Side Effects starting on Camzyos

Posted by marigold13 @marigold13, May 12 11:43am

Just starting 5mg. First day I got really woozy an hour after, stayed in and out of that for maybe 4-5 hours, but evening felt better but felt a bit short of breath. 2nd day was better, still a bit woozy but not for long. Felt tired took a nap, felt better in the evening but again SOB. 3rd day was the best day but then late afternoon I began to get woozy and SOB. No SOB on exertion but in general. Also was told to stop Metoprolol before starting Camzyos. During the week I did notice my heart rate going into the 80s, I prefer in the 70s, feels better. BP started going up, too. Called the doc on Thursday and he said I could revert to 12.5 Metoprolol once a day and that helped. But each continuing day the woozy was ruining my day along w/the SOB feeling. Felt the need to breath deep almost all day. Best time of day was the late evening. But over the weekend I just felt like it was becoming too much, and it ruined my Mothers Day. Not seeing many posts here about being unable to handle side effects. Anyone else? Thank you.

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@steckie

since starting camzyos, I fall asleep at a normal time 930-10:00, but have been waking up between 330 & 530 in the am and not able to fall back asleep. I was never an early riser. By 2:00 -3:00 pm I am exhausted. I have to get things done before that time because I end up on the sofa or bed resting. I was always hypothyroid and now I am the complete opposite, hyperthyroid. Doctor is adjusting my medication. I also take metoporol and valsartan, cymbalta. getting up that early makes for such a long day. I am so over it!

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When i first started camzyos i was having sleepless nights, im an early riser and late to bed, i was taking it first thing in the morning 5ish
I switched to taking it before bed time and it helped. I had those evenings in the beginning where i felt exhausted but that all subsided after some time.
If your able try and stay active bicycling, walking
I hope it gets better for you

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Ask your doctor if you can take it at night at bedtime. My husband had same side affects and his doctor said he could take it at night. He still has a woozy or SOB problem when he first gets up but it only lasts an hour or two. After the third week he started feeling better and having more energy and less naps. Always check with your doctor first though!

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