Have you discussed with your providers how to get past this dilemma? I do think to have surgery, you would need to stop blood thinners temporarily, but it sounds like you may not be able to do that safely.

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Yes, is not safe to stop blood thinners .
Is only 2 months when i was dignose with DVT and PE.
Doctors recommend 6 momths to ne safe

REPLY
dlydailyhope | @dlydailyhope | 5 days ago

@bujanowicz
I had ACDF on c5-c6 in 2022 because I had the same symptoms as you. I did not have DVT or PE but have antiphospholipid syndrome which is an autoimmune clotting issue. I go for my ACDF on c6-c7 tomorrow morning (need to be at the hospital at 5:30am). I have some permanent spinal cord compression injury due to the delayed diagnosis and treatment.

Do you know what caused your DVT and PE? What medications and supplements do you currently take?

If you are able to have your surgery in 4-6 months, that would be good. Be very careful not to fall because you can get paralyzed or have permanent spinal cord injury. They will prepare you with medication prior to and the day of surgery and your doctors will advise what medications/supplements to stop/when and which to continue leading up to your surgery.

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