Memory care counselor insights

Posted by LinaXYL @linaxyl, May 23 3:22pm

Have you consulted a professional memory care counselor? I went to a support group yesterday and got some good information from one. My husband caused his dementia by binge drinking, and now even though he's stopped drinking, the damage is done and will continue to worsen. I've been so focused on the drinking that I didn't relate his worsening condition to dementia. I think the most important thing I learned yesterday is that the part of his brain that controls or initiates "executive" actions is pretty much gone. So, as I understand it, he's no longer getting signals to get up out of the bed or chair. Or shower or brush his teeth or comb his hair or change clothes or put his cereal bowl in the dishwasher instead of the sink or throw his trash away when he's done eating a snack or ... She also said not to "warn" him that something is going to happen. Just make it so. For instance, don't mention that you want to have someone come in to help him take care of his personal hygiene, just have them come over. Or don't tell him you want him to take a shower, just go over to him and take him by the hand and lead him to the shower. And so on. Don't let them think about something because they lack the ability to make it happen by themselves. That part of their brain isn't working.
She also mentioned Palliative Care which is something I'm going to explore.
And most importantly, we have to take care of ourselves. If you need to have someone sit with your person while you are out, make it happen. Go for a hike, get your hair styled, go to lunch with someone or go shopping or hunting or golfing ... whatever makes you happy. We cannot neglect ourselves. Maybe have someone come sit with your person for an afternoon every week.
Also make life easier for yourself. I have groceries delivered and someone comes in biweekly to vacuum and wash the floors. Have all medications delivered. I found a handyman who helps me maintain our house. He's very capable and has a reasonable rate. Just do it! I did realize a while ago that I could not count on my husband to do anything, so I took control of everything. Sort of like if he was gone, how would I handle things. Once I did that, a lot of frustration I had disappeared.
I'm going to find somewhere where I can go to make private phone calls because at home he will listen. We are old enough that I need to make sure I have plans in place for whatever the future holds, be it that we continue on like this, or he gets so bad he has to go into a nursing or memory care facility, or he passes or I pass, or I get to a point where I just have to leave. So getting all my ducks in a row is important and will take a fair amount of research. But I think that will reduce my stress a lot.
So that's what I learned - it was a lot for sure.
I know everyone is in a different circumstance. I've read posts where their person is afraid of water so won't shower or bathe, so obviously that is a different kind of thing. So take from this what relates to you and maybe share some things you have learned. This has been quite a week for me, realizing what was really going on. But it makes sense and I thank my Guardian Angel for guiding me to this site. It opened my eyes.

Interested in more discussions like this? Go to the Caregivers: Dementia Support Group.

This is very informative and helpful. DW is ten years into Alzheimer's and I do just about everything now. Had trouble with her hygiene until I started handling it the way you described. I quit putting things on the calendar and just tell her when it's time to go, to Dr, dentist, beauty shop, eye doc, etc. Good point about executive function, I thought she was just getting lazy because everything is being done for her. Short term memory is non existent, so the repetition is irritating, but it not helpful to mention it. There is an urgency when she thinks of some question to ask, probably because she knows she will forget unless she asks immediately. She is cheerful a lot of the time, and that's a blessing. I have to keep reminding myself that she isn't the person I've known all these decades, and never will be again. That's just a fact.

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@chris20

This is very informative and helpful. DW is ten years into Alzheimer's and I do just about everything now. Had trouble with her hygiene until I started handling it the way you described. I quit putting things on the calendar and just tell her when it's time to go, to Dr, dentist, beauty shop, eye doc, etc. Good point about executive function, I thought she was just getting lazy because everything is being done for her. Short term memory is non existent, so the repetition is irritating, but it not helpful to mention it. There is an urgency when she thinks of some question to ask, probably because she knows she will forget unless she asks immediately. She is cheerful a lot of the time, and that's a blessing. I have to keep reminding myself that she isn't the person I've known all these decades, and never will be again. That's just a fact.

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I'm so glad I helped!

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@linaxyl Thank you for this informative post! I am in the process of finding a caregiver support group for myself. My husband has Alzheimer's disease and is in the early stages. He has a weekly support group on Zoom. Your post has helped me very much. I have made some simple changes to make things easier for both of us. That has helped me with my frustration. I believe I am finally moving into acceptance and not blaming his inaction on laziness. I gave up on trying to change him too. I would love to know if anyone has tried dance lessons or music lessons with their partner with dementia or just learning something new?

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My wife's dementia manifests itself primarily in the loss of memory over the past four years, while retaining the capability to dress herself, including changing her disposable underwear (sometimes after I help with finding the right clothes) and going to the bathroom without help (beyond assistance in finding its location). She walks fairly well without a walker, but has slowed a little in her pace. She has always been capable of friendly conversation with topical responses to the moment's subject and that continues, but then, during the conversation, she will forget information given to her earlier in the conversation about the other person. She remains pleasant most of the time, but becomes upset if she perceives that, that particular moment, I am not concerned about her condition, without any recollection of attention or assistance earlier that day or prior days. Then, after reflection, she apologizes and expresses thanks and gratitude for my caretaking and demonstrations of affection earlier and for that of my younger sister who lives nearby. I have reconciled that, to the extent that these scenarios show manipulation, that is a mixed blessing reflecting cognizance and a plan to achieve attention. I have learned to forgive her and appreciate the passing of the temporary bad weather.

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